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charlie999
@charlie999

Posts: 14
Joined: Dec 15, 2017

Alternative (herb) medications

Posted by @charlie999, Jan 11, 2018

Anyone here tried alternative medications for mac? I was on the big three for a short time, but it was wrecking my body. liver still abnormal. I got off and not going back. Maybe try herbal solutions. I rarely ever cough and have no other symptoms. Doc says =according to my ct scans, I have mac=. Appreciate any herbal info/advice. Thanks. Charley

REPLY

@susiecax

Can someone list their alternative treatments
Thank u

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What do you mean when u use simply thick…do u take this every day to decrease sputum…the other vitamins/herbs, do you use daily. I’m also looking at natural products. I like what you are using through my own research…have also added Tumeric and garlic capsules to strengthen immune system✌️

@susiecax

Can someone list their alternative treatments
Thank u

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@megan123 from Nicole. Yes I use simply thick every day will all I drink (clear liquid) because a bit of liquid is going to my lungs. Check on the internet video of asphagia and yes it has clear the mucus in my throat and I do not have anymore sputum.
I only use my Dr Ohirra professionnal probiotic every day to keep my immune system strong. I need a good army of good bacteria to fight the ennemies. And (fight infections,virus, infection, inflammations etc). I took it twice a day for a month then once a day. They are the best ever taken. It was recommended and they are really good for me.
Clear Lung I was only using it if I felt my lung was collaidalcongested or if I feel my breathing is not as usual. I used Clear Lungs for a month at first as directed on the jar to balance the mucus and clear sputum. It worked good. Then I reduced it and was taking it when I had sputum or mucus it was not everyday. I only take them if I need it.

Colloidal Silver I used it on a period of two weeks at a time (1 teaspoon a day) then stop than I start again that is recommended that they are best taken on a short term basis unless used under the guidance of a doctor. This is known to have a potent antibacterial effects. i use it with the intention to get rid of the MAC and I also use Dr Ohhira for that same purpose.

Turmeric is good for anti-inflammatory. I use it sometimes when I feel it is needed.

Garlic: i have used GARLIC KYOLIC many years ago (the one my natural doctor recommended) with moderation
It is good for high cholesterol, immune system support, antiviral, antibacterial, anti-fungal, ear infections..

Hope this help Megan! If you want to discuss that send me your phone number on a private message and I will call you!

MESSAGE TO ALL

I don’t know if I ever shared with all of you my experience with probiotic. My younger brother at the age of 50 had both lung transplant. He had complications with a lots of infections and caught a bad bacteria in his lung. He nearly died because his lungs were full of infections. He was on strong intravenous antibiotic but it wouldn’t cure the infections in his lungs. He could hardly breath and needed to be connected to oxygen (like a big CPap). I had read in Dr Balch nutritional book that one study found that when people supplementing probiotics while on antibiotic therapy(3 antibiotics concurrently) had a significant reduction in diarrhea, nausea, and taste disturbance .etc.. for him it was do or die so I suggested to my brother to try this since we had no more solution neither the doctors. We started probiotic between the antibiotic treatment and after a month his infection was gone. That is the day I believed probiotic has an effects on all our body! Maybe those of you who are taking the antibiotic cocktail might considered this experience i had with my brother. True story! Nicole

Liked by ling123

Thanks for posting this. I have Mac and have been taking probiotic and prebiotic for several months. I am not taking the big 3 that my ID doctor prescribed. Eating loads of avocado and about 10 other supplements, trying to boost my immune system, hoping that will have a positive effect. If anyone might have knowledge of an alternative cocktail, please post it. Mine might be doing something — just had ct scan and dr said I was stable. If this good report continues, I will post a detailed description of my daily cocktail. Just added artichoke extract and blueberry extract. I am sure most doctors would laugh at my system, but I have always followed IF YOU ARE DEEP IN A WELL, AND SOMEONE THROWS A ROPE. — GRAB IT.
Blessings to all. Charlie.

@ charlie 999 Well Charlie Dr know nothing about natural therapy! I think you must be doing something right since you have a good result with your ctscan. I think it is a good proof! My dr for the MAC specialist doesn’t want to see me anymore because he says he has never seen a case doing so well lol! He had prescribe a pill for acid reflux in 2015 for mucus but replace it with Clear Lung he didn’t understand that at all lol anyway keep up the good work as long as you feel find and your ctscan is giving you good result. Have a nice day! Nicole

@charlie999

Thanks for posting this. I have Mac and have been taking probiotic and prebiotic for several months. I am not taking the big 3 that my ID doctor prescribed. Eating loads of avocado and about 10 other supplements, trying to boost my immune system, hoping that will have a positive effect. If anyone might have knowledge of an alternative cocktail, please post it. Mine might be doing something — just had ct scan and dr said I was stable. If this good report continues, I will post a detailed description of my daily cocktail. Just added artichoke extract and blueberry extract. I am sure most doctors would laugh at my system, but I have always followed IF YOU ARE DEEP IN A WELL, AND SOMEONE THROWS A ROPE. — GRAB IT.
Blessings to all. Charlie.

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What are the supplements you are taking?

@charlie999

Thanks for posting this. I have Mac and have been taking probiotic and prebiotic for several months. I am not taking the big 3 that my ID doctor prescribed. Eating loads of avocado and about 10 other supplements, trying to boost my immune system, hoping that will have a positive effect. If anyone might have knowledge of an alternative cocktail, please post it. Mine might be doing something — just had ct scan and dr said I was stable. If this good report continues, I will post a detailed description of my daily cocktail. Just added artichoke extract and blueberry extract. I am sure most doctors would laugh at my system, but I have always followed IF YOU ARE DEEP IN A WELL, AND SOMEONE THROWS A ROPE. — GRAB IT.
Blessings to all. Charlie.

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@jkiemen who are you talking too. You want to know what supplément one of us take? 

Nic

@susiecax

Can someone list their alternative treatments
Thank u

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@nick52 , Another way to get the colloidal silver is to drink from silver goblets and use real silverware. That is why our ancestors used real silverware.

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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Hi…I have not had official diagnosis but the radiologist and my GP say it looks like MAC. I am spinning, reading everything about the treatment routine. I have an apt with a local pulmonologist in my tiny town next week for diagnosis but need to find someone that can treat and is fluid in treatment of MAC after I get confirmation of the disease. Are you able to give me your Dr.'s name in Jacksonville? I live in FL so a four hour drive is not too crazy, unless I am making it weekly. Thanks..I am just trying to get my ducks in a row as I am a little freaked by reading about the treatment and your Dr. sounds like he is taking a less scary approach. Thanks.

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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I think natural things are wonderful and certainly less problematic in terms of side effects. However, I don’t think there is any natural remedy out there for MAC. Go slowly and don’t panic. If you do not get answers from your pulmonologist there are a lot of great places to go to for treatment. You also need an infectious disease doctor if you don’t have one. Due to my unique set of circumstances, my ID doctor is sending me to Denver to National Jewish Health. Not a fan of flying out there, but if I need to I will! Good luck.

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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I am sorry you are going through this but, everyone here is very supportive.

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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You are always so supportive.

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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@windwalker ….above comment requesting Dr information at Mayo in Jacksonville. Thank you. Kate

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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@alleycatkate, I see Dr. Jack Leventhal in pulmonolgy dept at Mayo in Jacksonville.

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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@windwalker Thanks so much for the info.

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