Chronic Pain members - Welcome, please introduce yourself

My name is Tamie. This week was my first time at Mayo's. It's been a dream come true. I have many health issues. I live in pain 24/7. It's been over 20 years dealing with pain.

@medicallew
Welcome! You will find that this is a great place to share without any judgement and a place to get all sorts of information.
Ronnie (GRANDMAr)

Hello Tami (@medicallew)

I'd like to add my welcome to you for posting on Mayo Connect!

If you are comfortable sharing more about your pain problems (type, reason for or location of pain), please do so. We may have other members who would like to correspond with you on Connect. We are not medical professionals and cannot give medical advice but we can certainly encourage and support you.

I look forward to getting to know you better and I look forward to future posts.

Teresa

My name is Stephen, Welcome. I have been a pain patient for more than 20 years. The ultimate solution for me was to have a surgically implanted pain pump. It delivers a very small amount of narcotic to my spine which makes even my worse pain very manageable. I get 2.75 mgs. of dilaudid every 24 hours plus another .9 mgs. that I can deliver via a remote control in 10 doses, over 24 hours, no more than 1 dose per hour. Before that I was taking 252 mg.s of various narcotics which were not giving me effective relief. Any drug delivered directly to the spine via. a pain pump is about 300 times more effective than the same dose taken orally.

Hi Tammie (@medicallew),

I would like to echo Teresa's post. I have dealt with pain for about a dozen years, but have learned a lot of valuable things from a lot of very helpful and supportive folks here at Connect. You will get to hear some experiences that will be very similar to your own if you would like to share some specifics, and if not, you will still get some excellent general info from the folks in this group.

I hope you will become a regular visitor and share your experiences at Mayo.

Gary

Hi Kelsey,
I suffer from scar tissue pressing on a nerve in my finger. This if from 3 previous surgeries. You wouldn’t think s ginger could hurt to bad but there are many nerves involved in fingers. Welcome any suggestions from anyone. Can’t tolerate silicone patches as they burn. No luck with Neurotin or opioids do lots of massaging and exercises, wrapping, heat and constant ice packs. Dr said scar tissue should thin out but not necessarily.
I’m 3 months post op. Thank you

I’m an over 75age female with chronic sciatica and piraformis syndrome. I have taken classes in cognitive therapy. I have learned stretches, tried acupuncture and some chiropractic along with physical therapy . I do use many of the things I’ve learned to help me but still go through debilitating pain most afternoons and evenings. Ha s anyone found relief with CBD oil or medical marijuana?

`Have you seen a Physical Therapist who can teach how to massage scar tissue to make it go away? I've had luck with two large deep scars that way. Also Lyrica is much more effective than regular Neurontin. I had both and regular did nothing Lyrica worked very well. Good luck.

Hi Kathy @kathyschaus -- Welcome to Connect. I have carpal tunnel syndrome which sometimes gives me pain but probably nothing like you are having. I see that you are already doing massaging and exercises, as well as heat and ice packs -- do they help at all? I did find a site that discusses some of techniques for massaging scar tissue that may be helpful.

How To Massage Scar Tissue And Break It Up In Hand And Fingers
-- http://www.lbhandtherapy.com/treatment-for-scar-tissue-massage-scar/

John

Thank you John for your video. Yes it shows some new things I can do! The heat and cool packs (especially ice packs) are very helpful. I carry them in an ice chest wherever I go.I appreciate you. I know the Carpal Tunnel is painful as well.
Kathy