Airway clearance and how I feel throughout the day
Hi everyone,
I know it might be a diffuse question, but let me try.
My pulmonologist told me if I do the airway clearance correctly. I
should feel clear of mucus during the day. I spend almost 30 minutes
doing it (flutter + autogenic drainage in the morning and evening). But throughout the day, I have to constantly clear out mucus most days. I am wondering what your experience is, is it normal for you? Maybe I am too sensitive about it.
Your experience is greatly appreciated.
Many thanks!
Ling
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
I have searched it in App Store but nothing comes up?
In app store, search for "autogenic drainage".
Dear @irenea8
I hope you have recovered from your GI and kidney problems. Feel better!!! I remember in one of your previous notes that you mentioned you had bronchiectasis for more than 20 years. And for 20 years you did not even use a flutter or nebulizing, only used your own breathing techniques. But you managed your condition well enough to avoid being infected by mycobacterium. I often think about you and how you successfully manage the condition for over 20 years. I feel so lucky to have you here in the group and generously share your experiences so others can benefit from. My pulmonologist recommended me to use an inhaler, especially in the spring time for a couple of months (ADVIRE) to prevent airway inflammation which will make bronchiectasis worse. I don't think I have asthma. I do dream to keep my bronchiectasis condition stable, but I am hesitant to use an inhaler. I guess I want to know if you have to use anything or an inhaler to avoid airways being inflated from time to time? And I guess I want to know what would be a proper maintenance path for me now. Like you, I don't think I have MAC even though I have not tested it yet. Fluttering and nebulizing would be enough? My pulmonologist has not prescribed me with nebulizing stuff yet. He asked me to use Albuterol before fluttering. So far it is working for me. I do use the inhaler sometimes, since I am still trying to find what I should minimally do to keep me safe from infections and keep my bronchiectasis condition stable. You also mentioned that you always have some kind of chronic infection, did the infection make your bronchiectasis worse? Like always, your experience will be greatly appreciated.
Ling
Dear Ling, It is a rather long story as to why I managed my Bronchiectasis without anything other than "coughing up" daily for so many years. I cannot say I avoided MAC since I was never tested for it all those years. But when I finally saw a better Pulmonologist just a few years ago he did test me for it twice and so far it has come up negative. But I do have chronic or mucoid strain Pseudomonas which is just as bad or worse. I do have days when I feel my airways are more constricted from more inflammation. On those days the mucus is harder to expel and I feel worse. But my Dr has never suggested an inhaler or even Albuterol since I am quite certain the Albuterol would make my heart race as I am prone to that now. I guess I would ask if your Pulmo is someone who specializes in Bronchiectasis. If not you might consider finding one that does. Inflammation is a big part of Bronchiectasis but so is infection. They go hand in hand. Another Pulmo might tell you to use saline but maybe you just do not have any reason for it yet. I lived with some level of infection for many years until I had a doozy of an exacerbation. No doubt letting it go that long made my Bronchiectasis worse but I cannot say for sure. I do know that the saline and flutter and positional drainage are critical for me now. If I did not answer something please feel free to ask. I really wish you well Ling and hope you can manage your Bronchiectasis better than I did! Anything I can tell you to help I am happy to.
Many thanks @irenea8 for your thoughtful response. I think finding a pulmonologist specializing in Bronchiectasis is very good advice. I should seek one. I will if something else comes up.
Take care!
Ling
It seems that the pulmo's who do not know a lot about Bronchiectasis end up prescribing just Albuterol or steroid inhalers. And not the saline. If you are coughing up much sputum with any color I should think the saline would be a good idea but if not you may be ok with his advise at least for now?
@irenea8,
That is a good thought. I don't have a lot of mucus and my mucus has no color. But I think at least consulting a specialist is a good way to go and to be on the right path is crucial. These days, finding a good specialist is very challenging. You mentioned that Bronchiectasis and airway inflammation are hand in hand. If that is the case, What keeps the inflammation down. Does saline have that effect too or just loosening mucus? That is the question in my mind.
Many thanks again!
Ling
If you do not have a lot of mucus and it is clear then you are doing well. What brought about your diagnosis of Bronchiectasis? What symptoms were you having? There is a map of USA that shows where the specialty clinics/drs. are located for Bronchiectasis. I will try to find that map and post the link later today. Bronchiectasis can cause numerous airway infections. Infection and inflammation usually go hand in hand. But as far as i know inflammation is an issue with Bronchiectasis no matter what. Saline is not for inflammation it is to help the mucus come up. It loosens it along with flutter device. Less mucus less chance of bacterias taking hold. So perhaps in some round about way it would help with Inflammation. But the steroids and Albuterol are more directly for that. A good diet and certain supplements may help with overall inflammation.
here it is. I found it quickly:
https://www.bronchiectasisandntminitiative.org/Research/Registry/Bronchiectasis-and-NTM-Research-Registry#map
My CT scan shows I have mild bronchiectasis after a year-long struggle with pneumonia and lung infections. I did mention using saline to my pulmonologist, he said I don't need it. I hope he is right. I do want to make sure that I understand when I should use it. what would be the trigger to start using it. He believes that inhalers will control the inflammation. I am 71, I think if the inhaler works the way he says, I could use it from time to time. We alway have to juggle the pros and cons, and make the right choice. In my upbring, all medicine has 3% of poison in it, well, this is the saying, not really poison. Thank you for telling me what the mucus means in my case. That is very comforting.
Many thanks again and take care.
Ling