A new look at hope and a way of living life

Posted by Merry, Volunteer Mentor @merpreb, Dec 30, 2018

I think that this is partially been the way I have been living my life without realizing it. I say partially because I do plan some things, and I plan to make more plans.
https://www.nytimes.com/2018/12/28/opinion/sunday/resolutions-hope-cancer-god.html?action=click&module=Opinion&pgtype=Homepage

@merpreb In 1988 I was diagnosed with systemic lupus. The Dr's told me to quit or cut down on full time work. I put UV blocking tint on my car and soldiered on, refusing to let a disease become my identity. In the 30+ years since then, I have had 3 more serious issues diagnosed, and retired from full time work Oct. 2015, due to declining kidney function. Yes, there are days my energy level allows me out of bed and that's about it. And other days where I go for 18 hrs without a break. I plan, but am flexible. My life was never mapped out. But since 1988, the plan is to do what I want for as long as possible, never conceding without a fight. We simply cannot get out of this life alive. We each have an expiration date, unknown to us mere mortals; I won't mess with that date, but will make my presence known as much as I am able.
Ginger

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@gingerw

@merpreb In 1988 I was diagnosed with systemic lupus. The Dr's told me to quit or cut down on full time work. I put UV blocking tint on my car and soldiered on, refusing to let a disease become my identity. In the 30+ years since then, I have had 3 more serious issues diagnosed, and retired from full time work Oct. 2015, due to declining kidney function. Yes, there are days my energy level allows me out of bed and that's about it. And other days where I go for 18 hrs without a break. I plan, but am flexible. My life was never mapped out. But since 1988, the plan is to do what I want for as long as possible, never conceding without a fight. We simply cannot get out of this life alive. We each have an expiration date, unknown to us mere mortals; I won't mess with that date, but will make my presence known as much as I am able.
Ginger

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Amen! I would love to be as strong as you

REPLY
@gingerw

@merpreb In 1988 I was diagnosed with systemic lupus. The Dr's told me to quit or cut down on full time work. I put UV blocking tint on my car and soldiered on, refusing to let a disease become my identity. In the 30+ years since then, I have had 3 more serious issues diagnosed, and retired from full time work Oct. 2015, due to declining kidney function. Yes, there are days my energy level allows me out of bed and that's about it. And other days where I go for 18 hrs without a break. I plan, but am flexible. My life was never mapped out. But since 1988, the plan is to do what I want for as long as possible, never conceding without a fight. We simply cannot get out of this life alive. We each have an expiration date, unknown to us mere mortals; I won't mess with that date, but will make my presence known as much as I am able.
Ginger

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Ginger. I am very familiar with systemic lupus. For many years I had discoid
.we have to be stubborn and unrelenting in our fight to survive! Hear hear!

REPLY
@gingerw

@merpreb In 1988 I was diagnosed with systemic lupus. The Dr's told me to quit or cut down on full time work. I put UV blocking tint on my car and soldiered on, refusing to let a disease become my identity. In the 30+ years since then, I have had 3 more serious issues diagnosed, and retired from full time work Oct. 2015, due to declining kidney function. Yes, there are days my energy level allows me out of bed and that's about it. And other days where I go for 18 hrs without a break. I plan, but am flexible. My life was never mapped out. But since 1988, the plan is to do what I want for as long as possible, never conceding without a fight. We simply cannot get out of this life alive. We each have an expiration date, unknown to us mere mortals; I won't mess with that date, but will make my presence known as much as I am able.
Ginger

Jump to this post

@gingerw good 👍 for you ,Don't give in to these diseases or you,ll never get out of bed Its a struggle at times but you have the right attitude 👍

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@csimpson55

Amen! I would love to be as strong as you

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@csimpson55 You can just tell yourself this and dont listen to the negative part its a struggle but possible its hard but once you say Im not letting this ? win Go for it wishing you the best. Be 💪

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