Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@jeanie26

Hello everyone, it's been awhile since I have been here but I am here today to tell everyone something very important. I also have chronic pain and have for years, I have tried everything but it's still there. But that's not what I am here for today. I am here to plead with everyone to make a good effort to relieve your pain with natural remedies, I know they don't always work but try anything and everything before taking narcotic pain relievers. My sister- in- law and my best friend refused anything natural, she claimed she only got relief with large doses of Percosets and Klonopin for her anxiety. She tried Methadone and Subutex and did very well on both, for a while but they stopped working for her and she was back doctor and hospital hopping to get more of what she said helped. It got so bad that she was asking strangers for a ride to the hospital because she had called EMS so many times she didn't want to call them again. She went to the hospital twice in one day, for a while, then they threatened to have her picked up if she came back again. The hospital refused to give her any narcotics and the Drs in town knew her well and they too refused to give her anything. Once in a while, she would find a Dr. that didn't know her and would give her narcotics, but once he found out she had gone through 90 Percosets in less than a week, he too refused to give her anymore. She spent her bill money every month, ( she was on SSI ) on pills, I did everything I knew to help her, but the drugs had too strong a hold on her. My sister-in-law died last week in her sleep. No matter the cause of death it would be drug-related. She was 58 years old. A wonderful woman that I love still and will miss always. I saw a woman go from 0 to 10 in a matter of weeks. Her addiction cost her her life. Yes, she had chronic pain, but X-rays, MRIs, CT scans, showed arthritis, maybe some Fibromyalgia but nothing that would have caused her as much pain as she claimed to be in. It was her addiction making her pain so bad. Not that she wasn't in pain, because the pain was very real to her, but her need for the pills outweighed everything else. She gave up on herself, the depression and anxiety became so bad she refused to bath or change her clothes, she wouldn't eat, saying she was in too much pain to eat. She wasn't sleeping much, she would wake up every 2 hours and would find it hard to go back to sleep. She lost weight, her complexion changed, She would take the pills and sleep for hours during the days, hence her not sleeping at night. She smoked and would fall asleep with a cig. in her hand and had burned holes in all her clothes, floors and her bed. I tried everything I could, I sought the help of Dr's, DSS, Social workers and even went to the magistrate for advice but no one would help, She was a drug addict and that's all they could see. They overlooked the fact that she was a human being with a huge problem. No one cares when you are an addict. I am telling this story in hopes of saving lives. Yes, chronic pain is bad but so is the addiction. Pain won't kill you but addiction will. And I might want to add, no one starts off with the intentions of being an addict. It happens slowly, you start taking narcotic pain relievers as directed, one day it just doesn't seem to work so you take one extra, ok that helped, then one day you discover your pills are running out before time to refill, what happened to them? you didn't take them, or did you? you certainly wouldn't take all those pills, someone must have stolen some of them. You begin to think about who was in your home that would have taken them, you turn on your friends because they stole from you, how dare they. You are in pain and have nothing to take, damn people, stealing your pills. You get more pills and for a while, they are working fine then it starts all over again. One just isn't enough anymore, call the Dr. but he says he can't give you anymore and the cycle begins. Then one day you don't care about anyone or anything except getting that next Percoset. You are now in a living hell and the people that love you feel it too, they worry, they plead with you, you begin to lose weight, you have no concern for your appearance, you don't bath, your hair begins to smell bad, you are in more pain now than ever before, you go from Dr to Dr. hospital to hospital, you beg for something for your pain but no one listens. Can't they understand the pain you're in? They offer you something else for pain, Are they frigging kidding? your pain is far to bad for anything else except Perocet, after all, YOU KNOW they work, whats the matter with everyone? People have changed, And life just lost its meaning. You forget things, you hurt and no one will help you. Then one day you go to bed and your problems end. You are no longer in pain, you are happy and healthy. What about the ones you left behind? you know the ones who love you so very much. what about them? The heartache, the tears, the emptiness. So folks, please, stay away from the narcotics. I know, I know, you got it all under control, you would never abuse your meds, not you. Okay, have it your way. Do me a favor though, get your will and your insurance up to date. I hope this will touch someone's heart and save their life.

