A Little Nervous Posting after my recent experience

Posted by kartwk @kartwk, Jul 22, 2025

but grrr.
Here I had it all set for a Dr. apt. for H tomorrow. Had sent all my concerns to Doc. in advance, felt upbeat about maybe, just maybe making some progress.

THEN, H goes and cancels the apt.!!! The apt. was orignally about his never ceasing lung problems etc. Though he has been hacking and honking things up as usual, we go through this all the time, it obviously isn't that bad if he cancelled the apt.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Today my brother-in-law bought us a new Subaru, for which I'm exceedingly grateful. My husband still doesn't understand why he can't drive and he does ask the same questions and tell the same stories over and over. Thankfully, he isn't combative. I know you're right about "lying," and I stretched the truth a bit today, but all's well. Thanks for the good advice.

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I am so glad to hear from all of you. It is comforting to know that I am not alone.
I need that diagnosis so that I can be eligible for the programs available. Generally, H is always at the doctor for something, I mean we were averaging probably one visit a week earlier this year. Now, that I am prepared, he doesn't seem to be inclined to go even though his issues have not changed. Grrr.

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Profile picture for aliwood @aliwood

I have been trying to get my husband's hearing checked for over a year. Finally got him to go. Turns out he doesn't have a hearing issue. My guess is that he just doesn't process what is being said, whether that is me, TV, or others. That was mind-blowing. All this time I thought it could be fixed. Now I am trying to deal with that. He doesn't process but wants me to explain what is being said. There is no explaining. He just can't process. But he just won't let it go. I usually end up exasperated and just leave the room. I don't think that is a good way to deal with it. Any suggestions? Trying to distract or change the subject doesn't seem to work.

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Aliwood - You hit the nail on the head there. I speak to him and he doesn't understand, so I either say the same ting louder to be told I am yelling at him, but he still has no clue as to what I am talking about.
The confusing thing is that at other times he has no problem. He does get things confused. The other day he told me that it was on the news that Iran was going to attack Russia. He couldn't get it straight that it was Ukraine and Russia not Iran.
He does that type of thing a lot.

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Profile picture for aliwood @aliwood

I have been trying to get my husband's hearing checked for over a year. Finally got him to go. Turns out he doesn't have a hearing issue. My guess is that he just doesn't process what is being said, whether that is me, TV, or others. That was mind-blowing. All this time I thought it could be fixed. Now I am trying to deal with that. He doesn't process but wants me to explain what is being said. There is no explaining. He just can't process. But he just won't let it go. I usually end up exasperated and just leave the room. I don't think that is a good way to deal with it. Any suggestions? Trying to distract or change the subject doesn't seem to work.

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I assume you have checked his ears for earwax. My husband has alot of earwax and when it gets on the eardrums it is like his ability to process info declines tremendously. Ear doctor said it is like he is wearing earplugs. Once earwax is cleared i see an improvement in his processing. He does have cognitive decline and chronic uti's so i have my antenna watching for several issues that may be ocurring. Interesting but ear doctor told me that weekly drops of mineral or olive oil can help prevent earwax buildup.

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Profile picture for kartwk @kartwk

Aliwood - You hit the nail on the head there. I speak to him and he doesn't understand, so I either say the same ting louder to be told I am yelling at him, but he still has no clue as to what I am talking about.
The confusing thing is that at other times he has no problem. He does get things confused. The other day he told me that it was on the news that Iran was going to attack Russia. He couldn't get it straight that it was Ukraine and Russia not Iran.
He does that type of thing a lot.

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I wonder if your communication was in print, and he read your words, if that would make a difference?
Since this affects different parts of the brain, the speech to comprehension may have taken a hit, but perhaps reading for comprehension will be better?
All the best. 🫂

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My husband has Alzheimer's so I relate to many of these comments. For a long time, I thought my husband was having hearing issues but I realized his problem is brain damage. He just does not understand much of what I say so he constantly says What?, What?, What?... It's difficult for him too because he is trying so hard to understand what is being said.

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A poem shared by a member of my Alzheimer's caregivers support group.

Alzheimers poem

Do not ask me to remember,
Don't try to make me understand,
Let me rest and know you're with me,
Kiss my cheek and hold my hand.

I'm confused beyond your concept,
I am sad and sick and lost,
All I know is that I need you,
To be with me at all cost.

Do not lose your patience with me,
Do not scold or curse or cry,
I can't help the way I'm acting,
Can't be different though I try.

Just remember that I need you,
That the best of me is gone,
Please don't fail to stand beside me,
Love me 'till my life is done.

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Profile picture for terrilynne @terrilynne

A poem shared by a member of my Alzheimer's caregivers support group.

Alzheimers poem

Do not ask me to remember,
Don't try to make me understand,
Let me rest and know you're with me,
Kiss my cheek and hold my hand.

I'm confused beyond your concept,
I am sad and sick and lost,
All I know is that I need you,
To be with me at all cost.

Do not lose your patience with me,
Do not scold or curse or cry,
I can't help the way I'm acting,
Can't be different though I try.

Just remember that I need you,
That the best of me is gone,
Please don't fail to stand beside me,
Love me 'till my life is done.

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Thank you for sharing this beautiful poem.

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The poem is beautiful and worth keeping in mind, even posted on wall.
But how many times have we gone through something like this and felt upset at the words, actions? How many of us have retreated to rooms to cry after such episodes? We understand it is a disease, but we are human too and as we have love and emotional attachment to the person, their words can hurt deep.

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Profile picture for terrilynne @terrilynne

A poem shared by a member of my Alzheimer's caregivers support group.

Alzheimers poem

Do not ask me to remember,
Don't try to make me understand,
Let me rest and know you're with me,
Kiss my cheek and hold my hand.

I'm confused beyond your concept,
I am sad and sick and lost,
All I know is that I need you,
To be with me at all cost.

Do not lose your patience with me,
Do not scold or curse or cry,
I can't help the way I'm acting,
Can't be different though I try.

Just remember that I need you,
That the best of me is gone,
Please don't fail to stand beside me,
Love me 'till my life is done.

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Lovely and true. As I sit here crying now. But glad for reminder of how he feels.

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