Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

@waltermc

Is there a website for this facility or treatment?

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@waltermc here is a Sharing Mayo Clinic story on the treatment

Breaking Away From Pain With the Help of ‘The Scrambler’
https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

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@da20pilot

Hi
I have found the natural opioids work better for me such as morphine. Not sure why others are not recommending fentanyl though. Hope it helps

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@da20pilot

I've been taking morphine sulfate contin orally for sfn pain for more than 5 years. It helps take the edge off the pain.

Jim

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@terrydclaar

What opioids do you find helpful for foot PN and do you use them orally or topically?

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I took Morphine for a year. I tried both the tablets and the liquid. They just switched me to Methadone Hydrochloride tablets. The Methadone works better and it lasts a long time.

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@fredjan2016

I took Morphine for a year. I tried both the tablets and the liquid. They just switched me to Methadone Hydrochloride tablets. The Methadone works better and it lasts a long time.

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Hello. May I jump in and ask if anyone using opiods for pain…is complexed over whether or not it helps pain or, as Drs say, creates more pain? I've been using Norco (hydrocdone) 5mg 2 years for full body burning, cramping, numbness, aching and sharp pains. Thanks for weighing in.
Rachel

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The only pain med that helps me is Tramadol with my pain and gabapentin does stop the burning at night time so I can sleep

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@rwinney I'm allergic to Norco only thing helps me i

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@rwinney

Hello. May I jump in and ask if anyone using opiods for pain…is complexed over whether or not it helps pain or, as Drs say, creates more pain? I've been using Norco (hydrocdone) 5mg 2 years for full body burning, cramping, numbness, aching and sharp pains. Thanks for weighing in.
Rachel

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My opioid pain medication removes the pain so I can sleep or sit. If I try walking around I will feel pain in my feet. If I keep walking the pain eventually will be more than the pain medication handle. I started out using no pain medication. When I could not longer sleep I took Hydrocodone. The pain got worse and I had to take more pain medication. So, did the pain increase on its own, did my body get used to the pain medication and I needed more or did the opioids make my pain worse? (rhetorical question) My neurologist said at the very beginning that my neuropathy would only get worse over time. Either way I have needed stronger pain medication over the last 4 years.

Liked by rwinney

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@fredjan2016

My opioid pain medication removes the pain so I can sleep or sit. If I try walking around I will feel pain in my feet. If I keep walking the pain eventually will be more than the pain medication handle. I started out using no pain medication. When I could not longer sleep I took Hydrocodone. The pain got worse and I had to take more pain medication. So, did the pain increase on its own, did my body get used to the pain medication and I needed more or did the opioids make my pain worse? (rhetorical question) My neurologist said at the very beginning that my neuropathy would only get worse over time. Either way I have needed stronger pain medication over the last 4 years.

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Thank you @fredjan2016 for sharing your observation of hydro. Its a confusing mess and for me, psychological warfare. I shouldn't put myself through it but, always trying to do what's right. Drs and even Mayo preach to get off opiods and find holistic ways of helping. Well, in my opinion, holistic takes me just so far. Maybe it's time to explore new pain relief options as hydrocodone gives me 1-2 hours of take the edge off relief and I fight through til the next dose is allowed. Idk…maybe this is normal for most meds.
Rachel

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@fredjan2016

I took Morphine for a year. I tried both the tablets and the liquid. They just switched me to Methadone Hydrochloride tablets. The Methadone works better and it lasts a long time.

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Thanks for the info fredjan2016. What types of foot PN pains does the methadone hydrochloride help with?

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My neurologist and pain specialist both said that Neuropathy gets worse and that's why we have to keep increasing the meds. The nervous system is dying, starting at the tip ends of the nerves (in the feet) and working it's way up, eventually to the main trunk lines. Neither meds or anything else can make it die faster or slower. Ah well, we all die of something some day, cancer is worse, copd is much worse, stroke is worse, and thank our lucky stars that we don't have leprosy … Peggy

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I think it’s possible to slow or stop the progression of neuropathy as was the case with John Bishop. Everyone’s body and immune system is different and just as with people who have gone into remission or totally recovered from things worse. I also think positive thoughts help. Just my 2 cents

