Can anyone tell me if medical marijuana is permitted pre-transplant?

@feruj Serious illness already throws a person out of their comfort zone, so I say stay in yours as a private, practical person. Perhaps your husband needs permission to share with another person to ease his burden? At first I was very private. I was also confused about how I could be so sick so suddenly, so I wanted a lot of privacy. I felt very exposed, similar to how I felt when my husband died suddenly when our daughter was little. I didn’t want to have all eyes on me again. I am also very private. I also come from a family of stiff upper lip WASPs. Just before I met the liver team I began sharing more freely because I had a plan in formation. It was helpful to share more and by now I am totally open about it but I do guard my emotions. For me it helped to create an “inner circle” after a certain point in time. My old mom, my partner of a few years, siblings, my 20 year old daughter, a couple of good friends. In retrospect I think being a little more open helped those caring for me (I cannot emphasize how sick I was at this point, I even had to moved into my mom’s place as it was not safe to be alone for long stretches) as I could see that they needed to share their burden. Everyone is different.

I wrote a lot to relieve the chaos is my brain. Often I just made notes in my iPhone Notes app while I was at the lab, Dr, hospitalized or home. I needed the release. You said writing your comments felt good- there is something magical about writing.

I find this forum to be a safe space and I read comments more than I write.

I also used walking as much as I could— and being outside everyday— to help me process privately. I find that even being outdoors for a short bit reminds me that I am part of the world, yes I’m struggling but I am part of something larger than myself. I remember an older widow urging me to be outside everyday after my husband died out of the clear blue. That experience was much harder than a liver transplant.

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Told I had to cease use of thc oil and rso extract prior to acceptance for liver transplant list. I did so, but now resting and sleeping are a big issue for me. I also make my own skin lotion with thc thc oil from local dispensary and coconut oil. It's an incredible skin and wound healing solution for me, which I no longer have. I refuse to take narcotics or opioid based meds. Trazidone was rx and helps the sleeping some, though not as well as thc based edibles for cancer patients (RSO) . Any one else come up on this speed bump?

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Welcome @jmp1234, I moved your post to this existing discussion in the Transplants Support Group:
- Can anyone tell me if medical marijuana is permitted pre-transplant?
https://connect.mayoclinic.org/discussion/medical-marijuananauseaheadache/

Click the link to read previous posts and to connect with other transplant patients like @parrot53 @ssapp1 @feruj @johnnoregon @waningphilosophic @katebw @johnnybroom.

May I ask what condition has necessitated a liver transplant for you?

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