That's a very long and comprehensive description of what you have been dealing with.
After reading about actinomycosis briefly, I can see that it is very rare, the estimate is that it affects around 1000 people in the US. I am not surprised doctors are unfamiliar with it. What I still don't understand is how you concluded that is your infection, as many other organisms can cause osreomyelitis, and the bone biopsy didn't identify typical actinomycosis factors.
I suggest that your best option is to find a large multi-disciplinary medical center where they can evaluate you.