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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

26sabrina | @26sabrina | Apr 25 11:45am
In reply to @heisenberg34 "That is terrible. No way to have to live. Have you considered a trial of the..." + (show)
@heisenberg34

That is terrible. No way to have to live. Have you considered a trial of the pain pump. The trial usually involves an injection of morhine or hydromorphone into the intrathecal space. Or, a temporary pump?catheter may be used. The goal is to see if you get significant pain reduction. If so, you can go ahead with the permanent implant which is a small device about the size of a large hockey puck. That goes in an abdominal wall. A tube is run under the skin and attached catheter is sutured into the space around the spinal cord. Unfortunately, the permanent implant has never provided any significant relief for me. Guess I'm in the unlucky ten percent who get little to no relief. It might ba worth having the trial if nothing else has worked. No guarantees of course.

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I don't think I want it in my body. I already have so much metal from replacements and total back fusion.

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heisenberg34 | @heisenberg34 | Apr 25 12:48pm
In reply to @26sabrina "I don't think I want it in my body. I already have so much metal from..." + (show)
@26sabrina

I don't think I want it in my body. I already have so much metal from replacements and total back fusion.

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I understand. Wish you well.

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stantallusa | @stantallusa | Apr 25 7:24pm
In reply to @kfc1 "Hi, my name is Francis and I’ve been dealing with tremendous low back pain for many..." + (show)
@kfc1

Hi, my name is Francis and I’ve been dealing with tremendous low back pain for many years, enough so that I was put on disability at age 56. I’m 68 now and despite many different procedures from pain management specialists I am no better off, period, long term opioid use has been a big help but not near enough as the Dr’s I see are afraid of upping my dose or switching me to something stronger , afraid of a goverment that has no idea what they are talking about when it comes to severe chronic non cancer pain, I would get better pain relief if I actually had cancer. How sad is that.
Thanks for letting me ramble on 🙏🏻

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Yeah. It’s frustrating. No one really knows what it is like to be in constant pain. And some goofball worried about you getting “hooked” on an opioid.
I had Prostate removed. And have been in constant ever since. Have a spinal stimulator in now. Very little help. I can understand why some people end their lives have to live in constant pain and no hope on the horizon

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lisagh17 | @lisagh17 | Apr 26 9:22am

Happy Friday Friends!
My name is Lisa, from central Missouri…very rural area. When I moved here 17 years ago I was extremely worried that I wouldn’t find the right care for my Osteoarthritis. I’ve had bi-lateral Hip replacement, right side revision done cuz of Surgeon error…no suffering permanent nerve damage & severe nerve pain from him “traumatizing the femoral nerve while trying to dislocate” defective hip parts. He actually told me that! Then, of course, blamed it on my back being the cause of the new hip repeatedly dislocating. I trusted him when he said it’ll eventually get better; 2019 still defective.
By the time I went to take legal action, of course, it was too late. I’ve also had 3 failed back surgeries, tried e-stimulators…couldn’t calibrate it correctly so no use for me. I need both my shoulders done and receive injections every 3mos to help ease that horrific pain. I’m scared to death to get my shoulders done, per the outcomes of previous surgeries.
Luckily 🍀🙏🏻 I found an amazing pain management specialist close (enough) to me to prescribe the right combination of medicine that makes things more tolerable. I am 70% functional but I’m so depressed that it hinders me from being a productive. Pain feeds depression and depression feeds pain…not to mention the anxiety that comes from things you know need to be done but you literally procrastinate or avoid completely. NOW they’ve determined that a lot of my shoulder pain is directed to my neck, which also needs a fusion surgery!
I’m scared for my future. My son and I have an understanding that he is not to let me suffer should I become non-mobile or productive. I don’t want to live in this pain and if I don’t take care of what needs to be done, it’ll all get worse. It’s not a bright sunny future I was hoping for.
God Bless All Sufferers with Peace & Comfort.✌️🙏🏻❤️‍🩹🥺

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