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@jeanie26. First of all I want to thank you for sharing this story. No one ever thinks" I want to be an addict when I grow up!" I was a volunteer in a treatment facility many years ago. I attended AA meetings and Alanon meetings, along with Co-Dependents Anonymous. In all the groups I attended, in all the meetings I helped to facilitate, not one person ever said that someone forced them to take those pills or pick up that drink. Your precious sister in law was very sick. She needed help, and many hands were outstretched to help her. Including yours. But she was so far down, her thinking was so far gone, that she wasn't thinking clearly when she made that choice. There is nothing more that you could possibly have done to help her. I realize that my saying this probably doesn't mean a whole lot. You don't know me. Let me tell you who I am. I am just somebody who has lost more people than I want to think about to this crazy, mixed-up world of addiction. You are a person with a great heart for others. I am so sorry for your loss, for your pain. You tried. You really did. I myself have been so down with depression before that I didn't know how many days I had worn the same clothes. Depression robs you of your life. It isn't just sadness, it's words coming at you that won't leave you alone. "You're worthless. You're no good. No one would miss you when you're gone." It brings people to a solution that is no solution at all. Just more heart ache. Your posting helps others to understand that Narcotics are to be avoided if at all possible. Your caring heart makes sure that others see what a slippery slope taking strong medicine is. There is a time and a place for everything. But as a rule, we should all try everything we can to get ourselves better, to avoid the path of addiction. Thank you again for sharing. Love and light, @ mamacitalucita

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@lioness

@jeannie26 I am a retired nurse and have studied holistic meds for a long time herbs, homeopathic meds and am a big believer in going naturel for ailments one for me has been fibromyalgia . thanks for posting hope people listen there are some things that only traditional medicine will help bless you

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@lioness, this is @mamacita. Hello! I totally agree with what you said. Almost every single thing I have tried for my Fibromyalgia and Arthritis, Spinal Stenosis, and DDD, has helped tremendously. I started on low dose new meds about the same time I started the new supplements. So I have to give credit to both paths! Thank you for sharing! Love and light, @ mamacitalucita

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@lioness

@jeannie26 I am a retired nurse and have studied holistic meds for a long time herbs, homeopathic meds and am a big believer in going naturel for ailments one for me has been fibromyalgia . thanks for posting hope people listen there are some things that only traditional medicine will help bless you

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@mamacitalucita your welcome the magnesium works great for me I use Epsom salts when I bath I don't know if your aware of Dr.Teals Epsom salts shower soap and also a rub ,like Ben gay Dr.has had me on Tramadol and it works for me wishing you the best

