Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@lynsorensen

Medical marijuana has given me an almost pain free life after years of doctors putting me on opioids. I get the CBD oil capsules which is NOT hallucinogenic at all. I take one each morning with breakfast. And I got a jar of the ointment to massage any ‘hot spots’ that occur. When I get that sharp pain in my leg or shoulder, I rub it in and the pain is gone in 10 minutes.

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Where are you getting the CBD oil capsules? Does it have any THC in it?

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John I have been to the protocol site many times and I do take some of the supplements . Did you go full and do everything, all of them ,and as many as it daily said?? I have not ordered the hemp seed oil. How long did you do the full protocol? Do you still take the full amount everyday??

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where is protocol?

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@peggyn

John I have been to the protocol site many times and I do take some of the supplements . Did you go full and do everything, all of them ,and as many as it daily said?? I have not ordered the hemp seed oil. How long did you do the full protocol? Do you still take the full amount everyday??

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@peggyn @jjwest — I have been a member of the closed Facebook group Solutions to Peripheral Neuropathy Pain & Discomfort since August 2016. I have been on the full protocol since Sept 2016. The purpose of the group is to offer a natural alternative to all of the pain drugs that are used to treat neuropathy — It is not a cure for neuropathy – there is no cure.

Facebook: http://www.facebook.com/groups/spnpd.
Website: http://solutions2pnpd.com/

I have no medical training or background. For me the choice is simple since I have no pain with my idiopathic small fiber peripheral neuropathy. The medical community has no drugs available that address numbness that is the major symptom of my neuropathy. The drugs offered that treat the pain do so by blocking the pain signals in the brain – not a coincidence that one of the long term side effects of the drugs like gabapentin and lyrica is foggy brain and they are difficult to taper off. Maybe I would feel different if I had pain. I know how great the prednisone makes me feel when I have an episode of polymyalgia rheumatica (PMR). What the protocol of supplements does is provide an alternative treatment to replace the drugs after you are on the full protocol and the effects of taking the protocol start working (no pain). You can't pick and choose which ones to take. They all work together to promote nerve health.

Another thing to mention is that diet is very important. Both sugar and alcohol are worse for you when you have neuropathy. I still struggle a little with the sweets but I watch what I eat and try to minimize sugar intake.

My PN story on Connect: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

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I don't understand 'protocol' in this context. Is it like a medical 'program' ?

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@pfbacon

I don't understand 'protocol' in this context. Is it like a medical 'program' ?

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Just the name the group gave the list of supplements and vitamins = the protocol 🙂

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If I'm not mistaken, in the medical world doesn't "protocol" refer to the course of action or treatment for a medical condition?

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@margottaylor

If I'm not mistaken, in the medical world doesn't "protocol" refer to the course of action or treatment for a medical condition?

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Now if only that knowledge would translate into having the cure for PN. 🙂

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Thank you John…I will look at the site. I just got out of the hospital with pneumonia .They cut me down to 600mg from 800mg of gabapentin every 6 hrs. I did ok. with the pneumonia I didn't care. When I got home I started taking gabapentin 800mg every 9hrs. I want so badly to off of gabapetin completely. I was told in the hospital that 800 mg every six hours was toxic. So wish me well on this venture. Thanks again for the information. JJ

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