Can anyone tell me if medical marijuana is permitted pre-transplant?

Told I had to cease use of thc oil and rso extract prior to acceptance for liver transplant list. I did so, but now resting and sleeping are a big issue for me. I also make my own skin lotion with thc thc oil from local dispensary and coconut oil. It's an incredible skin and wound healing solution for me, which I no longer have. I refuse to take narcotics or opioid based meds. Trazidone was rx and helps the sleeping some, though not as well as thc based edibles for cancer patients (RSO) . Any one else come up on this speed bump?

Welcome @jmp1234, I moved your post to this existing discussion in the Transplants Support Group:
- Can anyone tell me if medical marijuana is permitted pre-transplant?
https://connect.mayoclinic.org/discussion/medical-marijuananauseaheadache/
Click the link to read previous posts and to connect with other transplant patients like @parrot53 @ssapp1 @feruj @johnnoregon @waningphilosophic @katebw @johnnybroom.

May I ask what condition has necessitated a liver transplant for you?

Told I had to cease use of thc oil and rso extract prior to acceptance for liver transplant list. I did so, but now resting and sleeping are a big issue for me. I also make my own skin lotion with thc thc oil from local dispensary and coconut oil. It's an incredible skin and wound healing solution for me, which I no longer have. I refuse to take narcotics or opioid based meds. Trazidone was rx and helps the sleeping some, though not as well as thc based edibles for cancer patients (RSO) . Any one else come up on this speed bump?

Marijuana use is discouraged since weed is contaminated frequently with fungi which can be a danger to immunocompromised patients. It may disqualify you for a transplant if it is detected in a blood test. I know I was tested for drug and alcohol use prior to transplant but I don't know if it included testing for weed.

If you continue to use weed I woud recommend switching to edibles since they are cooked and cooking should kill any pathogens.

@jmp1234 two years post liver transplant for an autoimmune condition I use medical cannabis regularly for back pain and for sleep. I use a tincture nightly that relaxes me from my back aches that tend to loom large by days end and it helps me sleep. It was recommended post surgery by my liver team for my back problems which began after a fall early in my diagnosed illness when I had an episode of hepatic encephalopathy.

Prior to my transplant I used no cannabis and actually no alcohol though I had to prove that to my team pre listing as I had a small car accident pre diagnosis and the police who showed up accused me of being drunk. That myth dogged me for a bit and if I had learned of marijuana benefits I wouldn’t have dared asked for fear they’d misunderstand and I’d be kicked off the list.

I live in MA where legal cannabis abounds but there is still stigma, especially for a liver team which has to consider substance abuse a lot. I get it. Depending of your own background related to substances I think it’s fair to ask and negotiate if possible but if you can’t, perhaps incorporate “sleep hygiene” techniques into your life- I still do even though I use cannabis. Pre transplant I listened to, at bedtime, tapes of Yoga Nidra a friend sent to me. I am not a yoga person at all- however for several months I used that alternatively with trazodone 50 mg and I found it very effective and I still play it occasionally at times. Get creative and in the process you’ll learn a lot about yourself. Take good care.

Marijuana is not allowed pre transplant. They test for it and other drugs pre transplant. I was tested once a month while I waited for a liver. The doctors especially don’t want you smoking it. Post transplant my transplant doctors said I could do gummies that were 50/50 cbd and thc. I was severely under weight and needed something to help me eat. I took 1/2 a gummie at night. It did help. I did that for a month and my appetite came back. Always ask your doctors before you do anything. Certain types of drugs can get you kicked off the transplant list. Marajuana May vary depending on the state and doctors, but I didn’t want to risk anything, so I left it alone, no booze whatsoever, no marajuana, etc.

@feruj I’m so glad you found this group while you’re in the process of evaluation for a liver transplant- wish I had! I was formerly evaluated by my liver team Aug 3, 2021 and had my transplant surgery Oct 29, 2021. By the time I met with the team I was VERY sick. I didn’t think to ask about medical marijuana for some reason- I was very symptomatic- fatigue, nausea, episodes of hepatic encephalopathy etc. I suspect they would have said yes with some restrictions. Post transplant I’ve sometimes had GI issues and the big one is back aches as I had a fall in May, 2021 during a severe episode of hepatic encephalopathy (this phenomenon doesn’t happen to the majority of patients). I currently use cannabis tinctures at night for my back pain at the end of the day, and it has helped nausea a lot. My team brought this up as a possible aid (I live in MA where it’s legal) and I’ve been doing this- a few drops in my tea at night- since summer. It helps a LOT. I was told it had to be pure THC with no CBD or melatonin. I’m not supposed to smoke it- which is fine as I’m not into combustibles! - because the worry post transplant is the spores could cause a fungal infection. This is a long way of saying it’s a fair question and I would follow the advice of your new team. I follow ALL of their advice except I eat more sugar than I should.

How are you feeling physically and emotionally? I know it can be lonely. You will find good support and some ideas here. I can never tire of hearing about others’ experiences as each story if different and yet we have a common thread linking us together. Are there people in your life you want to share with but you are reluctant? I remember sharing my general feelings etc with friends and family but I did experience a loneliness that I never had before- kind of an existential feeling.

I hope you will share a bit about yourself on this forum. All care to you.