Stage 3 Kidney Disease and Diet: What can I eat?

Posted by carnes @carnes, Jun 11, 2018

It seems there is very little you can eat that is healthy for the Kidneys. The web site Davida has plenty of food on it but contradicts what other sources say. Anyone know anything for breakfast, lunch and dinner that does not have any sugar or flour bodies the obvious boring or bland foods good for Kidneys and I’m allergic to sugar of any kind of sweetener and flour. Thank you.

@kamama94

To my brothers and sisters on this thread: I'm whiny today. GFR dropped from 32 to 28 and the day after the labs I came down with a severe case of shingles – most pain I've ever felt in my life including kidney stones and childbirth! Neph said I needed to take an antiviral even though it could drop GFR even more. Please send positive vibes that this is temporary! TIA.

Jump to this post

@kamama94 Well, dang it! And you have worked so hard! You have to wonder if the drop in eGFR was a symptom of the shingles coming?
Sending out positive vibes and a shoulder to lean on….
Ginger

REPLY
@rosemarya

@kamama94, I am sorry to see that you have been hit with shingles pain and drop in GFR.
You can count on my positive vibes coming thru cyber space. I hope tomorrow is going to begin an improvement how you feel.

Are the antivirals for shingles? or to help the kidneys? or both if these are related? Has your nephrologist said how long until antivirals begin to work?

Jump to this post

Antivirals can damage the kidneys but we thought the shingles would do more damage. A rock and a hard place!

REPLY

Thanks for everyone's support!

REPLY
@kamama94

To my brothers and sisters on this thread: I'm whiny today. GFR dropped from 32 to 28 and the day after the labs I came down with a severe case of shingles – most pain I've ever felt in my life including kidney stones and childbirth! Neph said I needed to take an antiviral even though it could drop GFR even more. Please send positive vibes that this is temporary! TIA.

Jump to this post

Hi, Kamama, Sending you the most gentle cyber hugs and wishing you continued strength as you heal from the incredibly painful shingles and deal with the drop in GFR. Not suggesting the two or connected but wondering if the shingles may have contributed in some way to the GFR. When I am ill, being in the kitchen is the last thing on my "to do list". Hope each day finds you taking great care of yourself and feeling better.

REPLY

I thought of this discussion group when I received a notice about this webinar. It is free, and it is online by the National LKidney Fund.

Kidney Chat: Ask A Dietitian
Friday, March 20, 2020 from 1:00pm – 2:00 p.m. EDT
https://www.kidneyfund.org/training/webinars/kidney-chat-ask-a-dietitian.html

REPLY

Hi All,
This morning I am thinking about all of you who have been participating in this discussion. You have mentioned and shared about kidney disease, diets, GFR's, shingles, and so many more topics that are affecting your own health journeys. While I am not experiencing kidney disease, I am living with a kidney transplant and I am interested in hearing from you about how you are doing with your dietary needs.

How are you doing? How are you able to manage your numbers during this current era of 'healthy at home' restrictions? What advice do you have for someone who is just beginning their own life with Stage 3 Kidney Disease?

REPLY

Rosemary, My neph. cancelled my 6 mos April 3rd apptmn't. While I am not shopping or having deliveries, I feel pretty well stocked with frozen, canned, boxed and bottled. I miss the fresh produce which made up so much of meal plans but have frozen and canned…the canned are being well rinsed. I'm using more rice, pasta and legumes than usual and working to follow my basic Stage 3 lab value guide for restrictions of salt, potassium, etc. Thanks for asking. Will be good to hear from others with CKD.

REPLY
@rosemarya

Hi All,
This morning I am thinking about all of you who have been participating in this discussion. You have mentioned and shared about kidney disease, diets, GFR's, shingles, and so many more topics that are affecting your own health journeys. While I am not experiencing kidney disease, I am living with a kidney transplant and I am interested in hearing from you about how you are doing with your dietary needs.

How are you doing? How are you able to manage your numbers during this current era of 'healthy at home' restrictions? What advice do you have for someone who is just beginning their own life with Stage 3 Kidney Disease?

Jump to this post

@rosemary My best advice is to listen to your nephrologist and follow guideline set for you. If your dr does not offer the information you need, ask! Also there is information on rsnhope.org or National Kidney Foundation. Basically limiting phosphorous-, sodium- and potassium-rich foods, maintaining healthy blood pressure and weight, will assist you in keeping optimum health. Each person is unique, each case has its own nuances. In these days of healthy-at-home, you may have to be more creative, but it can be done!
Ginger

REPLY
@fiesty76

Rosemary, My neph. cancelled my 6 mos April 3rd apptmn't. While I am not shopping or having deliveries, I feel pretty well stocked with frozen, canned, boxed and bottled. I miss the fresh produce which made up so much of meal plans but have frozen and canned…the canned are being well rinsed. I'm using more rice, pasta and legumes than usual and working to follow my basic Stage 3 lab value guide for restrictions of salt, potassium, etc. Thanks for asking. Will be good to hear from others with CKD.

