Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

cb772 | @cb772 | Oct 9, 2020

In reply to @bustrbrwn22 "@faithwalker007 I am so sorry someone would respond in that way. Real, chronic pain that never..." + (show)

Your description of chronic 24/7 pain is right on. I took Oxycontin for 5 or 6 ye

cb772 | @cb772 | Oct 9, 2020

In reply to @cb772 "Your description of chronic 24/7 pain is right on. I took Oxycontin for 5 or 6..." + (show)

Sorry, accidentally hit Reply button. I took Oxycontin for 5 or 6 years when my 1st low back surgery in 1997 failed. My 2nd back surgery in Dec., 1999,left me in a total upper body cast for 4 months on a higher dose of Oxycontin. My doc recommended I hire a personal trainer at a gym instead of doing regular P.T. After 18 months, of gym work, I'd lost 130 lbs & felt great. One of the best days ever for me was when I was able to stop taking meds..I never was addicted to Oxycontin & didn't suffer any withdrawal. I always took it as prescribed. That all ended in 2004 when I fell off a short ladder leading to a 3rd disastrous surgery in 2007.By then Oxycontin was pretty much banned & the nightmare of finding a pain med that worked a little began.

cb772 | @cb772 | Oct 9, 2020

In reply to @bustrbrwn22 "@cb772 does that really work? I meet for the first time with a new pain mgt..." + (show)

@bustrbrwn22 , I'm sorry but I don't remember what I said & can't find my post. Could you please tell me what I said that prompted you to ask "does that really help? "

cb772 | @cb772 | Oct 9, 2020

In reply to @jesfactsmon "@cb772 Hi, just thought I'd pass along a small tip for you. If you just click..." + (show)

Hank, thank you!

bustrbrwn22 | @bustrbrwn22 | Oct 9, 2020

In reply to @cb772 "@bustrbrwn22 , I'm sorry but I don't remember what I said & can't find my post...." + (show)

@cb772 I think you mentioned telling the doctor that they really need to listen to you. I’ve had some that treated me like an idiot or a drug seeker. I am in pain and can barely get out of bed. I dream of exercising again.

bustrbrwn22 | @bustrbrwn22 | Oct 9, 2020

In reply to @cb772 "Sorry, accidentally hit Reply button. I took Oxycontin for 5 or 6 years when my 1st..." + (show)

@cb772 I am so sorry to hear this. Did you find something that helped a little?

lorirenee1 | @lorirenee1 | Oct 9, 2020

In reply to @suzanne2 "@lorirenee1 Thanks for your take on the gabapentin. I also have noticed my balance is off!..." + (show)

@suzanne Absolutely get off the Gabapentin if it is not helping pain, and you are losing your balance!!! Wean off safely. Don't take a med that does not help. Keep working on your Kratom dose that best helps take your pain away. It will! My best to you. Lori

Faithwalker007 (Renee) | @faithwalker007 | Oct 9, 2020

In reply to @bustrbrwn22 "@pfbacon I had a doctor accuse me of shopping around because I was not getting relief..." + (show)

I understand that. I was told that opioids can’t be helping my pain since it was “only” nerve pain. I needed to take cymbalta or lyrica. I stared at the “doctor” for a solid minute then asked him where he went to school and if he’d bothered to read my chart before he’d walked through the door.

John, Volunteer Mentor | @johnbishop | Oct 9, 2020

In reply to @lorirenee1 "@suzanne Absolutely get off the Gabapentin if it is not helping pain, and you are losing..." + (show)

@lorirenee1 @suzanne2 and others, I would urge you to discuss stopping any medication you are taking with your doctor. We are all patients here with limited knowledge on all of the drug interactions or the specifics of other symptoms/conditions being treated. If you are having issues or problems with the doctor another plan comes into mind - have a conversation with them and plan what you want to tell them. Good tips here and a Plan your conversation card that you can print out to help you write your questions, etc..
- https://patientrevolution.org/visit-tools

ellens | @ellens | Oct 9, 2020

In reply to @lorirenee1 "@suzanne Absolutely get off the Gabapentin if it is not helping pain, and you are losing..." + (show)

I had never heard of Kratom before so I looked it up and am very put off and scared of the possible side effects. Be careful!

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