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actinomycosis

Infectious Diseases | Last Active: Jun 13, 2023 | Replies (21)

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@sueinmn

Welcome to Mayo Connect, a place for people to share their experiences regarding their health with others in similar situations. We are not medical practitioners, and cannot offer diagnosis, only support

Over 20 years is a long time to have an infection, you must have seen a lot of doctors and had a lot of tests during that time. It must be very frustrating to never get an answer. Have you been ill this entire time?

What led you to believe you have actinomycosis, which is very rare? Has it ever been suggested by one of your providers, or have you had tissue cultured to test for it?
Sue

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Replies to "Welcome to Mayo Connect, a place for people to share their experiences regarding their health with..."

Actually about 6 years ago I went to ER to your facility in Phoenix for some of the symptoms.
I have forgotten what they were then as the disease has progressed it has affected different parts
of the body. I have notes I have written through the years of how I was feeling at different times.
Is there a number I can call to get a copy of my records?
Thank You,
Bart