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Alzheimers care and treatments: Consult with Mayo Clinic?
Caregivers: Dementia | Last Active: Mar 27 6:23am | Replies (88)Comment receiving replies
Great information about HABIT @theglobalnomad1, and 2nded by @trishaanderson. Must be valuable! I have read the program is 10 days. Has there been a change in the program or maybe, are the 10 days spread out over a 3-week timeframe?
@japlok, I don’t remember if this was something discussed when you and your wife went to Mayo MN for consultation? @tdrell, you had mentioned finding out more about the program. Did you ever pursue more about it? I think this is where our conversation left off:
- Discussing Mayo Clinic HABIT
https://connect.mayoclinic.org/comment/1408967/
What great information that the HABIT program is offered at each Mayo Clinic location and that non-Mayo members have experienced it as well. I have read that HABIT focuses on helping with skills to stay independent following a diagnosis of Mild Cognitive Impairment (MCI). Then as you mentioned @theglobalnomad1, you now have an alumni group for support.
How did you find out about this program, how would interested patients and/or caregivers pursue it? Do you know, is this program restricted to “recently diagnosed MCI”?
Replies to "Great information about HABIT @theglobalnomad1, and 2nded by @trishaanderson. Must be valuable! I have read the..."
@jlharsh The HABIT program we attended in 2017 at the Scottsdale campus was 2 weeks, with a 1/2-day reunion 6 months later.
Our doctor at Mayo had referred us 3 years earlier, but my husband refused to do it at that point.
@jlharsh, I am surprised but we didn't discuss it while at the Mayo Clinic. I will be looking into it because it sounds like an awesome program.
An update, my wife is doing good with the infusions and doesn't have any more side effects. The infusion has become a fairly simple process, and fingers crossed it will continue that way. Tomorrow will be #15.
On another note, provided there are no issues switching to a local facility for her infusions in Illinois, we will be moving back there from Indiana. My wife wants to be closer to her friends and feels much more comfortable where we lived before. Hopefully there are no issues with the 'medical' move.
Ken
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@jlharsh Ours was 50 hours spread over three weeks, but some of the dates were 2 weeks (10 days) Same program and material covered. Rhonda Monger was our contact here at Mayo Jacksonville, but I am sure you can Google Mayo H.A.B.I.T. program and find out everything. I think they just need something from your doctor that you have mild cognitive impairment. My husband doc just wrote him a referral. There were folks who had no diagnosis, and those who had AD, Lewy Body dementia, and vascular dementia. Though you don't have to have the tests to get into the HABIT program, from what we learned, EVERYBODY should get tested sooner rather than later. If you do have Alzheimer's, the Kisunla and Lequimbi infusions work better the earlier they are started, and if you are past a certain point you are no longer a candidate for the infusion. We have heard such positive results from those who have had and are having the infusions that we are grateful we started when we did!