Anyone have knowledge of rare cancer fetal adenocarcinoma

Wow, that is some diagnosis. I'm so sorry you and your husband are going through this horrible disease. That is certainly a very serious issue and your decisions to treat or not are nearly an impossible choice. But it IS one that your husband has to make but not hastily. You need to support him no matter what he chooses to do. I was recenlty diagnosed with NSCLC stage 4that has spread to the bone and brain. I am undergoing treatment. I've only had one so far and the side effects were not too bad for me, thank God.

I wish you both the best of luck, some closure and some peace.

Thank you, it is good to know that your treatment so far is ok. My hubby has a big decision to make, unfortunately his grasp of remembering things has slipped a bit since his brain surgery and its taking awhile for him to understand what is being said to him. He will make a decision when he is ready.

When diagnosed with stage four lung cancer 15 years ago, I was told I might live 10-15 months with the most aggressive treatment available. My mets were not as extensive though.

Haa as be you received the results of the mutation testing yet?

@denzie not all of them, it's taking a long time...weeks, seems it's complex due to it being such a rare cancer. It's frustrating for us and the drs as they don't know what treatments to try if he does decide to have treatment.

@gprior -I will pray for your husband and for you. 🙏. I know when hearing those choices it may be easy to give up, but I hope that he doesn’t! My husband was diagnosed with Squamous cell carcinoma and they never gave him a stage or a chance to fight. They told him there was nothing they could do and he had 3 months. He just gave up and was gone in a month. This was in a smaller town in AZ, in 1998. I wish I had taken him to Mayo for a second opinion but I was young (33) and didn’t know about Oncologists and Cancer centers, etc. In 2023 I was diagnosed with adenocarcinoma of my left lung. Went to Mayo, got my surgery and so far so good. Is he being seen by Mayo, or a reputable Cancer Center? I pray the best for you both, and I pray he will have comfort. It is his decision, but you may have to be strong enough to help him if his mind is faltering. Also, I would get Hospice involved, if they aren’t already. They were a Wonderful help for me with my husband, as I knew literally nothing about diet, meds, and all the legal paper work to get things in order. They are much better and do more for you now, then they were able to back then. God Bless You BOTH, and keep you in his loving care!🙏🙏🙏

@cmnocguire10 thank you so much i very much appreciate your advice. We are in Australia, Queensland so we cant get to mayo clinic. We do have very good drs here and we are in good hands we also have social workers and OTs who are helping us. Still, it is a lonely journey even when surrounded by people as many of you would know.

@gprior -I said a prayer for both of you and I pray again, that God will put his loving and healing hands on your husband. I DO believe in miracles, and hoping God blesses your husband with one! I totally understand the loneliness, but make sure to let friends, family, and the rest help you and comfort you both. Stay strong!💪❤️🙏

We finally got the results of the fetal adenocarsinoma that my husband has, it is high grade and is an aggressive form of cancer. He has recovered well from the brain surgery where they removed 2 tumours. The main focus now is his hip where the cancer has spread and is causing considerable pain even tho he is on pain meds including oxy. He sees oncologist tomorrow and still hasn't decided to accept treatment or not, the treatment they are offering is a combination of 2 chemos and 1 autoimmunine given together. . 🙏

@gprior Thank you for the update. Glad to hear he made it thru the brain surgery! Thanks be to God!
I would think if he was willing to have surgery on his brain, that he would be willing to try the chemo and immunotherapy. I can’t speak to side effects of either as I have not had to do those treatments, so it’s more just my opinion I guess. But whatever he decides to do I wish you both the best of luck!

@gprior, I hope the appointment with oncology went well, and that you both got some questions answered. Many people are given combinations of types of chemo and immunotherapy and they do ok. I understand that the decisions in front of both of you are highly personal and never easy. Sending you hugs.