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Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
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@faithwalker007 Renee, I too, feel like Covid could not make me feel worse than I already feel, but I do know that Covid could kill me. Don't know if that would be a blessing or a curse, actually. A life of suffering is not a life. I try to keep occupied as best I can, because distraction can help. I try, I try, I try, and get exhausted trying. You know exactly what I am talking about. And yes, your fabulous doctor got it, because he was in that accident. Unfortunately, that's what it takes to fully get it. So when people in my life forget to ask me how I am, respond inappropriately, etc., I feel kind of blessed knowing that they are well, and can't fully get it. Especially if I really care for them. Lori Renee
@suzanne2
Does your husband really say that if you can teach 3 four hour days per week your pain can't be that bad? Which planet did he arrive on Earth from? That seems like a very insensitive if not utterly compassionless thing to say. I am going to take the kind route and just say he sounds like he's being a bit more than a tad dense.
I was reading your exchange with @jenniferhunter from Sept. 17th and how she suggests it could be TOS that you have (though you thought perhaps a pinched nerve). Have you had any chance yet to figure out what you want to do next in terms of treatment? If you were to be admitted to Mayo you might have to take an LOA from teaching. Is that something you can afford to do? Also and more importantly, is it something you can afford NOT to do, given how crippling it seems to be to your life?
Finally (and I seem to be asking more people this lately since my wife is getting some benefits) have you thought of trying kratom? It is not FDA approved, but it sure can help pain, and it's not an opioid or benzo (no scrip needed) and is an option for you. Just thought I'd mention it.
Best to you Suzanne, Hank
I understand that. My husband is disabled but more functional than I am. He actually had a person come up to him and tell him that he tested positive for COVID the other day and James about smacked him.
He was like, “you are supposed to be in quarantine, you dips—t!”
Common sense has flown the coop.
We have both ends of the spectrum in Wyoming, the Paranoid, Nobody Breathe on Me, and The Who the Heck Cares.
I’m a pharmacist and I’ve studied it since it made its appearance. I know doctored statistics when I see them. I also know an infectious disease vs a deadly one. COVID is the former. It’s highly contagious with a lower mortality rate, lower than the annual influenza. However, it does warrant respect and the minute we don’t give it such, we will regret it.
That is the mixed blessing of having something as torturous as CRPS, nobody can comprehend what we experience unless they go through it or a piece of it.
I gave up feeling sorry for myself a long time ago. It has no purpose... no end game. It simply breeds destruction and I have enough of that to live with. I may even be able to practice as a pharmacist if it wasn’t for my brain shorting out with no warning lol! Another friendly symptom of CRPS.
I love helping others. So far CRPS has robbed me of that in many ways.
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1 Reaction@lorirenee1 had to chime in. I get orthotics to lessen the pain of walking. The first time I saw the podiatrist he was rude when I mentioned my sciatica and told me orthotics wouldn’t help and that it definitely wasn’t plantar fasciitis. A year later I went back for orthotics and he said even cushioning might help the pain. You see, he had a brief bout of sciatica recently and he said the pain was unbearable
Sounds familiar. I can’t take gabapentin or Cymbalta because they trigger my migraines and Lyrica triggers my seizures. Since my migraines and seizures are interconnected, if one is affected, both are.
Lol what a little experience does lol
I guess after 5 cases of infectious C. difficile colitis, something like COVID is a drop in the bucket for me. Lol
Oh here is my petition I started for the the Wyoming Opioid Legislation:
http://chng.it/JyyQdwcf
@cb772 Gosh, all the posts here have certainly been an education for those who may not be in a chronic pain situation. I have to wonder if there are people reading this group, following along, who are not chronic pain sufferers, and have no idea what we experience everyday. I wonder if they might "get it" just a little bit more, now?
Like all of you, I also suffer with chronic pain. And like others, there are several underlying factors. And several pathways towards getting some relief. Some work for some, others work for others. So often, as you have said @cb772, it takes a trial period of things to see what combination will do the best for us as an individual. Hearing what people have tried, and their experiences, is good information to have in our arsenal. Finding medical professionals who will take our pain seriously, and seriously attempt to work with us for relief, is critical to our well-being. Becoming discouraged when that doesn't happen, is easy. Getting up each day to fight the good fight of being as pain-free as possible, may not be so easy some days.
I hope you can find relief for yourself, today and each day. Please don't be discouraged. You have people here who understand and support you. I would like to hear back from you, how you are doing?
Ginger
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3 ReactionsGinger I want to hear about pain meds and help with it there's to much chitchat I'm not interested in it's like a social group now I'm hurting today and this isn't what I wanted to hear