Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

Posted by rose53 @rose53, Oct 21, 2021

I was just diagnosed with this uterine cancer. I am 68 and I'm so freightened. Waiting to see doctor for hysteroctomy. This is all I know. I had a biopsy done and this is the result. Anyone please let me know what ro expect and do before hand and any suggestions are embraced. ❤

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@esikora

Cancer maay not be a dedth sentence, but it is a life sentence.
Everything is different AD (after diagnosis) than it was BC (before cancer). I was diagnosed with EC a year ago, and the anxiety is relentless.

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@esikora. This is so true. Life is completely different before and after diagnosis.

Did you have anxiety before the diagnosis of endometrial cancer? What do you do to take care of yourself?

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@valentinaz

I really feel for you, and I feel this comment. I'm so sorry you're back at work; that's a hard place to allow yourself to feel what you have to feel. With my diagnosis, I felt very much as you do: glad that surgery and chemo were available to me, but also: DAMN! I'm afraid that this is it! How can it be when I'm only 58 years old? (The older we get, the younger we think every age is, right?) I hate cliches, but it is true, my friend: tomorrow is another day. I tried to remember that when I was feeling so miserable. I wish you the best: hang in there, and know that there's a whole bunch of us rooting for you!

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@valentinaz I'm laughing at your comment on the older we get the younger we think every other age is. They're all kids to me now. And then I think to myself, when did it happen that I got this old (I'm 70). It seems like just yesterday I was 45 years old.

Good advice too. On the days when I don't feel so good (today is one of those days) I remind myself that I've had plenty of good days in the past and I'm likely to have good days in the future. If not tomorrow then maybe another day?

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@naturegirl5

@cmb2022 While your friend was likely trying to be helpful I can see how you don't feel blessed when you look at your life right now. If one more person told me "I'm sorry" I thought I was going to scream. It's only been a month and you are adjusting to such big changes in your life.

I know what you mean about feeling others have it much worse. When I read on Connect what others have been through or are going through I often feel guilty. What do I have to complain about? But it's not a contest of who has the worst diagnosis or treatment regimen. You have yours and I have mine. We just have to do what we do. So do they.

Did you make appointment yet for that massage?

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@naturegirl5

Yes, I know and she probably didn't mean it the way I took it. It just felt like a stab at the time.

Right now I would prefer to not even have visitors or calls and that is sad on my part. It is just exhausting .

No, I haven't made that appointment because we are to get some snow this weekend and I think I will just stay home and get some rest. I will soon though.
Thank you and I am sorry I am so self absorbed. I promise I don't mean to be. I am normally strong and encouraging and hopeful.

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@cmb2022

@naturegirl5

Yes, I know and she probably didn't mean it the way I took it. It just felt like a stab at the time.

Right now I would prefer to not even have visitors or calls and that is sad on my part. It is just exhausting .

No, I haven't made that appointment because we are to get some snow this weekend and I think I will just stay home and get some rest. I will soon though.
Thank you and I am sorry I am so self absorbed. I promise I don't mean to be. I am normally strong and encouraging and hopeful.

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@cmb2022 When I don't feel like talking I don't answer my phone. I'm in the boonies so no one just comes by to visit. If they did I guess I'd feel obligated to answer the door (instead of hiding which would be my inclination). All this to say you're back at work and you're tired when you get home. You feel sad. You're allowed to feel sad right now. You're allowed to be self-absorbed too. Maybe you just need this time for yourself. And when you feel up to it you can get back to seeing people again.

I just talked with a friend today who is going through a tough time. Divorce, not cancer. She said that when tells people how stressed and out of control she feels they respond with something like "but you're so strong". When you go through something difficult like you are now that strength can waver, right? I believe that having strength means we don't avoid the difficult stuff. We feel fear, anxiety, sadness and we do it anyway. Is that you?

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@naturegirl5

@cmb2022 When I don't feel like talking I don't answer my phone. I'm in the boonies so no one just comes by to visit. If they did I guess I'd feel obligated to answer the door (instead of hiding which would be my inclination). All this to say you're back at work and you're tired when you get home. You feel sad. You're allowed to feel sad right now. You're allowed to be self-absorbed too. Maybe you just need this time for yourself. And when you feel up to it you can get back to seeing people again.