Jump to this post

@fiesty76, I am happy to hear that you have a ready supply of foods on hand to meet your personal nutritional needs. I am learning to be more more aware of and creative with using the stock of food that I have on hand to reduce the grocery trips for my husband. I also realize that we are all in different regions of the country/world and have a wide range and variety of restrictiona based on the area where we live.
My own-mid April appointment with my liver and kidney transplant teams has been postponed, and I fully support that decision. Since I am feeling good, I am comfortable with that delay. I do have routine labs due in late April, though. How do you feel about a delayed appointment with nephrologist?

REPLY

Rosemary, thanks for your response. I am feeling more relieved than disappointed because the threat of going to a busy lab and then to a multi-practice neph. office waiting room is much more concerning to me than what lab reports might indicate. We are indeed fortunate to have food on hand and you are so right that conditions and restrictions vary widely depending upon where we live. Our small TX city has reported 57 confirmed cases and its 1st death as of yesterday.

REPLY

Yes, it is a scary time. Last week I was in the hospital twice, had lab work at a lab, and had two separate visits to doctors. I can stay home all this week, but next week I have two more appointments with doctors.

REPLY

Haven't posted much due to dealing w/shingles and yeast infections and a drop from stage 3 to stage 4 CKD but have managed to stay in my apartment since before the stay-home measures were recommended partly because I'm pretty much homebound to begin with and partly because I felt so awful. I don't have tele-health capability but fortunately I was given my docs' personal emails and also can address issues with them through patient portals. Took photos of shingles and subsequent yeast infection areas and emailed the pix so neph could prescribe meds and treatment. Both pcp and neph nurses call frequently to check on me and I very much appreciate how my care team members go out of their way for their patients.

The town I live in is pretty much shut down. Even our pharmacies are operating on a closed-door basis – local docs fax scripts and someone picking up an Rx goes to the door, phones the pharmacy from outside the building to let store personell know s/he has arrived, an employee comes to the door, masked and gloved, opens it a crack to hand the electronically paid-for prescription to the customer. Similarly, for customers too ill or disabled to physically go to the pharmacy, delivery drivers will bring the medicine to the person's door wearing mask and gloves. They sanitize the delivery vehicle and anything in it which could have been exposed after every delivery.

Handicap transport employees and regular route bus drivers sanitize at least once an hour, handivan drivers after every drop-off. It makes getting somewhere quite time-consuming but no one here is complaining that I know of.

Since I used to cook for a hay crew (on a wood stove) and for a hubby, a bro, a dad, 6 kids and their friends, I'm incapable of making anything less than 6 to 8 servings, no joke! So of course I always freeze extra meals to have on hand for emergencies. Thank goodness for the hay crew experience because I'm going into week 6 with shingles and their complications and have barely enough energy to microheat something already cooked for a quick meal.

For some time now I have grocery shopped online at our local Hy-Vee and the store delivers whatever I need. They carry a wide range of vegetarian and vegan foods and a multitude of kidney-friendlies. I made it a habit to order 2 of an item even if I only needed one. Just in case. . .

I'm old enough to remember outhouses and corncobs and Sears catalogs. And before there were disposable everythings I used and washed cloth diapers for my children as well as cloths for feminine hygiene. It's not a lot of fun laundering used toilet cloths (do wear gloves to rescue them from the diaper bucket) but it beats being unable to perform personal hygiene. Not long ago I even tore an old dress into soft rags to have on hand, again, just in case.

My parents went through the Depression so a lot of my upbringing had to do with waste not, want not, and with improvise or do without. As one born right as WWII and rationing ended, I think adjusting to the present day Corona "normal" was easier for people my age than for some of the younger generation. We didn't have tv when I was a kid and when I was raising my own kids a computer took up an entire building so we entertained ourselves – read, played games, made our own music, made up plays. So for those of us who are older may be less stressed by staying in than younger ones are.

SO this has been my lockdown experience so far. As a natural-born hermit I don't mind not goiing anywhere but my heart breaks for all who are ill or have lost loved ones or who are in harm's way. The whole world cries for compassion and unity and strength.

Please, all of you, be well and stay safe.

REPLY
Please sign in or register to post a reply.