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@jeanie26

Hello everyone, it's been awhile since I have been here but I am here today to tell everyone something very important. I also have chronic pain and have for years, I have tried everything but it's still there. But that's not what I am here for today. I am here to plead with everyone to make a good effort to relieve your pain with natural remedies, I know they don't always work but try anything and everything before taking narcotic pain relievers. My sister- in- law and my best friend refused anything natural, she claimed she only got relief with large doses of Percosets and Klonopin for her anxiety. She tried Methadone and Subutex and did very well on both, for a while but they stopped working for her and she was back doctor and hospital hopping to get more of what she said helped. It got so bad that she was asking strangers for a ride to the hospital because she had called EMS so many times she didn't want to call them again. She went to the hospital twice in one day, for a while, then they threatened to have her picked up if she came back again. The hospital refused to give her any narcotics and the Drs in town knew her well and they too refused to give her anything. Once in a while, she would find a Dr. that didn't know her and would give her narcotics, but once he found out she had gone through 90 Percosets in less than a week, he too refused to give her anymore. She spent her bill money every month, ( she was on SSI ) on pills, I did everything I knew to help her, but the drugs had too strong a hold on her. My sister-in-law died last week in her sleep. No matter the cause of death it would be drug-related. She was 58 years old. A wonderful woman that I love still and will miss always. I saw a woman go from 0 to 10 in a matter of weeks. Her addiction cost her her life. Yes, she had chronic pain, but X-rays, MRIs, CT scans, showed arthritis, maybe some Fibromyalgia but nothing that would have caused her as much pain as she claimed to be in. It was her addiction making her pain so bad. Not that she wasn't in pain, because the pain was very real to her, but her need for the pills outweighed everything else. She gave up on herself, the depression and anxiety became so bad she refused to bath or change her clothes, she wouldn't eat, saying she was in too much pain to eat. She wasn't sleeping much, she would wake up every 2 hours and would find it hard to go back to sleep. She lost weight, her complexion changed, She would take the pills and sleep for hours during the days, hence her not sleeping at night. She smoked and would fall asleep with a cig. in her hand and had burned holes in all her clothes, floors and her bed. I tried everything I could, I sought the help of Dr's, DSS, Social workers and even went to the magistrate for advice but no one would help, She was a drug addict and that's all they could see. They overlooked the fact that she was a human being with a huge problem. No one cares when you are an addict. I am telling this story in hopes of saving lives. Yes, chronic pain is bad but so is the addiction. Pain won't kill you but addiction will. And I might want to add, no one starts off with the intentions of being an addict. It happens slowly, you start taking narcotic pain relievers as directed, one day it just doesn't seem to work so you take one extra, ok that helped, then one day you discover your pills are running out before time to refill, what happened to them? you didn't take them, or did you? you certainly wouldn't take all those pills, someone must have stolen some of them. You begin to think about who was in your home that would have taken them, you turn on your friends because they stole from you, how dare they. You are in pain and have nothing to take, damn people, stealing your pills. You get more pills and for a while, they are working fine then it starts all over again. One just isn't enough anymore, call the Dr. but he says he can't give you anymore and the cycle begins. Then one day you don't care about anyone or anything except getting that next Percoset. You are now in a living hell and the people that love you feel it too, they worry, they plead with you, you begin to lose weight, you have no concern for your appearance, you don't bath, your hair begins to smell bad, you are in more pain now than ever before, you go from Dr to Dr. hospital to hospital, you beg for something for your pain but no one listens. Can't they understand the pain you're in? They offer you something else for pain, Are they frigging kidding? your pain is far to bad for anything else except Perocet, after all, YOU KNOW they work, whats the matter with everyone? People have changed, And life just lost its meaning. You forget things, you hurt and no one will help you. Then one day you go to bed and your problems end. You are no longer in pain, you are happy and healthy. What about the ones you left behind? you know the ones who love you so very much. what about them? The heartache, the tears, the emptiness. So folks, please, stay away from the narcotics. I know, I know, you got it all under control, you would never abuse your meds, not you. Okay, have it your way. Do me a favor though, get your will and your insurance up to date. I hope this will touch someone's heart and save their life.

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whs66 what’s in the pain pump ?

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@lioness

@jeannie26 I am a retired nurse and have studied holistic meds for a long time herbs, homeopathic meds and am a big believer in going naturel for ailments one for me has been fibromyalgia . thanks for posting hope people listen there are some things that only traditional medicine will help bless you

Jump to this post

There is also a Dr Teals lotion with Epson salts. I use it on my hands all the time. It works well with my osteoarthritis. I also believe it has worked with getting rid of a mucous cyst I have on my finger from the osteoarthritis. Since using the lotion my cyst has disappeared.

