Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@pfbacon

Yes. Epsom salts and heat packs helped for a few minutes, as does cbd and other creams and lidocaine patches/creams. What works for you?

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#pfbacon Before bed I use Epsom salts on my legs then rub or wherever your neuropathy is with peanut oil Edgar Cayce,s holistic health recommend this I was skeptical but it does helps

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@lioness

#pfbacon Before bed I use Epsom salts on my legs then rub or wherever your neuropathy is with peanut oil Edgar Cayce,s holistic health recommend this I was skeptical but it does helps

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@lioness – what does the peanut oil do? Does it include an ingredient that calms the nerves somehow?

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@lisalucier

@lioness – what does the peanut oil do? Does it include an ingredient that calms the nerves somehow?

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@lisalucier According to Edgar Cayce who was the sleeping profit in the early 1900 he has a website Edgar Cayce A.R.E. he said that peanut oil is good for the nerves,nutrition rich, hydrates, relieves muscles aches and pains. It also is good for getting rid of lactic acid that causes a lot of pain it does in my thighs. He has a lot of holistic remedies on his website. The arthritis in knees lacks hydration in the joints. This has a lot of different nutrients in it. Some people he has suggested take a warm bath massagin knees in the water dry of then massage the knees with this oil 2 x a day . I just started doing this I know when I rub it on the legs at night time after I soak them with Epsom Salts I can sleep and am not wakened with pain during the night . I have studied Edgar Cayce since 03

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@artscaping

@lorirenee1, and @rwinney, Hi there to both of you. I am going to try to kill two birds with one stone or whatever that saying is. Sorry about the flu. Just bird-dogging here…..did you get the super shot, Lori Renee? And by the way, thanks for the "atta girl". I try to be both honest and helpful. Connect is an amazing community of members, mentors, and moderators all learning by sharing.

Upfront, let's agree to admit that there is no perfect treatment or medication to eradicate and/or manage pain. They all help somewhat for some time. Now to your question about THC and getting high. "High" might mean different things to different folks. In my mind, I have been high only twice in four years. This means that I had to crawl because I couldn't walk. It lasted about 3 hours and was the result of me enjoying a Jack Daniels Special Select after doing the cannabis. You might think I had learned something…….and so several weeks later I did the same thing with red wine. Lesson finally learned…..no alcohol.

If you are talking about a sort of mild feeling of calmness although a bit giggly. I don't really call that being high. And it could be caused by any of the following:
You are using a product that goes through your digestive system…..maybe an edible or a capsule. It is best to use tinctures. Hold the dropper material under your tongue for a minute or so and it will be transferred directly to your bloodstream/brain.
Lori Renee, I don't quite know what you mean when you say you buy indica. Is your product an indica/Sativa hybrid or all THC or a CBD/THC mix? My suppliers don't build their products on strains. In a 3:1 you have 3 parts of non-hemp CBD and 1 part of high-grade THC. The chemical make up of CBD is very similar to that of THC. In fact, the CBD will actually calm the psychoactivity of THC. The trick is to get the dosage percentages right with products that are reliable so you can find the sweet spot. And your sweet spot may be different than mine but it should smother the pain and discomfort for 3 or 4 hours. Remember it is not a time-lapse product.

And here is my last contribution until I hear back from you with your opinions and questions. Just like other medications, we have to expect that we will have to upgrade to a stronger dose at some point along the journey or a larger amount at any dose. I have just upgraded some of my dosages from 2:1 CBD/THC to 1:1 CBD/THC for the first time because I needed a heavier knock on my door. I have also just learned that with tinctures I can take my first dropper as soon as I wake up without having to eat something. Now I am reasonably pain-free within minutes of getting up. I love that part.

By the way……you can also change your cannabis "menu" as needed. For example: here is mine right now.
a.m. — 1 full dropper of 1:1 CBD/THC
noon — or as soon as you feel the pain, needles, etc. coming back — 1 full dropper of 2:1 CBD/THC
dinner/p.m. — 1 full dropper of 1:1 CBD/THC
bedtime — 1 full dropper and a half of 2:1 CBD/THC (the extra 1/2 dropper is just the best way to ensure a good night's sleep

So…..you can see there is lots of experimenting to be done: which product, what amount, at what time. I just don't know an easier way…..remember we are our own prescribers and our own evaluators.

