Learn how to use Mayo Clinic Connect
Request an Appointment
Anyone here dealing with peripheral neuropathy?
Yes i have had peripheral nephropathy for 5 years now. I am a 45 year old male and they tell me they cant tell me why i have it or how i got it. it is so frustrating and not only affects me but my family. I am thinking of doing a nerve block, has anyone on here ever tried it?
Jump to this post
Hi @jasont, not having a specific cause can be frustrating but it doesn't change a whole lot. I have idiopathic small fiber peripheral neuropathy but only have the numbness. I had it for over 20+ years before I decided I wanted a diagnosis and then when I got the diagnosis I found out that most all of the treatments are based on removing or getting rid of the pain and do nothing for the numbness. It has forced me to become a stronger advocate for my own health and learn as much as I can about my health conditions.
There is another discussion about nerve blocks here that may be helpful for you to join in and post questions.
> Groups > Bones, Joints & Muscles > Epidural nerve block
Have you tried other treatments for your peripheral neuropathy?
I also have PN and didn’t know what was causing it. It has been mostly cured with something called “The Graston Technique”. Find a chiropractor who practices this. no medications were needed!
Here's a link that explains the Graston Technique.
The Graston Technique – Inducing Microtrauma with Instruments
I tried the Graston technique with my physical therapist, but it seemed to make my nerve pain worse. It probably depends on what is causing the neuropathy in the first place. Do you know what is causing yours? Mine seems to be due to issues with my neck and spinal chord that were brought on by a steroid epidural in my neck. What part of the body did they do it to? How long did they do it? I did it about five or six times.
Followed your link. Not what I would call a resounding affirmation of this procedure. Thanks, but I think I will pass on this one.
Mine seems to be structural, impeded nerves from twisted pelvis and also from severely tight calf muscles.
To @julchilds … I’m curious…who told you the cause of your PN? Specifically the twisted pelvis and severely tight hamstrings? Thanks
My neurologist told me that my Nervous System is dying; there is no cure for it. We all get old … and parts of us stop working. She couldn't tell me how long I will live as everyone has different parts of their body wearing out at different rates. 'Reality' bites sometimes.
Like, right now. Peggy
I was diagnosed with peripheral neuropathy via pathology of skin biopsy taken from my right ankle. The report suggests the case is rather advanced, which is very troubling as it came on overnight and was until recently, confined to the first three toes of my right foot only. It has now recently “spread” to the first three fingers of my left hand. All the testing ordered by my doctor and neurologist to find a cause have yielded only normal results, no blatent issues. For now it’s considered idiopathic.
One odd thing happened between the arrival of symptoms in the foot and hand, I acquired a nasty case of shingles about the chest and back. The pain from this was extremely harsh. I felt as though someone took a baseball bat to my rib cage. I was hoping that my neurologist would have a eureka moment when I divulged this information, but no, he did not make any connections.
Until I found a neurologist, I was not sleeping at night, not well at all. He prescribed me a compounded creme made from lidocaine, prilocaine, and gabapentin. This really helped to alleviate my foot pain. He said it works for about 20% of those who try it.
Hello @ahendershot, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but have had it 20+ years. Mine is mostly numbness in my feet and just above the ankles. This past winter while clearing snow I stayed out a little longer than I should have and even though I had good gloves on my hands got very cold and as a result it feels like I have the start of neuropathy in the tips of a few fingers on my left hand or it's a result of frostbite.
Do you have pain with your neuropathy? I don't have any pain from it but I take supplements which has slowed the progression of the neuropathy. I posted what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
Andrew… do you have any foot drop? Interesting that your neurologist didn't connect the Shingles with onset of neuropathy.
Create an account to connect with other patients and caregivers like you.Ask questions, get answers, and give and get support.Also follow blogs from Mayo Clinic experts.
Already have an account? Sign In