Alzheimers care and treatments: Consult with Mayo Clinic?

Posted by japlok @japlok, May 12 1:27pm

My wife was just diagnosed with AD and is currently on Donepezil. She will be taking a MMSE test in a couple of weeks to see if she qualifies for Leqembi or Kisunla. Does anyone recommend trying to get a consultation with a doctor at the Mayo in MN or stick with my current doctor? I'm looking for the best 'team' to help my wife and don't want to miss any opportunity if one is there. I have done nothing but read about the disease and tried to find any information on advancements to cure AD or slow it down significantly but haven't found anything that is promising. I read about using ultrasound to allow for the medication to attack the plaque quicker and also something called Perispinal Etanercept where an FDA approved drug for arthritis is used for AD treatment. I just need help with our path forward.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

japlok | @japlok | Nov 21 10:32pm

This is the response from my wife's doctor about hepatic encephalopathy. "Hepatic encephalopathy occurs in people with liver disease - toxins build up and can mimic dementia. Not only does Diana not have liver disease, but she also has confirmed Alzheimer's pathology in the brain, which people with hepatic encephalopathy do not have."

Diana had her 6th infusion this past Wednesday and everything went well. She is adjusting to the infusions and has very little side effects from each one.

Interesting and encouraging. https://alzheimersweekly.com/leqembi-slowing-alzheimers-what-you-need-to-know/

Happy Thanksgiving to all who celebrate it.

Ken