5 yrs post covid. Is there any help out there

Thank you
Medical insurance is another big thing. It doesn't cover covid long haulers at all. I just turned 65 so I remember HIV. I know someday they might have a cure but I don't have 30 years to wait. I should be retired and happy and traveling now. I can't be happy or travel feeling this awful. Anyways thanks for your reply. Best of luck to all of us. Just like my last worthless doctor said, YOU PEOPLE ARE JUST GOING TO HAVE TO WAIT 4 OR 5 YEARS. I think she meant 20 to 30 years

Thanks
I live in a large town 900,000 and I called yesterday to see first visit new patient a Cardiologist. They said first appointment is early June. I live in Florida and now all the hospital and doctors are crazy busy. During season it is so hard to get into anyone. I have called 2 other doctors I see. Maybe 1 of them can get me in faster. Too many patients and Not Enough doctors anymore. Just crazy

@beebee000

Hi
I have tried so many things even Nicotine. Many so many vitamins. What I really want is a doctor to listen and Try to help me. I want to get my pulse rate up to at least 60 plus resting. I would like to have more blood testing another 14 panel long covid test. Also get my vagus nerve checked. I know there is No cure with this evil virus but I need some relief. I have listened to so many people. So many new treatments. They actually have one now that takes tour blood out, filters it and runs oxygen into it and then back into you. So many new things out there. What is right? I have had to do all testing on my own. Out of my pocket since our government won't do anything about the Millions of us suffering. No insurance coverage. Hell if I had a drug or alcohol addiction that would be covered. Cancer covered, heart disease covered. Long covid. NOT COVERED. I will keep looking for help since doctors just don't care. Good luck to the milluons of us.

@kevtan Do you stay hydrated?

@kevtan It is ridiculous, the wait times and also the insurance factor. I am not paying $192 a month. I thought I was not going to have insurance but with the tax subsidies, that is the price. It would have been over a grand. I was paying $35 a month last year. I am grateful to have the insurance. There is an actual ICD-10 code for Long COVID but whether or not the insurance pays for it is a different matter. A diagnosis can help on the one hand because Long COVID is recognized as a disability yet it can hurt on the other hand due the insurance costs. The health care system in this country is broken.

On another note, I am jealous you live in Florida. I know not all of Florida is near the ocean, but my goal is to one day live near the ocean. That is my peaceful place.

@kevtan
Hi, It sounds like you have had it pretty rough
Why do you have to pay for your own tests? Do you have insurance? Where are you in the country? Most testing should be covered by most insurance plans if a doctor orders them.
I hear you that it is hard to find doctors to listen, you may have to go thru several, but don't stop trying. It is a bit of a living hell and draining in so many ways. I recently connected with a naturopathic doctor here in the northeast, he is very knowledgeable about LC and mast cell activation, histamine and food sensitivities and looks at all your labwork and medical records as well. Im encouraged but we’ll have to see if there’s any relief. It’s strange that in the beginning I thought I’d be over it like a flu and back to normal and now for me three years later, I’d be happy if could stave off any more damage. My immune system was heavily disrupted and diagnosed with Sjogren’s disease and likely another autoimmune disease not found yet, though many symptoms. I also have microvascular and endothelial dysfunction damaging the lining of blood vessels and causing edema to occur, there are virtually no doctors locally that treat it, and I ended up having to find a resource on my own
I just wish I had found other resources sooner as western medicine is really leaves you hanging. And you’re right in terms of governmental things, there is no support even with resources of who to reach out to never mind financial and it is quite a financial burden
It almost seems like you have to be so sick and in ICU on a ventilator as in the early pandemic to get care. It’s very sad to watch your own body being ravaged and not have consistent resources for care or anyone leading the way
After all the extreme things that we had to do during the pandemic and now can’t get anybody to budge to help now
Keep looking for answers and don’t stop
And rest when you can to help cellular healing

@kevtan I live in Florida too, and you’re right about the wait to see specialists down here. It’s incredibly concerning.

I don’t know if Long Covid clinics exist here, but I hope you find one and that you get the help and relief you deserve.

@beachesanddreams

I live on the left central coast of Florida in a little town of Sebastian. Last year after a year of LC, I contacted the University of Florida Intergrative Medicine Clinic. They have a Covid Clinic. I live 4 hours from there so I opted for a Teladoc visit. I believe they stopped those kind of visits. There is a Covid Clinic in Melbourne, Florida.
I am going to separate doctors for different things. Currently, GI.
Like you, I have found that Florida doesn’t have many clinics that specialize in Covid treatment. I pray that you will find one.

@kevtan
Hi, It sounds like you have had it pretty rough
Why do you have to pay for your own tests? Do you have insurance? Where are you in the country? Most testing should be covered by most insurance plans if a doctor orders them.
I hear you that it is hard to find doctors to listen, you may have to go thru several, but don't stop trying. It is a bit of a living hell and draining in so many ways. I recently connected with a naturopathic doctor here in the northeast, he is very knowledgeable about LC and mast cell activation, histamine and food sensitivities and looks at all your labwork and medical records as well. Im encouraged but we’ll have to see if there’s any relief. It’s strange that in the beginning I thought I’d be over it like a flu and back to normal and now for me three years later, I’d be happy if could stave off any more damage. My immune system was heavily disrupted and diagnosed with Sjogren’s disease and likely another autoimmune disease not found yet, though many symptoms. I also have microvascular and endothelial dysfunction damaging the lining of blood vessels and causing edema to occur, there are virtually no doctors locally that treat it, and I ended up having to find a resource on my own
I just wish I had found other resources sooner as western medicine is really leaves you hanging. And you’re right in terms of governmental things, there is no support even with resources of who to reach out to never mind financial and it is quite a financial burden
It almost seems like you have to be so sick and in ICU on a ventilator as in the early pandemic to get care. It’s very sad to watch your own body being ravaged and not have consistent resources for care or anyone leading the way
After all the extreme things that we had to do during the pandemic and now can’t get anybody to budge to help now
Keep looking for answers and don’t stop
And rest when you can to help cellular healing