It seems there is very little you can eat that is healthy for the Kidneys. The web site Davida has plenty of food on it but contradicts what other sources say. Anyone know anything for breakfast, lunch and dinner that does not have any sugar or flour bodies the obvious boring or bland foods good for Kidneys and I’m allergic to sugar of any kind of sweetener and flour. Thank you.
Thank you so much for your kind reply. I am really glad to have found connect, quite by accident, and I feel so much better to be with friends who understand what this is all about. I am very behind with my replies. And I was a bit under the weather the last two days.
Even had the thermometer out taking my temp with Covid-19 beingin the back of my head, but I am feeling better now. Blessings to you.
Thank you for your kind words. I see that I have a lot to learn about CKD and I'm glad to be here and learning from friends so much that I'm taking notes to help as I try to figure this out. My creatinine went to 1.70 with my 3/24 lab. Seeing that you are aware of your trend tells me charting my pertinent numbers will be helpful. I hope you don't mind my asking, how did your kidney damage being caused by oxalates come to light? My cause right now is unknown, my doctor said, but I'm not sure why. But that's definitely a question for him. And because I showed concern at my virtual visit last week, he's having me follow up with lab in a month. So I'll start to track my numbers. Thanks again and blessings to you.
Thanks for your reply. I'm glad to hear that you and your doctor are on the same team. It's so important to have a good working relationship with any doctor. I'm still working on being more comfortable with my doctor and hope that the quality of my relationship with him will grow with each visit and contact. Take care and be safe!
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Hi Ginger, thank you for all the info! I'm learning more from everybody here and value all the information and personal experiences that everyone is sharing. You all have helped so much in my short time here. Blessings to everybody.
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Hi panc, I keep hitting Reply too quickly, cutting this short. I just want to say thanks again because as I read and answer everything, I'm learning so much and writing down questions for the doctor. Take care and be safe!
Hi, Ausie, I'm a Stage 3 CKD patient, diag. last summer. Connect has been a wonderful resource for me in learning more about how to manage this diagnosis.
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@ausie I learned the cause of my kidney damage from the Renal Department tests once I was referred for a kidney transplant. It was among the tests they ran. Whether you were tested for this or what the cause of your kidney disease is would be a question for your medical group. Letting them know that you are talking to other people with Kidney disease may encourage them to be more open with you and more diligent with finding your cause. In my opinion it is difficult to treat a problem without knowing the cause of the problem. Sometimes doctors will not go into details unless they are made aware that you want details and can handle the knowledge. Blessings.
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@ausie FYI, if you are having your labs run at Mayo the trending is shown on the test results. At the top of the page with the result there are three tabs: result, trend and graph (I think) either of the last two choices show your trending in two different ways. My other clinics have the same ability, so I do not have to keep it separately. I can also print the page to keep for reference if I wish. Just a suggestion, keep your records in whatever way is best for you.
@darlingtondoll Wonderful news for you to improve from stage 3 to stage 2! When you say "my paralysis" do you mean your legs don't work? If so, it makes sense to me that you would have gastric issues. I believe my gastric issues are, in part, from autonomic neuropathy. Remember being a young child and wondering why the "old" folks always talked about their stomachs and stool? Now we know! Right!? haha
Hi panc, Thanks for the helpful info! In my current doctor's portal, I just found some graphs, including individual graphs for egfr and creatinine among others! I printed the ones that plot the numbers. The only thing for trend is the slope of the lab results. It is very helpful to keep copies of these and other important papers. Thank you for thinking of me!
Unfortunately, I don't live in a Mayo Clinic area. And I'm in a city that has just 31 nephrologists on Healthgrades but where I moved from, at just one of the major hospitals, there are 110. Can't imagine all not affiliated with that hospital. I'm so thinking about going back to the big city to get care that has a reputation on the level of Mayo but it's hours from here.
Also, I want to share in today's email from Davita is a Today's Kidney Diet – Quick Reference Guide, which has an awesome chart of what to eat in the different stages plus an awesome cookbook, Today's Kidney Diet – Cooking for One or Two. (I'm sorry I'm somewhat tech illiterate and I don't know how to insert into here a link for this because I got to it by the button in Davita's email. It might be at the Kidney Diet Tips blog from Davita).
If anyone here can tell how to, that would be so great and I can try to do put in the a link! I'm just still trying to figure out how to post at connect.mayoclinic. I only know enough to view & reply to Mayo connect emails.
Take care and be safe to all!
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@gingerw
@2011panc I was told that generally, an eGFR trending downwards along with other values changing, means a further decline in kidney function. Curious how our two sources came to those different conclusions!
Ginger