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@rwinney

Thank you @fredjan2016 for sharing your observation of hydro. Its a confusing mess and for me, psychological warfare. I shouldn't put myself through it but, always trying to do what's right. Drs and even Mayo preach to get off opiods and find holistic ways of helping. Well, in my opinion, holistic takes me just so far. Maybe it's time to explore new pain relief options as hydrocodone gives me 1-2 hours of take the edge off relief and I fight through til the next dose is allowed. Idk…maybe this is normal for most meds.
Rachel

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Your doctor shouldn't like that your pain medication isn't lasting long enough. When I had that issue, I left a voicemail with my pain medicine doctor's nurse telling them that I was in a lot of pain before time for my the next dose and what I should do about it. They were very good and called me back that day. They didn't want me to be in pain and they increased my pain medication. (I've learned never to ask them for more pain medication. If you do they think you are a junkie.) I hope they take care of your pain soon.

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@terrydclaar

Thanks for the info fredjan2016. What types of foot PN pains does the methadone hydrochloride help with?

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I have idiopathic small fiber peripheral neuropathy in my feet. The methadone takes care of all the pain: burning, stabbing, pins and needles, shooting pain, extreme sensitivity. Sometimes it feels like someone has a nail and they are trying to run it through a spot on my foot. It is a different spot each time. Sometimes I just have to laugh when that happens cause nothing is touching my foot. The numbness is always in my feet but it doesn't bother me.

Liked by rwinney

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@fredjan2016

Your doctor shouldn't like that your pain medication isn't lasting long enough. When I had that issue, I left a voicemail with my pain medicine doctor's nurse telling them that I was in a lot of pain before time for my the next dose and what I should do about it. They were very good and called me back that day. They didn't want me to be in pain and they increased my pain medication. (I've learned never to ask them for more pain medication. If you do they think you are a junkie.) I hope they take care of your pain soon.

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@fredjan2016 @rwinney

I made the mistake of voluntarily cutting back my dosage of ms contin from 30mg tid to 15mg tid, and now he's told me that (in his mind) I've become tolerant and raising the dosage wouldn't help, so he refuses to increase the dosage. He's also said that if I ever start using any cannabis products he would stop prescribing any pain medication. I understand that he has to follow the guidelines set up by his clinic, but that seems to be irresponsible medical care by denying me access to the medications that actually treat my pain, that are meds he has been prescribing for more than 5 years. Until a few months ago it had been the only medication that did anything for my pain. Adding imipramine in November has given me some pain relief without unacceptable side effects, but I know that the ms contin is doing its part. I've been trying to take it only once a day, in the morning, but it's not enough, so I had to start taking one at bedtime as well. I keep up with getting the prescription filled every month so I have enough ahead to last me for 3 months if my pcp refuses to continue prescribing it. As if dealing with the pain isn't enough. I just hope the irrational panic of opioids goes away so we who take it responsibly for chronic pain won't be treated like druggies.

But that's one of my soapboxes and I'm now climbing off it.

Jim

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@jimhd

@fredjan2016 @rwinney

I made the mistake of voluntarily cutting back my dosage of ms contin from 30mg tid to 15mg tid, and now he's told me that (in his mind) I've become tolerant and raising the dosage wouldn't help, so he refuses to increase the dosage. He's also said that if I ever start using any cannabis products he would stop prescribing any pain medication. I understand that he has to follow the guidelines set up by his clinic, but that seems to be irresponsible medical care by denying me access to the medications that actually treat my pain, that are meds he has been prescribing for more than 5 years. Until a few months ago it had been the only medication that did anything for my pain. Adding imipramine in November has given me some pain relief without unacceptable side effects, but I know that the ms contin is doing its part. I've been trying to take it only once a day, in the morning, but it's not enough, so I had to start taking one at bedtime as well. I keep up with getting the prescription filled every month so I have enough ahead to last me for 3 months if my pcp refuses to continue prescribing it. As if dealing with the pain isn't enough. I just hope the irrational panic of opioids goes away so we who take it responsibly for chronic pain won't be treated like druggies.

But that's one of my soapboxes and I'm now climbing off it.

Jim

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I have never told any of my doctors that I take medical marijuana. I know that they don’t understand it because they have never bothered to study it.

Liked by lioness, rwinney

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