Anyone have knowledge of rare cancer fetal adenocarcinoma ?

Posted by gprior @gprior, Jan 16 3:47pm

My husband has been diagnosed with fetal adenocarcinoma, a rare form of lung cancer that has spread to his brain, spleen and pelvic bone. He's had brain surgery to remove the tumours and has now been advised he has about 6 months to live without treatment or 12 to 18 months with quite aggressive treatment which may cause some serious issues. We have to decide quality or quantity, as so many of us with cancer have to do.. thoughts please, would be so welcome 🙏

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gprior | @gprior | Jan 27 2:23pm

In reply to @lls8000 "@gprior, I hope the appointment with oncology went well, and that you both got some questions..." + (show)

@lls8000 i agree that many people handle a combination of chemo and immuno quite well and live a stronger and longer time, my hubby is weighing up in his mind if the risk is worth just an extra 6 or 12 months, he thinks if it would "cure" him it would be worth it. Anyhow it is his appt today so we shall see what his decision will be .🙏

gprior | @gprior | Jan 29 4:33pm

We saw the oncologist and my husband said to her that hw will accept the radiotherapy but has decided not to have further treatment as in chemo and immunotherapy, she replied that she thought it was a wise choice. I and our family felt relief when she said that as we were concerned if he was making the right choice. He is content with his decision and just wants to enjoy as much life as he can while he can. He is in a lot of pain especially with his hip so his meds will be increased. His fetal adenocarcinoma is H FLAC, very aggressive apparently. 🙏

denzie | @denzie | Jan 31 9:17am

Sending an abundance of hope that the radiation works rapidly to reduce the pain. Thank you for this update.

Lisa, Volunteer Mentor | @lls8000 | Jan 31 3:34pm

In reply to @gprior "We saw the oncologist and my husband said to her that hw will accept the radiotherapy..." + (show)

@gprior, the important part is that he is content with the decision. It’s hard when we may not always agree with the patient, but it’s ultimately his decision. I wish he had received better news. This is a tough diagnosis. I hope the pain subsides so you can both enjoy some time doing whatever it is that you enjoy together. Sending hugs.

gprior | @gprior | Jan 31 3:56pm

Thanks to all of you for your very kind thoughts and wishes. We too hope that the radiotherapy helps his hip pain and the increased meds do also. There is a bumpy road ahead for the next months and we will certainly enjoy each moment of happiness that we can. Will keep you informed. 🙏

gprior | @gprior | Mar 14 3:21pm

This dreadful fetal adenocarcinoma has taken its toll on my dear husband and he passed away on 11th
March exactly 3 month after the day of diagnosis. I and my family cannot believe the speed with which it took hold of his body and brought down a strong previously healthy man. 🙏 . Glor

Colleen Young, Connect Director | @colleenyoung | Mar 14 3:48pm

In reply to @gprior "This dreadful fetal adenocarcinoma has taken its toll on my dear husband and he passed away..." + (show)

@gprior, I can imagine this is all a fog, losing your partner and so quickly after diagnosis. Thank you for updating us.

I know that everything is whirling from things to take care of, family around you, and managing emotions. Be kind with yourself. When you might need virtual support at any time, please know that there is a group here:
- Loss & Grief Support Group https://connect.mayoclinic.org/group/loss-grief/

Sending you a gentle virtual embrace.

gprior | @gprior | Mar 15 3:56pm

In reply to @colleenyoung "@gprior, I can imagine this is all a fog, losing your partner and so quickly after..." + (show)

@colleenyoung i felt your caring gentle embrace. Thank you
Glor

denzie | @denzie | Mar 15 10:04pm

There are no words appropriate to express my condolences to you and all who loved him. May you find comfort in the company of your loved ones and memories of happier times.

gprior | @gprior | Mar 16 4:03am

In reply to @denzie "There are no words appropriate to express my condolences to you and all who loved him...." + (show)

@denzie thank you so much, that is exactly what I am doing glor

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