Anyone been mistakenly diagnosed with MAC Lung disease but not MAC?

Posted by jkin467 @jkin467, May 5 2:53pm

I was diagnosed with MAC Lung disease 4 years ago due to findings on CT Scan and sputum cultures. However, recently hospitalized with pneumonia and a different Pulmonolgist did thorough research on my case and believes that I was misdiagnosed and don't have MAC. Just wondering if anyone else has had this to happen? Luckily, I chose not to get the extensive antibiotics treatment because I felt the treatment was worse than the disease. Would appreciate knowing if others have experienced this.

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Rick | @rstel7272 | Jul 19 11:19am

In reply to @pacathy "@rstel7272 Rick has dealt with cavities. I’m trying to tag him for you." + (show)

A second or third opinion is always valuable but the CT does not lie.
How big is your cavity?
My surgery was not suggested due to MAC but rather the aspergillus that set into a fungal ball in my cavity 2 years ago.
I had an unsuccessful resection 5 years ago and now NJH wants to do a full RUL lobectomy.
Like you I do feel pretty good but must limit my exertion so I am pushing it down the road or if ever.
Rick