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3-month survival for stage IV lung cancer? Is it true? Need hope

Posted by rlf66 @rlf66, 2 days ago

I was on internet checking for stats on survival time for stage IV lung cancer. One site mentioned that most people have a 3 month survival time!! Obviously, I was shocked and very discouraged re: my diagnosis over month ago. I have still to consult doctor and find out what type of cancer I have. I know it is NSCC non small cell cancer which metastiziced to my right temple which makes it stage IV. I will need to go for further test to see where it may be surfaced. A PET scan over month ago found it left lung.
rlf66

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rlf66 | @rlf66 | 12 hours ago
In reply to @dave56pa "Hiya@rlf66 I was diagnosed with stage IV nSCLC that had spread from lung to liver, pelvis,..." + (show)
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Hiya@rlf66 I was diagnosed with stage IV nSCLC that had spread from lung to liver, pelvis, hips, spine and clavicles. Immediately started radiation then chemo. My oct scan showed 8 of 10 tumors had reduced or eliminated. Now on keytruda to attack the others. I too read the horror stories on the internet but with today’s drugs it’s beatable.

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@dave56pa
Thanks so much. My prayers are w/you. rlf66

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rlf66 | @rlf66 | 12 hours ago
In reply to @dianemb "@rlf66 Hello. I was diagnosed with nsc lung cancer, stage 4 in September 2022. I am..." + (show)
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@rlf66 Hello. I was diagnosed with nsc lung cancer, stage 4 in September 2022. I am still here, using supplemental oxygen and my nebulizer daily.
I am a Mayo MN patient and they have treated me well. I’ve been in two trials and have had standard therapies. I had a run of 22 good months on an oral trial medication. Now I’m waiting to see if they have a new recommendation next week. I have a brain mri and ct scan on Monday. I have empathy for you, it’s hard not to be scared and anxious. I try to take things one day at a time. I hope I’ve given you encouragement.

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@dianemb thanks so much.
rlf66

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rlf66 | @rlf66 | 12 hours ago
In reply to @lls8000 "@rlf66 , There are many different types of lung cancer. The general statistics are lagging behind..." + (show)
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@rlf66 , There are many different types of lung cancer.
The general statistics are lagging behind the advancements that have been made in the past 5-10 years. They are a picture in time, but the treatments have improved, so they aren't always accurate today.
We are not statistics. We're individuals, and we react individually to treatments. No one can predict how well we'll do on any treatment.
I hope you are able to get some of your questions answered. The waiting and the unknown is one of the hardest things in this process of being diagnosed. Is your appointment still scheduled for this week?

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@lls8000 YES
yes it is scheduled for this week.
Thanks so much
rlf66

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arne | @arne | 17 hours ago
In reply to @rlf66 "@arne . pls what are those diatery changes?? Thanks, rlf66" + (show)
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@arne . pls what are those diatery changes??
Thanks,
rlf66

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@rlf66
Three years ago I was not doing well couldnt sleep and ran across the Penn state medical college review ov cancer studdies from 66 to 2020 19000 people surveyed and a takeaway was 4 oz or more mushrooms in diet per day reduced cancers by 45 %. Only a survey but I have 3 years hi dose mushrooms daily. This interested me in diet studies so I have tbs ground flax seed daily as well as hemp seed and chia seed all with good omega 3 to omega 6 balance. I sprinkle turmeric powder on most meals for its antioxident effect. It should be taken with black pepper and green tea I eat a wide range of greens like brassicas kale collards horseradish greens broccoli nasturtium leaves, dandelion ,nettles(steamed) to deactivate stinging. I try to avoid sugar in its various forms as it is added to many commercial food products. I try to do intermittent fasting most days. This year I am trying to increase my resveratrol intake red grapes and also in Japanese Knotweed a leaf per day and some tincture in cold weather. Vit D levels are key as well as magnesium and vit C. I have made sure to run ideas by my oncologist as some types of foods can interfere with some kinds of chemo. I try to grow veggies in my yard. I hope these things might be helpful for you. While one is taking chemo other diet considerations should be discussed with the Mayo nutritionist. Look at stress levels and exercise as one can.
Arne

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rlf66 | @rlf66 | 19 hours ago
In reply to @dianemb "@rlf66 Hello. I was diagnosed with nsc lung cancer, stage 4 in September 2022. I am..." + (show)
Profile picture for dianemb @dianemb

@rlf66 Hello. I was diagnosed with nsc lung cancer, stage 4 in September 2022. I am still here, using supplemental oxygen and my nebulizer daily.
I am a Mayo MN patient and they have treated me well. I’ve been in two trials and have had standard therapies. I had a run of 22 good months on an oral trial medication. Now I’m waiting to see if they have a new recommendation next week. I have a brain mri and ct scan on Monday. I have empathy for you, it’s hard not to be scared and anxious. I try to take things one day at a time. I hope I’ve given you encouragement.

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@dianemb . YES thanks alot the interenet can have very missleading information. We are all different. I see oncologist today. Will get a lot of my questions answered. Thanks AGAIN.
rlf66

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rlf66 | @rlf66 | 19 hours ago
In reply to @arne "@rlf66 I was diagnosed stage 4 nsclc at age 64 now 72 no chemo for 12..." + (show)
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@rlf66

I was diagnosed stage 4 nsclc at age 64 now 72 no chemo for 12 months at this point, radiation and chemo kill fast growing cells including cancer cells but diet and lifestyle change is needed to try to make internal environment less friendly to cancer stem cells. Based on my experience I believe these changes to be helpful as an adjunct to the conventional and important therapies.
Arne

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@arne . pls what are those diatery changes??
Thanks,
rlf66

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arne | @arne | 22 hours ago
In reply to @rlf66 "Please give me any information to what you may have experienced and what type of therapy..." + (show)
Profile picture for rlf66 @rlf66

Please give me any information to what you may have experienced and what type of therapy worked and what did NOT work.

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@rlf66

I was diagnosed stage 4 nsclc at age 64 now 72 no chemo for 12 months at this point, radiation and chemo kill fast growing cells including cancer cells but diet and lifestyle change is needed to try to make internal environment less friendly to cancer stem cells. Based on my experience I believe these changes to be helpful as an adjunct to the conventional and important therapies.
Arne

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