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@jeanie26

Hello everyone, it's been awhile since I have been here but I am here today to tell everyone something very important. I also have chronic pain and have for years, I have tried everything but it's still there. But that's not what I am here for today. I am here to plead with everyone to make a good effort to relieve your pain with natural remedies, I know they don't always work but try anything and everything before taking narcotic pain relievers. My sister- in- law and my best friend refused anything natural, she claimed she only got relief with large doses of Percosets and Klonopin for her anxiety. She tried Methadone and Subutex and did very well on both, for a while but they stopped working for her and she was back doctor and hospital hopping to get more of what she said helped. It got so bad that she was asking strangers for a ride to the hospital because she had called EMS so many times she didn't want to call them again. She went to the hospital twice in one day, for a while, then they threatened to have her picked up if she came back again. The hospital refused to give her any narcotics and the Drs in town knew her well and they too refused to give her anything. Once in a while, she would find a Dr. that didn't know her and would give her narcotics, but once he found out she had gone through 90 Percosets in less than a week, he too refused to give her anymore. She spent her bill money every month, ( she was on SSI ) on pills, I did everything I knew to help her, but the drugs had too strong a hold on her. My sister-in-law died last week in her sleep. No matter the cause of death it would be drug-related. She was 58 years old. A wonderful woman that I love still and will miss always. I saw a woman go from 0 to 10 in a matter of weeks. Her addiction cost her her life. Yes, she had chronic pain, but X-rays, MRIs, CT scans, showed arthritis, maybe some Fibromyalgia but nothing that would have caused her as much pain as she claimed to be in. It was her addiction making her pain so bad. Not that she wasn't in pain, because the pain was very real to her, but her need for the pills outweighed everything else. She gave up on herself, the depression and anxiety became so bad she refused to bath or change her clothes, she wouldn't eat, saying she was in too much pain to eat. She wasn't sleeping much, she would wake up every 2 hours and would find it hard to go back to sleep. She lost weight, her complexion changed, She would take the pills and sleep for hours during the days, hence her not sleeping at night. She smoked and would fall asleep with a cig. in her hand and had burned holes in all her clothes, floors and her bed. I tried everything I could, I sought the help of Dr's, DSS, Social workers and even went to the magistrate for advice but no one would help, She was a drug addict and that's all they could see. They overlooked the fact that she was a human being with a huge problem. No one cares when you are an addict. I am telling this story in hopes of saving lives. Yes, chronic pain is bad but so is the addiction. Pain won't kill you but addiction will. And I might want to add, no one starts off with the intentions of being an addict. It happens slowly, you start taking narcotic pain relievers as directed, one day it just doesn't seem to work so you take one extra, ok that helped, then one day you discover your pills are running out before time to refill, what happened to them? you didn't take them, or did you? you certainly wouldn't take all those pills, someone must have stolen some of them. You begin to think about who was in your home that would have taken them, you turn on your friends because they stole from you, how dare they. You are in pain and have nothing to take, damn people, stealing your pills. You get more pills and for a while, they are working fine then it starts all over again. One just isn't enough anymore, call the Dr. but he says he can't give you anymore and the cycle begins. Then one day you don't care about anyone or anything except getting that next Percoset. You are now in a living hell and the people that love you feel it too, they worry, they plead with you, you begin to lose weight, you have no concern for your appearance, you don't bath, your hair begins to smell bad, you are in more pain now than ever before, you go from Dr to Dr. hospital to hospital, you beg for something for your pain but no one listens. Can't they understand the pain you're in? They offer you something else for pain, Are they frigging kidding? your pain is far to bad for anything else except Perocet, after all, YOU KNOW they work, whats the matter with everyone? People have changed, And life just lost its meaning. You forget things, you hurt and no one will help you. Then one day you go to bed and your problems end. You are no longer in pain, you are happy and healthy. What about the ones you left behind? you know the ones who love you so very much. what about them? The heartache, the tears, the emptiness. So folks, please, stay away from the narcotics. I know, I know, you got it all under control, you would never abuse your meds, not you. Okay, have it your way. Do me a favor though, get your will and your insurance up to date. I hope this will touch someone's heart and save their life.

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It is a small pump surgically implanted in my abdomen with a catheter running up my spine that delivers 2.75 mgs. of Dilaudid every 24 hours. Meds delivered in this fashion are 300 times more powerful than those taken orally. I also have a remote control that allows me to deliver .9 mgs. of the same med in 10, ,09 mgs. doses, once an hour over 24 hours. I go to MHealth every 3 to 4 months to have the pump refilled. The pump must be replace about every 5 years. I still have pain but it is very manageable. Before the pump I was taking 252 mgs. of assorted med per day and they had quit working. My life had become unmanageable and unbearable. In these crazy days of people losing access to the drugs they need, it is a great solution. I'm living again and doing many of the activities I couldn't do for several years. Contact Dr. Michael Park at MHealth, which is part of the Fairview and U of MN system. 612-301-1425. Good luck.

REPLY

My 59 year old daughter has Complex Regional Pain Syndrome. I ask her to have her doctor send a request to the Mayo Clinic in Jacksonville, Fl. Instead of have her pain doctor send her request, she asked her primary care doctor (who knows NOTHING about CRPS to send her records to Mayo. As a result her application was rejected. (She has had her meds cut about 1/3 & is in horrific pain. he was afraid that if she asked her pain doctor for the referral, he would no longer treat her!. I told her that she has every right for a second opinion! My question is how do I get her to be seen by a Mayo doctor?

