Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for lioness @lioness

Ginger I want to hear about pain meds and help with it there's to much chitchat I'm not interested in it's like a social group now I'm hurting today and this isn't what I wanted to hear

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Social? That’s Facebook

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Profile picture for bustrbrwn22 @bustrbrwn22

@faithwalker007 I am so sorry someone would respond in that way. Real, chronic pain that never relents is unbelievably unbearable to deal with. Funny how we commoners can’t get reasonable doses of pain meds but I just read about another celebrity who’s in rehab for an ungodly amount of OxyContin daily. But it keeps happening for celebrities and billionaires. Sorry if I come across spiteful but it isn’t fair.

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That’s one reason why our Advocacy Committee (WYDPAC) is pursuing legislation to protect the little guy in Wyoming like New Hampshire did.
If you want to help, sign out petition and share it. Show your support and help us get the word out.
http://chng.it:JvBk9hB6Md

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Profile picture for Faithwalker007 (Renee) @faithwalker007

A “movement” is exactly what we need. I’ve started a petition for legislation in Wyoming. I guess I can make a wider one if need be.
We need to stop being silent. The ADA protects us but we won’t use it.
Wyoming has a suicide rate over twice the National Average. 30/100,000 people. I’m not claiming it has everything to do with chronic pain but it is a factor but we only have 15 Pain specialists in the entire state and its getting harder and harder to get treatment. It’s a recipe for disaster.
I know what the DEA is doing to the pharmacies and physicians here, I was on the receiving end. And I know Wyoming isn’t the only place it’s happening.
If we don’t start speaking out, we won’t be able to.

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Maybe this is the link to the petition now: http://chng.it/JyyQdwcf

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Profile picture for lioness @lioness

Ginger I want to hear about pain meds and help with it there's to much chitchat I'm not interested in it's like a social group now I'm hurting today and this isn't what I wanted to hear

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@lioness These threads may morph into conversations like we have around a coffee table, but in here I see that we stay pretty much on topic of chronic pain. The remedies we try, our frustration with the medical community not always hearing us, and venting is productive as we work through and weed out things to assess and possibly try.
Ginger

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Profile picture for Ginger, Volunteer Mentor @gingerw

@lioness These threads may morph into conversations like we have around a coffee table, but in here I see that we stay pretty much on topic of chronic pain. The remedies we try, our frustration with the medical community not always hearing us, and venting is productive as we work through and weed out things to assess and possibly try.
Ginger

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@gingerw @lioness
Linda, I hear you. And certainly Ginger really hears you. I know you are hurting. My Lnda is hurting today too, bigtime. She had to cancel a Dr. appt. today because she was just hurting too much and could not make the drive (she is VERY stressed in the car). I understand your frustration about not getting info you want to have regarding things such as pain medications that might help. But really, what would they be? The usual, you know the drill. You are a veteran of Connect, and you know how difficult it is for any of us here to find the answers to our (in my case, my wife's) pain. But one thing everyone is pretty good at here is venting, including you! Good for you that you are, and good for all of us. PN is becoming an old and need I say it, BORING problem that we wish someone would just resolve, finally. My heart is with yours sweetheart. Hang in. Love to you, Hank

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Profile picture for Hank @jesfactsmon

@gingerw @lioness
Linda, I hear you. And certainly Ginger really hears you. I know you are hurting. My Lnda is hurting today too, bigtime. She had to cancel a Dr. appt. today because she was just hurting too much and could not make the drive (she is VERY stressed in the car). I understand your frustration about not getting info you want to have regarding things such as pain medications that might help. But really, what would they be? The usual, you know the drill. You are a veteran of Connect, and you know how difficult it is for any of us here to find the answers to our (in my case, my wife's) pain. But one thing everyone is pretty good at here is venting, including you! Good for you that you are, and good for all of us. PN is becoming an old and need I say it, BORING problem that we wish someone would just resolve, finally. My heart is with yours sweetheart. Hang in. Love to you, Hank

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@jesfactsmon Thanks Hank I was just venting as everyone here can . Its tough for us all I know but so frustrating also.Thanks to you and Ginger Hope your Linda feels better today

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Profile picture for lorirenee1 @lorirenee1

@suzanne2 I was on Gabapentin for foot neuropathy, and it did very little to help. As the Neurologist raised the dose, it still did not help, but did give me balance problems. Eventually, I just weaned off, and my balance returned. No, Gabapentin did not help me. Lori Renee

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@lorirenee1 Thanks for your take on the gabapentin. I also have noticed my balance is off! I have been thinking of lowering the gabapentin dose because my pain level is so high, it can't be helping.