I just talked with a friend today who is going through a tough time. Divorce, not cancer. She said that when tells people how stressed and out of control she feels they respond with something like "but you're so strong". When you go through something difficult like you are now that strength can waver, right? I believe that having strength means we don't avoid the difficult stuff. We feel fear, anxiety, sadness and we do it anyway. Is that you?

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@naturegirl5
Yes, unfortunately that is me. I actually prefer to be alone now (and truthfully most of the rest of the time). I don't like company, but have it more times than not. The evening that I came home from surgery I had a house full. I was astounded that so many would drop in the same day I had surgery and stayed until after 10 pm. I think they meant well, but it wasn't what I needed or wanted.
I am fearful as I don't like not being in control and right now I cry at times and I have no idea why. I don't sleep well and have hot flashes and irritability and well I could go on ,but you know what I mean.. So, yes that indeed is me.....

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In reply to @rose53 "My photo." + (show)
@rose53

Rose, that's a lovely picture of you. Will you add it to your profile?

Here's how:
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- Click your profile picture in the top right and select Profile & Settings.
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@cmb2022 @naturegirl5 @esikora @valentinaz @rose53, you've touched on a few topics that are being discussed elsewhere that I think you might have valuable contributions to make.

Regarding cancer being a life sentence and preparing for life after cancer, see this discussion:
- Life After Cancer: Do you feel prepared for it? https://connect.mayoclinic.org/discussion/life-after-cancer/

Regarding things people say and helping people know what to say, see this one:
- Best response for bad news? https://connect.mayoclinic.org/discussion/best-response-for-bad-news/

Don't you love how this discussion keeps widening with more people joining in? Give be a minute, I'll go get the extra leaf insert to make the table bigger and put on the kettle for more tea. 🙂

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@naturegirl5

@valentinaz I'm laughing at your comment on the older we get the younger we think every other age is. They're all kids to me now. And then I think to myself, when did it happen that I got this old (I'm 70). It seems like just yesterday I was 45 years old.

Good advice too. On the days when I don't feel so good (today is one of those days) I remind myself that I've had plenty of good days in the past and I'm likely to have good days in the future. If not tomorrow then maybe another day?

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I'm always shocked when I review how old I am! What?! 🙂 I hope today will be one of those days that you're feeling better. Our culture seems less and less tolerant of anything less than toxic positivity sometimes, doesn't it? It's okay to feel bad, or however we feel, because feelings come and go like waves. I know that once I allow myself to have a good cry, or a good rage, the storm of it passes, and somehow, magically, it's not so bad for the moment.

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@cmb2022

@valentinaz
Thank you so much for your kind words. Thank you for telling me that we all have bad days or are upset about our diagnosis. I felt like I was wrong for feeling like I do. I have a close friend that is great to talk to, but feel comfortable sharing here with everyone too. Thank you for the comfort wishes too! They mean so much at a time that I am extremely unsure of so many things. ❤

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I'm so glad you have a close friend who is good to talk with. I remain humbled by my friends who were so supportive during and after my surgery, and especially during my chemotherapy (yikes, that was a nightmare!). And I'm glad you're considering that you're not "wrong" for feeling (or not) a certain way. All of our feelings are valid; it's our behavior that needs moderating. I constantly remind myself of this! Uncertainty is a part of all of our lives, but those of us who've experienced a health crisis have had to face that uncertainty head-on. Most of the time, and certainly before my diagnosis, I could avoid looking at uncertainty. Now, I have to practice getting used to it. Hope today is a better day for you!

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@cmb2022

@valentinaz
Thank you so much for your kind words. Thank you for telling me that we all have bad days or are upset about our diagnosis. I felt like I was wrong for feeling like I do. I have a close friend that is great to talk to, but feel comfortable sharing here with everyone too. Thank you for the comfort wishes too! They mean so much at a time that I am extremely unsure of so many things. ❤

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@cmb2022 @valentinaz @rose53 @esikora
This is wonderful. You all have kind words and support for one another. That's why I love Mayo Clinic Connect. We've been through it and can provide for support for another.

@cmb2022. While I sometimes don't like how I feel or I'm having a hard time I have learned to tell myself that there is no "wrong" when it comes to how I feel about how cancer has affected me. Most of the time I don't know what I want when someone asks how they can help. Just the fact that they asked and are willing to help is often what I need in that moment.

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