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Hi All!
Just got the attached article in my email.
It talks about migraine meds being used for Fibromyalgia.
https://www.healthline.com/health-news/new-drug-stop-migraine-headaches-before-they-start
Ronnie

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Hi All!
I just got this article, too.
I know we have been talking about marijuana for pain.
You can read this for more info...
Ronnie (GRANDMAr)
https://www.healthline.com/health/should-I-try-medical-marijuana-for-chronic-pain

REPLY
@jeanie26

Hello everyone, it's been awhile since I have been here but I am here today to tell everyone something very important. I also have chronic pain and have for years, I have tried everything but it's still there. But that's not what I am here for today. I am here to plead with everyone to make a good effort to relieve your pain with natural remedies, I know they don't always work but try anything and everything before taking narcotic pain relievers. My sister- in- law and my best friend refused anything natural, she claimed she only got relief with large doses of Percosets and Klonopin for her anxiety. She tried Methadone and Subutex and did very well on both, for a while but they stopped working for her and she was back doctor and hospital hopping to get more of what she said helped. It got so bad that she was asking strangers for a ride to the hospital because she had called EMS so many times she didn't want to call them again. She went to the hospital twice in one day, for a while, then they threatened to have her picked up if she came back again. The hospital refused to give her any narcotics and the Drs in town knew her well and they too refused to give her anything. Once in a while, she would find a Dr. that didn't know her and would give her narcotics, but once he found out she had gone through 90 Percosets in less than a week, he too refused to give her anymore. She spent her bill money every month, ( she was on SSI ) on pills, I did everything I knew to help her, but the drugs had too strong a hold on her. My sister-in-law died last week in her sleep. No matter the cause of death it would be drug-related. She was 58 years old. A wonderful woman that I love still and will miss always. I saw a woman go from 0 to 10 in a matter of weeks. Her addiction cost her her life. Yes, she had chronic pain, but X-rays, MRIs, CT scans, showed arthritis, maybe some Fibromyalgia but nothing that would have caused her as much pain as she claimed to be in. It was her addiction making her pain so bad. Not that she wasn't in pain, because the pain was very real to her, but her need for the pills outweighed everything else. She gave up on herself, the depression and anxiety became so bad she refused to bath or change her clothes, she wouldn't eat, saying she was in too much pain to eat. She wasn't sleeping much, she would wake up every 2 hours and would find it hard to go back to sleep. She lost weight, her complexion changed, She would take the pills and sleep for hours during the days, hence her not sleeping at night. She smoked and would fall asleep with a cig. in her hand and had burned holes in all her clothes, floors and her bed. I tried everything I could, I sought the help of Dr's, DSS, Social workers and even went to the magistrate for advice but no one would help, She was a drug addict and that's all they could see. They overlooked the fact that she was a human being with a huge problem. No one cares when you are an addict. I am telling this story in hopes of saving lives. Yes, chronic pain is bad but so is the addiction. Pain won't kill you but addiction will. And I might want to add, no one starts off with the intentions of being an addict. It happens slowly, you start taking narcotic pain relievers as directed, one day it just doesn't seem to work so you take one extra, ok that helped, then one day you discover your pills are running out before time to refill, what happened to them? you didn't take them, or did you? you certainly wouldn't take all those pills, someone must have stolen some of them. You begin to think about who was in your home that would have taken them, you turn on your friends because they stole from you, how dare they. You are in pain and have nothing to take, damn people, stealing your pills. You get more pills and for a while, they are working fine then it starts all over again. One just isn't enough anymore, call the Dr. but he says he can't give you anymore and the cycle begins. Then one day you don't care about anyone or anything except getting that next Percoset. You are now in a living hell and the people that love you feel it too, they worry, they plead with you, you begin to lose weight, you have no concern for your appearance, you don't bath, your hair begins to smell bad, you are in more pain now than ever before, you go from Dr to Dr. hospital to hospital, you beg for something for your pain but no one listens. Can't they understand the pain you're in? They offer you something else for pain, Are they frigging kidding? your pain is far to bad for anything else except Perocet, after all, YOU KNOW they work, whats the matter with everyone? People have changed, And life just lost its meaning. You forget things, you hurt and no one will help you. Then one day you go to bed and your problems end. You are no longer in pain, you are happy and healthy. What about the ones you left behind? you know the ones who love you so very much. what about them? The heartache, the tears, the emptiness. So folks, please, stay away from the narcotics. I know, I know, you got it all under control, you would never abuse your meds, not you. Okay, have it your way. Do me a favor though, get your will and your insurance up to date. I hope this will touch someone's heart and save their life.

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So ... this is for your back pain ? What all do you have going on that you needed this? Just wondering what kind of Doctor did this for you ?

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