Just let me know what's next. Is this helpful? How would you describe the high that is bothersome? Does it scare you?

Joy is all around you…..grab some today. Chris

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The cost of medical marijuana is very high. I used to take CBD oil three times a day and THC oil at night, but it got way too expensive for me. Now I only take THC at night to help me to sleep.

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@pfbacon

I too wake up with muscle cramps in my legs. Magnesium supplements made it worse, as did calcium, muscle relaxers didn't work. I found that I need to stretch after any exercise and at night in the shower when the warm water is relaxing the muscles, and stretch gently in the jacuzzi as often as possible. Also drink water – it's true that dehydration, even mild dehydration causes muscle cramps. We are all the same but we're also all different. I have to change medications or doses often – they work for awhile, then something else works, then in awhile I can go back to an earlier medicine and it works …
I used to think that allergies were fascinatingly complex – now I think that Neuropathy is complex and interesting. It takes up a lot of time that I would rather spend playing sports and writing and hanging with friends but that's life sometimes. We can either do it and keep doing it, or lay down and go to hospice or look around for something sharp to cut our veins with.

I grew up in Los Angeles, where people believe that the Purpose of Life is Pleasure; we manufacture the entertainment that the whole world buys. My husband grew up in New England where people believe that the Purpose of Life is Duty; you will have some pleasure along the way but anyone who pursues pleasure is shallow. We've been married for 31 years, each of us modified and compromised where necessary and I still ponder this concept of Pleasure and Duty at times.

Peggy

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My husband gets cramps all over his body. Sometimes it is in his hand, or his legs, his stomach or his back. It is hereditary because his father, and his cousins also have it. He jumps in a hot shower and uses a heat pad. He keeps hydrated, but it doesn’t seem to help him.

I also grew up in New England and have a strong sense of duty to care for my fellow man. I moved to Northern California when I was in my 30s and found the people there were also conservation minded and thought just like me. Then I moved to Southern California and people seemed to care about what kind of car they drive and what street you lived on. They wasted water by hosing down their driveway, etc. It was a culture shock. Movie people lived all around my neighborhood and I could not understand why they felt that they could cut in line ahead of my in restaurants, etc. and get special attention in the local events that we participated in.

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I live in HOBOKEN and are on a SENIOR CITIZEN stats, with PERIPHERAL NEUROPATHY torment. Just got over a MASSIVE ATTACK of PAIN. Took two ADVILS prescription GABABENTIN 300 mgs. and hopped around for several hours in PAIN….took my INSULIN after a BOWL OF OATMEAT WITH A LOT OF CINNAMON IN IT AND IT FINALLY CALMED DOWN TO A LOW ROAR. I need to walk for about twenty minutes to spread the inflammation evenly, then it doesn't hurt so much..AM 76…..Margaret O

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that is OATMEAL not OATMEAT…I am silly now and feel somewhat elated that I am still alive after all of this pain. Had a 9 pound baby years ago and it didn't hurt this much….M.

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@darlingtondoll

The cost of medical marijuana is very high. I used to take CBD oil three times a day and THC oil at night, but it got way too expensive for me. Now I only take THC at night to help me to sleep.

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I concur. Sad to say but, the only way I can afford it is because my Dad gives me an advance on my inheritance for medical expenses. Not the way I would have EVER imagined it.

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@margaretob

I live in HOBOKEN and are on a SENIOR CITIZEN stats, with PERIPHERAL NEUROPATHY torment. Just got over a MASSIVE ATTACK of PAIN. Took two ADVILS prescription GABABENTIN 300 mgs. and hopped around for several hours in PAIN….took my INSULIN after a BOWL OF OATMEAT WITH A LOT OF CINNAMON IN IT AND IT FINALLY CALMED DOWN TO A LOW ROAR. I need to walk for about twenty minutes to spread the inflammation evenly, then it doesn't hurt so much..AM 76…..Margaret O

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Real sorry you went through that last night. I hope today is better for you. I have been there and no fun.

At least with your 9 lb baby, there was a light at the end of the tunnel!! 😊

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@mstrasse1

I have spent the last year trying all cbd combinations and many other salves and pain relievers – some would work for few days, but that was it. I read about the Cold Laser and immediately ordered one from Amazon for $129. I have been using it for one week and have been able to sleep all night for the past 6 days. Hopefully this will continue.
Most of the pain is gone, but the numbness still exists.

