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A Little Nervous Posting after my recent experience

Posted by kartwk @kartwk, Jul 22, 2025

but grrr.
Here I had it all set for a Dr. apt. for H tomorrow. Had sent all my concerns to Doc. in advance, felt upbeat about maybe, just maybe making some progress.

THEN, H goes and cancels the apt.!!! The apt. was orignally about his never ceasing lung problems etc. Though he has been hacking and honking things up as usual, we go through this all the time, it obviously isn't that bad if he cancelled the apt.

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jeanadair123 | @jeanadair123 | Aug 5, 2025
In reply to @kartwk "The poem is beautiful and worth keeping in mind, even posted on wall. But how many..." + (show)
Profile picture for kartwk @kartwk

The poem is beautiful and worth keeping in mind, even posted on wall.
But how many times have we gone through something like this and felt upset at the words, actions? How many of us have retreated to rooms to cry after such episodes? We understand it is a disease, but we are human too and as we have love and emotional attachment to the person, their words can hurt deep.

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I put my head on my husband in bed and the quiet tears just roll down my face. So hard to lose him a day at a time. We are at the stage of forgetting names etc. I have to try and understand what he means or is asking for. The other day he put soap from the sink in his coffee to cool it down instead of water thank goodness he only took a sip and I was there. On top of it he was just diagnosed with recurrence of his prostrate cancer. I told his dr not to tell him I just keep saying it’s a preventive measure as you get older so far he is ok with it, 14 days of pills 1 shot 14 days of pills and then no shot for 3 months. I have only told my best friend, I can’t tell my sister because when I say it’s a secret and she tells someone she just says sorry I forgot. It drives me crazy. But today is a good day.

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wmc | @wmc | Aug 5, 2025
In reply to @terrilynne "A poem shared by a member of my Alzheimer's caregivers support group. Alzheimers poem Do not..." + (show)
Profile picture for terrilynne @terrilynne

A poem shared by a member of my Alzheimer's caregivers support group.

Alzheimers poem

Do not ask me to remember,
Don't try to make me understand,
Let me rest and know you're with me,
Kiss my cheek and hold my hand.

I'm confused beyond your concept,
I am sad and sick and lost,
All I know is that I need you,
To be with me at all cost.

Do not lose your patience with me,
Do not scold or curse or cry,
I can't help the way I'm acting,
Can't be different though I try.

Just remember that I need you,
That the best of me is gone,
Please don't fail to stand beside me,
Love me 'till my life is done.

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I read this every morning when I get up and every night before I go to bed,,, it has helped me a lot. I am kinder, more patient and appreciative of the time we still have together. I’ve accepted what it is and determined to keep us together for as long as possible. I have learned so much by following this forum, my heart is filled with gratitude for all the advice you all have shared. It’s so good to know that we’re not alone that there are others out there having the same issues as we help our loved ones deal with Dementia. God bless you all.

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Cheryl D | @nmrcdigman | Aug 6, 2025
In reply to @terrilynne "A poem shared by a member of my Alzheimer's caregivers support group. Alzheimers poem Do not..." + (show)
Profile picture for terrilynne @terrilynne

A poem shared by a member of my Alzheimer's caregivers support group.

Alzheimers poem

Do not ask me to remember,
Don't try to make me understand,
Let me rest and know you're with me,
Kiss my cheek and hold my hand.

I'm confused beyond your concept,
I am sad and sick and lost,
All I know is that I need you,
To be with me at all cost.

Do not lose your patience with me,
Do not scold or curse or cry,
I can't help the way I'm acting,
Can't be different though I try.

Just remember that I need you,
That the best of me is gone,
Please don't fail to stand beside me,
Love me 'till my life is done.

Jump to this post

There should be an emoji for weeping when you read this.

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