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Profile picture for Hank @jesfactsmon

@suzanne2
Does your husband really say that if you can teach 3 four hour days per week your pain can't be that bad? Which planet did he arrive on Earth from? That seems like a very insensitive if not utterly compassionless thing to say. I am going to take the kind route and just say he sounds like he's being a bit more than a tad dense.

I was reading your exchange with @jenniferhunter from Sept. 17th and how she suggests it could be TOS that you have (though you thought perhaps a pinched nerve). Have you had any chance yet to figure out what you want to do next in terms of treatment? If you were to be admitted to Mayo you might have to take an LOA from teaching. Is that something you can afford to do? Also and more importantly, is it something you can afford NOT to do, given how crippling it seems to be to your life?

Finally (and I seem to be asking more people this lately since my wife is getting some benefits) have you thought of trying kratom? It is not FDA approved, but it sure can help pain, and it's not an opioid or benzo (no scrip needed) and is an option for you. Just thought I'd mention it.
Best to you Suzanne, Hank

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@jesfactsmon I did spend 2 weeks at Mayo in July. They are the ones who found the pinched nerve in my neck and one in my lower back. The neck, result of a rear end collision, is getting worse and I may be to the point of taking action since the meds that are supposed to work don't. Surgery does scare me, I have read of so many adverse results of that action. I in fact have just ordered and am figuring out my dosage of kratom. I took 4 before going to school today and it did seem to give me some relief. I have ordered more kratom and the nighttime blend also. In defense of my husband's attitude he is facing some health issues of his own, I remind myself of that daily. The positives in my day are the the children I teach. They definitely tell things the way they see it and when they ask their teacher not to go home it tugs at my heart. They can be the best pain relievers or the worse!

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Profile picture for suzanne2 @suzanne2

@jesfactsmon I did spend 2 weeks at Mayo in July. They are the ones who found the pinched nerve in my neck and one in my lower back. The neck, result of a rear end collision, is getting worse and I may be to the point of taking action since the meds that are supposed to work don't. Surgery does scare me, I have read of so many adverse results of that action. I in fact have just ordered and am figuring out my dosage of kratom. I took 4 before going to school today and it did seem to give me some relief. I have ordered more kratom and the nighttime blend also. In defense of my husband's attitude he is facing some health issues of his own, I remind myself of that daily. The positives in my day are the the children I teach. They definitely tell things the way they see it and when they ask their teacher not to go home it tugs at my heart. They can be the best pain relievers or the worse!

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@suzanne2
Forgive me for missing that you had already been to Mayo in July, I must have missed that info the first go round.

Yes, I agree about going very slow before proceeding with surgery of any kind. Know the risks up front and the actual success rate, then know that you trust your surgeon implicitly! If you have any questions or any lack of confidence, wait before you proceed.

If you need advice with taking kratom, @lorirenee1 is very well versed in its use and has excellent advice for new users. She has been helpful to my wife, who had a better day the other day. She took the pure compressed pills, first 10, then 8, then 3 just before bedtime and it got her through the night in a much better way.

OK, I am reading back further into your post history and I see you mention that medical marijuana is legal in Mich. but you say "marijuana is medically and recreational legal but still feel like I would be breaking the law". Not sure I understand. If you can do it legally, there should be no reason (other than cost, THAT I do understand) to go for it. You need all the help available to you NO HOLDS BARRED. MM could be a godsend for you. Please overcome anything standing in your way from trying it if you can afford it.

I know you've had fibro a long time (as has my wife Linda). Do you do hot baths with epsom salts? Fibro can feel much better with this treatment. All muscle pain should be improved as long as you can tolerate the hot water.

I see you use Penetrex. Linda swears by it an uses the rollon to apply to her feet every night before bed. It cuts her pain by 30% usually. A big help. Good on you for finding it!

Suzanne, my heart is with you totally. What a road you have had to travel. You seem like you have a good spirit and I hope you have a spiritual center, I am guessing you do. I am also so glad you have your kids to help get you through. I think you may have mentioned taking an anti depressant? If you need advice on that @jimhd is a good resource, and he may be able to provide advice on that, he has taken ALL of them and is now on something that works for him called Wellbutrin. In case you are not aware of it, you can send a private message to anyone on Connect by clicking the little envelope symbol at the top of this (or any) page. Let me know if you need any help doing that.

One more thing, if a drug is not helping you, try to get off of it as soon as possible (always tapering as per your Dr.'s direction). Drugs are, ultimately, toxic, and if they are not helping they are hurting you. Just my feeling. Sending prayers and positive thoughts your way, hope to hear better things about you as time goes by Best, Hank

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