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@mstrasse1 Interesting clinical trial of a specific cold laser for treatment with diabetic neuropathy. https://clinicaltrials.gov/ct2/show/NCT04006392

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@margaretob

I live in HOBOKEN and are on a SENIOR CITIZEN stats, with PERIPHERAL NEUROPATHY torment. Just got over a MASSIVE ATTACK of PAIN. Took two ADVILS prescription GABABENTIN 300 mgs. and hopped around for several hours in PAIN….took my INSULIN after a BOWL OF OATMEAT WITH A LOT OF CINNAMON IN IT AND IT FINALLY CALMED DOWN TO A LOW ROAR. I need to walk for about twenty minutes to spread the inflammation evenly, then it doesn't hurt so much..AM 76…..Margaret O

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@margaretob I find the best first thing to do while standing is to force my heel down until it's flat on the floor (it hurts like crazy!), then massage the leg with any kind of lotion or cream that is handy. Works for me, and I hope it will work for you. I find Gabapentin useless for pain relief. All it does is make me sleepy and causes brain fog.

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@margaretob

I live in HOBOKEN and are on a SENIOR CITIZEN stats, with PERIPHERAL NEUROPATHY torment. Just got over a MASSIVE ATTACK of PAIN. Took two ADVILS prescription GABABENTIN 300 mgs. and hopped around for several hours in PAIN….took my INSULIN after a BOWL OF OATMEAT WITH A LOT OF CINNAMON IN IT AND IT FINALLY CALMED DOWN TO A LOW ROAR. I need to walk for about twenty minutes to spread the inflammation evenly, then it doesn't hurt so much..AM 76…..Margaret O

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@margaretob I am so sorry about your pain, and share it with you, on most days. Neuropathy is insidious. Lori Renee

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@rwinney

Real sorry you went through that last night. I hope today is better for you. I have been there and no fun.

At least with your 9 lb baby, there was a light at the end of the tunnel!! 😊

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That light is now 37 with a wife and a child. DIABETIC on meds not INSULIN yet. He doesn't listen to stick to the proper diet.
I worry. Oldest also on meds, is 52…middle 43 no diabetes. It is INHERITED here so we had a warning before it got here. I got the worst of it but am sticking with the PROGRAM of diet, walking, and meds and insulin. SINCE MAY 1995…am 67…..M.

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@margaretob

That light is now 37 with a wife and a child. DIABETIC on meds not INSULIN yet. He doesn't listen to stick to the proper diet.
I worry. Oldest also on meds, is 52…middle 43 no diabetes. It is INHERITED here so we had a warning before it got here. I got the worst of it but am sticking with the PROGRAM of diet, walking, and meds and insulin. SINCE MAY 1995…am 67…..M.

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TODAY only pinching sugar was 150 after lunch, will walk it down to less. Feeling a little better, but very tired from YESTERDAY….Days go by and I have to guess what to do,…PAIN IS NOT FUN….M.

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@rwinney

Thank you as always for your experience and knowledge Chris. After 3 months of experimenting , I've found the closest thing to a sweet spot. There are many variables… such as best on empty stomach, line stomach with fat (I take big spoon of peanut butter or eat a handful of almonds) to avoid nausea, timing around other meds and on and on. And as you say, possible future tweaking. Aren't you just so proud of me for learning?!?! 😊

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Halleluja! Yes, I am very proud of you for many reasons. First, You are able to sift through my dialogue and modify it to your own need to know at the time.
2. Like most of us, you arrived at Connect looking for "the" cure. You have accepted the fact that there is no cure for SFPN at this time, just many choices for quality of life improvements by managing pain.
3. You have learned to live through the frustration of things not quite living up to your expectations. You accept that chasing and expecting totally pain-free outcomes is not possible right now.
4. You are able to get to the bottom of your challenges….e.g. the pain can become more troublesome to handle when the rest of the family jumps up and runs out to experience the day while you stay at home and try to get that sweet spot.
5. Even when your first post of the day conveys that you are struggling a bit, your greetings and digital chats with all of our Connect community members are positive and help reduce anxiety with gentle words of compassion and/or humor.

Keep it up……..I don't have flowers but I always have art. Chris

melting-beauty-at-blue-background-picture-id1073899972

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