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5 yrs post covid. Is there any help out there

Posted by kevtan @kevtan, 2 days ago

I can't take those any longer. I have been suffering with Long Covid for over 5 yrs. The biggest problem I have is finding doctors that understand this issue. Ringing in my ears and loss of hearing in left ear. Brain fog still. No short term memory. Depression sleep issues. Nightmares. Pulse rate between 38 to 45. Headaches. Rashes come and go. Wake up with blue feet. Hands and feet fall asleep in bed. Vision issues. No Libido since covid, none. Neck pain on left side of face. Fatigue. Try to get a good night's sleep but never works. Every 2 hrs up. Please Please my main thing is I would love to see a doctor that will listen and might run some test on me. This has to happen soon. Please help, any help.
Thanks
Kevin in FL

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kevtan | @kevtan | 1 day ago

I have tried. I live in Fort Myers about 900,000 live here. But now for the next 3 months probably 1,200,000. Tourist. I called my local referral for Cardiologist and the woman said new patients starting in mid June. I have a call into 2 doctors family and Neurologist. Maybe they can get me in faster. My pulse right after and during 2020 was around 27 to 33 Now its always in low 40s. Thanks for your reply. Good luck to all of us.

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drbf | @drbf | 1 day ago
In reply to @kevtan "I have tried. I live in Fort Myers about 900,000 live here. But now for the..." + (show)
Profile picture for kevtan @kevtan

I have tried. I live in Fort Myers about 900,000 live here. But now for the next 3 months probably 1,200,000. Tourist. I called my local referral for Cardiologist and the woman said new patients starting in mid June. I have a call into 2 doctors family and Neurologist. Maybe they can get me in faster. My pulse right after and during 2020 was around 27 to 33 Now its always in low 40s. Thanks for your reply. Good luck to all of us.

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@kevtan

I'd get back with my doctor and tell them that the cardiologist said they couldn't get you in until June. You need to be fast-tracked because "XYZ." You could also see if you were health system has a patient advocate to make this happen sooner.

You could also call the cardiologist's office back and tell them why you're being referred. If the person on the phone doesn't get it, ask for a supervisor.

It's like this everywhere. I have to advocate for myself like you would not believe. It's just ridiculous. And it's even harder when you feel terrible.

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beebee000 | @beebee000 | 23 hours ago
In reply to @h2998sc "SO SORRY you're goin through this.Key Word...going through.I've had long covid since 2020.Serious enough have to..." + (show)
Profile picture for h2998sc @h2998sc

SO SORRY you're goin through this.Key Word...going through.I've had long covid since 2020.Serious enough have to take weeks off at a time from work.Hope running out(it felt like).Then I said I'm 72...I will deal with this.Found an urgent care dr who said 'You WILL feel better after this..."
took the week long pills regime.He was right I did feel like I'd just come out of a dream.Unfortunately it didn't last.That was like 3 years ago.Been doing supplements and such the rest of the time now...mine is 'almost' non-existent most of the time.Just don't have the mental clarity back all the way yet,but i trust I will....God richly bless you.Don't give up...you got to here.

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@h2998sc what supplements are you taking, I caught COVID Dec. 14, 2019 flying to Montana and am not getting better, I have 51 symptoms ..my doctor just put in a referral to Mayo Clinic in Mn ..talked to them a few days ago and now am waiting for the appointment schedule ..it is an 8 hr drive for me on clear dry roads, I took have tried about everything , I feel worse but not giving up...I thought i'd be over this a long time ago, this virus is evil.....

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kevtan | @kevtan | 22 hours ago

@beebee000

Hi
I have tried so many things even Nicotine. Many so many vitamins. What I really want is a doctor to listen and Try to help me. I want to get my pulse rate up to at least 60 plus resting. I would like to have more blood testing another 14 panel long covid test. Also get my vagus nerve checked. I know there is No cure with this evil virus but I need some relief. I have listened to so many people. So many new treatments. They actually have one now that takes tour blood out, filters it and runs oxygen into it and then back into you. So many new things out there. What is right? I have had to do all testing on my own. Out of my pocket since our government won't do anything about the Millions of us suffering. No insurance coverage. Hell if I had a drug or alcohol addiction that would be covered. Cancer covered, heart disease covered. Long covid. NOT COVERED. I will keep looking for help since doctors just don't care. Good luck to the milluons of us.

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1 reply
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drbf | @drbf | 17 hours ago
In reply to @kevtan "@beebee000 Hi I have tried so many things even Nicotine. Many so many vitamins. What I..." + (show)
Profile picture for kevtan @kevtan

@beebee000

Hi
I have tried so many things even Nicotine. Many so many vitamins. What I really want is a doctor to listen and Try to help me. I want to get my pulse rate up to at least 60 plus resting. I would like to have more blood testing another 14 panel long covid test. Also get my vagus nerve checked. I know there is No cure with this evil virus but I need some relief. I have listened to so many people. So many new treatments. They actually have one now that takes tour blood out, filters it and runs oxygen into it and then back into you. So many new things out there. What is right? I have had to do all testing on my own. Out of my pocket since our government won't do anything about the Millions of us suffering. No insurance coverage. Hell if I had a drug or alcohol addiction that would be covered. Cancer covered, heart disease covered. Long covid. NOT COVERED. I will keep looking for help since doctors just don't care. Good luck to the milluons of us.

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@kevtan

Are you on Medicare?

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1 reply
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lukekee (Vivian) | @lukekee | 17 hours ago
In reply to @h2998sc "SO SORRY you're goin through this.Key Word...going through.I've had long covid since 2020.Serious enough have to..." + (show)
Profile picture for h2998sc @h2998sc

SO SORRY you're goin through this.Key Word...going through.I've had long covid since 2020.Serious enough have to take weeks off at a time from work.Hope running out(it felt like).Then I said I'm 72...I will deal with this.Found an urgent care dr who said 'You WILL feel better after this..."
took the week long pills regime.He was right I did feel like I'd just come out of a dream.Unfortunately it didn't last.That was like 3 years ago.Been doing supplements and such the rest of the time now...mine is 'almost' non-existent most of the time.Just don't have the mental clarity back all the way yet,but i trust I will....God richly bless you.Don't give up...you got to here.

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@h2998sc
Would you mind sharing what supplements you take and what they have helped?
I’ve been going g through this since I had COVID September 2021.
I honestly don’t think I’ll ever be better at this point but would really like to know if there are supplements that might help me.
Thank you.

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kevtan | @kevtan | 16 hours ago
In reply to @drbf "@kevtan Are you on Medicare?" + (show)
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@kevtan

Are you on Medicare?

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@drbf
Yes finally. 65 on Dec 16th 2025

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beachesanddreams | @beachesanddreams | 13 hours ago
In reply to @kevtan "Thanks I live in a large town 900,000 and I called yesterday to see first visit..." + (show)
Profile picture for kevtan @kevtan

Thanks
I live in a large town 900,000 and I called yesterday to see first visit new patient a Cardiologist. They said first appointment is early June. I live in Florida and now all the hospital and doctors are crazy busy. During season it is so hard to get into anyone. I have called 2 other doctors I see. Maybe 1 of them can get me in faster. Too many patients and Not Enough doctors anymore. Just crazy

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@kevtan I live in Florida too, and you’re right about the wait to see specialists down here. It’s incredibly concerning.

I don’t know if Long Covid clinics exist here, but I hope you find one and that you get the help and relief you deserve.

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