Mayo Clinic Connect
I would like to connect with anyone from Canada…
Hi @amn17, welcome to the MAC group on Connect. Allow me to introduce you to fellow Canadians who are also members of the Connect MAC group. Please meet @lauriefrancis @megan123 @nick52 @teresaml @mariposa @joanney and @tessie.
Amn, we look forward to getting to know more about you. Do you have MAC, MAI, bronchiectasis? Do you see a specialist? How are you doing?
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Hi @colleenyoung thanks for your reply. I have MAC and was diagnosed 2 years ago. I am seeing lung specialists and I'm on treatment… had repeated hemoptysis due to a cavity so waiting for lobectomy surgery… Do you know any doctors who specilaze in NTM in Canada? Thank you.
Hi there….I live in Toronto, and have Bronchiectasis, MAC..MAI and psedomonas… I have the top MAC Dr in Toronto, Dr Brode at Toronto Western Hospital…where do you live??
Liked by Terri M., Volunteer Mentor, amn17
@megan123 I live in Vancouver. I messaged you Jennifer. Let’s chat more there.
Hi @amn17, the private message function is definitely useful to connect with others, but remember sharing on the forum brings others into the conversation as well. Group discussions can be very beneficial. And they will help the next newcomer to Connect who has been diagnosed with MAC in Canada. Just a thought.
Liked by Jennifer, Terri M., Volunteer Mentor, amn17
@colleenyoung Yes thats a good point. Thank you.
Liked by Terri M., Volunteer Mentor
@megan123 Im in Vancouver.
Hi, My son was diagnosed with bronchiectasis when he was 9 years old; he is now 15 years. We currently live in Bangalore, India and he had a rough year with multiple infections & psedomonas. Our Pulmonologist here has advised us to move to any place with better air quality & less population.We have decided to move to Vancouver, BC in April. Anyone on this group from Vancouver?
@rampa Very sorry to hear about your son, so young. There are a few people on here from Canada, most recently I saw @amn17 from Vancouver. If you're using a computer you can also use the search bar on this site by typing in "Vancouver bronchiectasis" and press the hourglass to the right which will take you to other members with that criteria. If you're using a smartphone, type in your search subject and press "go" which is on the lower right corner of the keyboard on your phone. There's actually 2 search bars when I pull up the site and I have to use the second one, still press "go" on my phone. Hope I didn't confuse you. Best of luck to you and your family.
Liked by Colleen Young, Connect Director
@rampa Im in vancouver
Liked by Margie E
Does being in coastal & moderate temperature help you? If you dont mind me asking, how often do you get infected?
@rampa Yes Vancouver has clean air because its very green and clean. I don't get infected much really due to environment. Good city, good choice. Does your son has NTM or just bronchiectasis?
Good to hear that you dont get infected often. Hoping my son feels better too once we are there. My son has bronchiectasis. BTW what is NTM?
@rampa It's Non tuberculosis mycobacteria a bacterial lung disease and has different strains of bacteria like Mac, etc. Usually if you have Bronchiectasis you might have other lung diseases but not sure in your case. Would be good to get checked when he is here.
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