It seems there is very little you can eat that is healthy for the Kidneys. The web site Davida has plenty of food on it but contradicts what other sources say. Anyone know anything for breakfast, lunch and dinner that does not have any sugar or flour bodies the obvious boring or bland foods good for Kidneys and I’m allergic to sugar of any kind of sweetener and flour. Thank you.
Hi stage 3B (what does that mean??)– Don't get paranoid about food-EAT LESS. Just keep your eye of the blood and urine tests and if you don't know how to read them, learn !!! And "love your Neurologist". Mine emails me and answers my every question. Talk in his terms. Know your eGFR and Creatinine !
I send your Neurologist an email "update" every 2 weeks with bloods, urine and current meds. AND A BIG THANK YOUR FOR YOUR CARE. American in Australia
Hi again you guys –Georgia in Australia –IT'S THE MIDDLE OF THE NIGHT here–Fingers not working on the computer –Meant to say NEPHROLOGIST. YOU KNOW — THE KIDNEY GUY !!! Learn to read the blood and urine tests. ! Do your own Sieman's 10 dipstick urine test at home in the bathroom. (Cost $60 from the drug store – 6 month supply) It tells you 10 things about your kidneys right there in your own bathroom. You can do it every day if you are a "worry wart". Ask question, and when they don't like it –ask some more !!!!
My friends tell me "I am taking this and that and I feel like this and that ". I say , "What does your blood test tell you?"
WHAT !!! I don't know how to read that. You guys buy a new car and then say I won't bother to learn how to drive it ? You are not really interested if you can't do that one.
Georgia in Australia.
@veteran1950 First, thank you for your service. Which branch of the military were you in? Now, welcome to Mayo Connect. We are glad you found us, how did you happen across our forums here?
I also am a kidney patient, also Stage 3b, with eGFR around 32, due to a very rare kidney disease. I was diagnosed formally in early 2015, and had that confirmed last October when a second kidney biopsy was done during a cancer diagnosis.
Your breakfast and lunch menu sounds eerily a lot like mine! I also add a bit of protein into my salad, to help keep my energy up during the day. Diet is a very important part of managing kidney disease, along with exercise, and general lifestyle. I have managed to only lose 7 points in eGFR since late 2015, due to watching out with diet, and lifestyle. Typically when someone hits around 20 eGFR there is discussion about dialysis, and I hope to not get to that point.
How can we help you, today?
Ginger
Liked by Rosemary, Volunteer Mentor
USAF, served during Korea "Conflict" as it was called at that time. The VA lab workup discovered ckd in 11/2011, condition has remained fairly stable until earlier this year when eGFR put me in stage 3B. No known cause, no hypertension, no diabetes, leaves me with possibility of genetic connection. Received email from Mayo that got me interested. Did not mention dinner in prior conversation, boring, but does the trick: about 6 oz. of salmon, chicken or turkey with riced cauliflour with veggies. Recently started to use barley with sauteed onions. Too old to be considered for transplant so I exercise daily, walk a bit and try to maintain a good mental outlook
Hi, @australia, I wake up in the middle of the night, too…usually around 3 am. Luckily I can most often go back to sleep after reading or playing computer games for awhile. As for nephrologist,vs neurologist, smiles, some of us, like me, see both…kidney & neuropathy.
A really good website that helped me learn to understand my kidney labs was http://www.kidneyschool.org. It has really helpful learning modules: Module 7 is on Understanding Kidney Lab Values. I've shared the site with many others diagnosed with ckd and maybe it might be one you and others might share with those with kidney disease but who don't know how to read lab results? If they don't choose to learn, that is another matter entirely.
I agree that asking questions and then more questions and doing individual research has been pivotal in my learning to better manage my health conditions.
Liked by Ginger, Volunteer Mentor
Hi, veteran1950, My brother in law also served in the Korean "Conflict" and I have been shaking my head that the U.S. once again finds itself in such tense relations with North Korea…feels like we may have not learned much during these intervening years.
Thank you for your service in the USAF. My hubby was in the Air Force during the Viet Nam war and I am still ashamed of how our country neglected the many who fought in that war and returned home broken by both physical and emotional wounds that never healed.
I am also stage 3 CKD and following my kidney diet is a bit harder now because of more limited grocery choices but it, along with exercise and paying close attention to lab results is key in working to maintain stage 3 for me.
Hi Fiesty 76 — Georgia from Australia. I don't get up at night because of kidneys –that is just waiting for the U.S. stock exchange to open — In old age one has to find an occupation that one can accomplish while lying in a hospital bed – Once I was in pre-op, in the bare feet and backless gown –asked to telephone – and nurse said "I am sure you feel better now that you talked to your mother". "Yes, thank you" -it was my stock broker. !!!
Liked by Rosemary, Volunteer Mentor, jolinda
@australia, That was a great and very funny, and I can imagine, a most surprising response to the nurse. On the other hand, I am adroitly avoiding "all things to do with the stock mkt" whatever is happening to my invested funds by "staying put" They may be getting a bit skinnier, also like me, but time enough in the future for that reckoning. In the meantime, I'm off to sautee more fresh spinach, celery and asparagus for the freezer. Stay well.
@veteran1950 My dad was Navy, my sister was Air Force.
The causes of kidney disease can be varied, and sometimes it helps to know the cause in order to best address it and keep it at bay. My husband's kidney disease was caused by untreated high blood pressure. Other causes can be diabetes complications, lifestyle, or genetic cause as you alluded to. As we age function naturally declines somewhat, also. You certainly sound on the right track, watching your diet, exercising, and keeping a good mental attitude.
I am glad you poked around this forum after getting the email, and have contributed! Looking forward to more insight and tips from you, when you can.
Ginger
Liked by fiesty76
Hi Fiesty 76 –No, I told the nurse "nothing"? Movements must be calculated and secret! Managing your way around the hospital is most important. First hours, you find the kitchen (one on each floor) and the fridge with endless snacks, tea, coffee. Then, the nappy supply, towels — and if the food is not good you find another patient who has a relative who will bring in McDonalds.! Did you know that with your Visa you can order in new PJ's delivered if your stay becomes too long. Hospitals are boring – one must improvise. Georgia from Australia
@australia
Hi Carnes, Yes, eGFR about 34. Well dear, go for the Green Tea in a cup 24/ to sip. And chow down on those salads with Tuna. And if you don't like water well then you are out of luck. Don't eat a lot –that is the key. If you are over weight and focus on eating –big problem. And find a good Neurologist –and treat him like a King. The rest down the line is just plumbing. Georgia in Australia