Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

can anyone direct me to the site that suggest vitamins & other things for natural relief…PLEASE

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@jjwest

can anyone direct me to the site that suggest vitamins & other things for natural relief…PLEASE

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@jjwest – I'm not sure if this is the site you mean but I posted the information that helps me in an earlier post in the discussion here which has links to the site:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=90#comment-290889

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Some of you seem to have tapered off of gaba and lyrica … did you change to something else? I know one person who takes 'Stratera' – I have no idea how to spell it. I'm past the point of any vitamins or cbd or over-the-counter stuff helping (already done those). Peggy

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I was on that plus others ! Best thing I ever did was sign up with Mayo for pain management and got off most meds and learn a better way to deal and understand my needs. Mayo staff and doctor were not pills pusher BUT helpful in getting to know ME and my pain levels. We are all NOT “ one pills fits all”.

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@timerdude

I was on that plus others ! Best thing I ever did was sign up with Mayo for pain management and got off most meds and learn a better way to deal and understand my needs. Mayo staff and doctor were not pills pusher BUT helpful in getting to know ME and my pain levels. We are all NOT “ one pills fits all”.

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Good Morning @timerdude
It is wonderful that MC was able to help you!
If is also wonderful that you were able to get an appointment!
Continued success in your journey to a pain free (or at least livable) life!
Ronnie (GRANDMAr)

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Thank you. I was blessed with a appointment so quickly because someone had canceled. I was willing to wait for a few weeks , if it were not for this cancellation! After a long time of dealing with my issue, waiting for awesome care, was worth waiting for the best help from Mayo!

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@timerdude

Thank you. I was blessed with a appointment so quickly because someone had canceled. I was willing to wait for a few weeks , if it were not for this cancellation! After a long time of dealing with my issue, waiting for awesome care, was worth waiting for the best help from Mayo!

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So what was the treatment plan that MC put you on that was do good.

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Mayo Clinic told me that they aren't taking any new neuropathy patients. I guess they are swamped. Since there are so many of us (I think I read 24 million people) who have neuropathy/chronic pain, it's time for the R and D companies to find better medicine for pain. Peggy

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@daviddd

So what was the treatment plan that MC put you on that was do good.

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Check out or call the Mayo and ask about the Pain Management Program. They will tell you all you need to know. My pain level is better control with the information and classes and medical team that took care of me. Worth the call and you can learn a lot from the Mayo Clinic.

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Thank you ! I will. Peggy

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@pfbacon

Thank you ! I will. Peggy

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@pfbacon – here is the Mayo Clinic Pain Rehabilitation Center page:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview

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Hi All!

Yet another new update…….
As a reminder……
I went to a pediatrist to have my feet checked for a few reasons including: her thoughts on the neuropathy, the color changes in my feet and a melanoma checkup (that is where the melanoma was found).
Anyway, I guess I must have been tired because my right foot was apparently dropping.
She suggested I get a brace to help, expecially with my dropped right big toe (which I knew about).
Went this week for a consult and the technician also saw a minor drop in my left foot.
Not dealing with that at this point.
He suggested a foot brace that will help with me picking up my toes.
It will be flexible at the ankle and might even help me drive!!!!!!!!!!!!!
That, I can't wait for.
So, at the beginning of May, I will return for my brace.
I do not have to wear it 24/7, but he does suggest that if I am walking for longer periods of time, I might want to use it. Since it should make walking less difficult, I shouldn't get so tired and I should be able to walk longer!!!!!

That's all she wrote for now…….
Ronnie (GRANDMAr)

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