Any success stories about Evenity to share with fearful me?

Kate, I have V-fib. So I understand the concerns. I had my electro cardiologist sign off on the procedure before I started and set a six month follow up exam. I am getting ready for my 9th injection. The bone markers are showing Evenity is working. I will have a dexa scan after the final injection.
Side effects have been mild. I find that I am really tired about three days after the injection [not for 3 day, but after 3 days]. This lasts about 24 hours but is not bad enough to interfer with daily living.
After seven injections in my arms, I switched to my stomach to give my arms a break. I was getting some slight irritation. I really prefer injections in my arms. I did have a minor rash at the injection sight when given in my stomach, but it was nominal.
Oh, and I felt that this was important. I have my injections at the infusion center of a major hospital. In that way, I am monitored for any immediate reactions.
I believe that staying busy helps.

Hi @callmekate
I had great success with Evenity. I had no side effects worth mentioning and a 30% bone density increase in my lumbar spine. More than I dared dream of. I was secretly hoping for 20%. When I got the results I was elated but afraid it could be a mistake, that much of an increase. But now, I'm darn sure that it is correct because I had the DXA checked by a certified bone densitometrist from a different location from where I had the scan and I repeated the scan 3 months later. All of these extra steps said scan results are real.

Oh, I haven't read this entire thread so I don't know if there was any discussion of this but that is a huge discrepancy between your DXA and your REMS test both for your hips and even more so for your spine.
Something it wrong there. You might want to get the DXA looked at by a qualified person. Once when in doubt I paid to have Lani Simpson review two of my DXA scans. This was when I had an unusual amount of bone loss between two scans. If your REMS score was accurate and your DXA wrong you should not be taking any osteoporosis meds.
I wish you the best of luck

Thanks for sending this. I have had no major trouble from my first shot, other than a prolonged bout of heart palpitations the next morning. I hope that doesn't happen again. I, too, was surprised when my doctor didn't ask for a DXA re-do after my results were so different between hip and spine. My next scan isn't until July. I'm encouraged by your results.

Thanks for sharing these details. I found myself exhausted on Day 7, and have had 3 episodes of AFIB since my shot 2 weeks ago. We'll what next month brings!

I have two compression fractures in my back at the moment and they can be quite painful. If I lean forward or reach for something--yikes! The spine doctor said these heal in 8 to 12 weeks. It's been 4 now...

Yes. My mom had trouble with Fosamax back in the day, as did her sister. I have been avoiding drugs for years, but now I am afraid of what my future could hold, with these compression fractures happening so easily...

I was in Osteoporosis when I started Evenity. Took 12 shots over one year with no side effects at all. Had a new bone scan at the end and I am now well into the central osteopenia range! I am 69 yrs old and a kidney and liver transplant patient. My back no longer hurts which was worth the risk for me.
I have since had one Reclast infusion with no side effects ( I did drink tons of water before and for a week after)
Best of luck to you!

How many shots of prolia did you have prior to the start of evenity?

Great results with evenity and no noticeable side effects.

I have just completed 12 months of Evenity treatment, and like you went on it due to concern about spinal fractures. My T score went from -3.5 to -2.51. The first 6-7 months were difficult as the major amount of bone growth is happening rapidly. The term "growing pains" usually attributed to kids is perhaps how to view it in an accelerated way.

I did have knee swelling and joint pain that was very challenging until month 7 and then the pain dissipated. The first five months it literally kept me up at night. I decided to stay with it as the risks to my spine would pose a greater level of pain and disability if a fracture were to occur due to Osteoporosis.

Hope this helps. It's not easy but outcome was worth it.