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charlie999
@charlie999

Posts: 14
Joined: Dec 15, 2017

Alternative (herb) medications

Posted by @charlie999, Thu, Jan 11 4:00pm

Anyone here tried alternative medications for mac? I was on the big three for a short time, but it was wrecking my body. liver still abnormal. I got off and not going back. Maybe try herbal solutions. I rarely ever cough and have no other symptoms. Doc says =according to my ct scans, I have mac=. Appreciate any herbal info/advice. Thanks. Charley

REPLY

Hi Charley,
There have been a number of complementary therapies mentioned in the main MAC discussion thread. Thanks for pulling this out into its own topic.
@ling123 and @dcoburn posted about vest and oscillation therapy. @nick52 has also mentioned several complementary options.

Complementary therapies are usually therapies used in addition to conventional care. Alternative therapies are defined as those use to replace conventional care. Sometimes people use these terms interchangeably. https://nccih.nih.gov/health/integrative-health#cvsa It is always a good idea to talk to your doctor about complementary or alternative therapies you’re considering, and to do your research about their effectiveness.

I really appreciate the advice that fellow Connect member Quazar offers in this discussion:
– How to Avoid Quacks and Snake Oil Treatments https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

@charlie999, I know that my previous reply didn’t answer your question about alternative or natural treatment for mac. My reply was rather about an alternative way to treat mac with antibiotics that is less harmful to the liver. If you are really interested in a more natural approach for treatment, then I would recommend seeking help at the University Of Arizona Medical school. They have a wonderful integrative medicine division there.

@Boomexpert,
I think you live near Clearwater? Am I right?

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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Thanks much Windwalker. I will sure contact univ of Arizona. Trying to stay with natural meds if possible. Hope yours goes good.
Blessings
Charley

Kissimmee near Orlando.

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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 @charlie999 glad to know that  you a treating yourself with Natural meds.  That is all I have used since 2010.  I am doing really well.  It is like medication trial and error but much less dangerous the natural then the chimical for our health.

Liked by susiecax

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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Thanks, Nick. I am trying to put together a successful natural regimen. If you could outline your treatment procedure, I would really appreciate it. Can’t seem to find much info, so I am mostly in the blind right now. Super good to know that someone has a handle on this. May God guide you with His most abundant blessings. Thank you for any help. Charley

Has anyone tried taking Silver

Can someone list their alternative treatments
Thank u

@susiecax

Has anyone tried taking Silver

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@susiecax. Susie are you talking about colloidal Silver?

@susiecax

Can someone list their alternative treatments
Thank u

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@susiecax regarding Alternative treatments. I will live the natural alternative to treat the Mac I have used but that doesn’t mean it is the right thing to do for you because you may not have the same symptoms like Charlie 999 I have never used any medication at all but I have used different alternative med. and I feel great. I was diagnost with bronchiectasis wh3n they saw nodule on my lungs in 2009 after an aspiration pneumonia. Right away I started doing research in all herbal book like Nutritional healing by Dr Balch and the internet searching for the cause and everytime I had symptoms I would find something natural to get ri$ of it.
I have find that Clear Lung to balance mucus and to clear my lung when I feel my respiration is a little difficult.
I am using Milk Thistle to detox my liver ( organs are all connected)
I have used also Colloidal Sylver to help the lesion or infections (if any) in my lungs. ( I never had much change in my xrays Ctscan that I do every this year it was even better)
I used Simply Thick to thicken my liquid so I won’t have mucus ( it worked great no more mucus)
I have used different thing to get rid of the MAC (found in 2014) Dr Ohhira professionnal probiotic (chech Dr Ohhira.com) My bronchoscopy this year confirm NO MORE MAC. I will keep taking them also for a year then by episode of 21 days.
WHEN i have a symptom I find some natural med to correct the problem so that is why you need to use whatever is good for your own synptom.
I also use REFLEXOLOGY to be more aware of what is going on in my body. Check you tube for a video of REFLEXOLOGY!
I also exercice my lungs with breathing exercices and physical exercices like Yoga, taichi
I also use Reiki. I can tell you I live a normal life!
nicole

@susiecax

Can someone list their alternative treatments
Thank u

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@susiecax here is the rest of my message because it didn’t want to take it .

I feel so bad reading all the bad experience or how sick they are all those who has taken the big cocktail. I have never experience. I had one big pneumonia cause by aspiration (asphagia) last year. Nothing major outside of it but I treat it right away with natural med.

I hope this will answer your question! Have faith that you will find the right natural med for your symptom and you will be guided by your guardien angel .

I also believe that we have the power to Accept all the things that I can’t change and have the courage to change all the things thar I can and the widom to know the difference. Nicole

@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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Susie, thanks for the reply. Really good to know someone else is doing well on alternatives. I plan on sticking it on out on naturals. Dont want to find out 5 years down the road that my liver is now shot, or both kidneys are gone. No one seems to have any idea of the long term damage of the big 3. I cough very little and breathing is good.
Good luck to you on your treatment.

God Bless,

Charlie

Thank u so much

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