Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
@eddougher
It can be confusing, trying to figure out when conversations take place. I participate in several of them, on various subjects. I had a spinal cord stimulator implant a couple of months ago, for peripheral neuropathy pain in my feet and numbness there and other places. My pain has been reduced from 6-8, down to 1-4, though it does spike sometimes when I do much walking. I think that the stimulator is especially suited to back pain.
There's ongoing discussion about the many treatments out there for chronic pain, and as others have said, you can find discussions specific to your medical issues. Welcome to Connect. I've learned a lot here, and have appreciated the support.
Jim
I went to a relatively small private college and have a BA in music (piano) and Bible. I've made good use of both sides of the degree.
Jim
Jim, How can you say you love DiLaudid ? It is like saying you like pain. Can you please describe in what way do LOVE DiLaudid? Marield65
@hazelblumberg and @jimhd, it's a small world!
@jimhd... I grew up around Geneseo and now live in Rochester (Chili)' I'm not far from Brockport at all. And... I went to college in Fredonia, which is super-close to Jamestown.
@hazelblumberg... the pharmacist I work with the most here in Rochester for my drug polymorphisms is actually from the Utica area. (He and I are co-authoring a book for patients about drug metabolism and polymorphisms.)
It's funny because I go to the Mayo Clinic in Rochester, MN. Almost every doctor I have there has told me that their luggage has been accidentally routed to Rochester, NY instead of Rochester, MN while flying through O'Hare. Unfortunately, our airport here is accustomed to re-routing Mayo Clinic patients who end up here in ROC accidentally due to airline booking errors.
@contentandwell, just be conscientious while using omeprazole and if you start feeling wonky, talk to your doctor. All PPIs are not created equally, and omeprazole is the worse inhibitor of the CYP2C19 enzyme for some reason.
I've read that long-term use of PPIs contributes to bone density issues also. My mom has pre-dementia symptoms, and her neurologist told her to avoid NSAIDS because it also negatively affects dementia.
@marield65, yes, the second set I did via OneOme was a larger number of tests and also much less expensive. Mayo/OneOme have been diligently working on lowering the prices of these tests and making them more widely-available. I assume that the reason that doctors out there are generally unaware of these polymorphisms is because historically, no one gets these tests done due to lack of availability and cost. Hopefully, having institutions like this working to make the tests cheaper and more easily available will then assist with industry knowledge.
Ahhhh... Dilaudid. I hate that drug, and here's why... the enzyme that metabolizes dilaudid in me has a polymorphism that slows-down metabolism. We assume this is why for years, every time I had a surgery and I was given Dilaudid beforehand, it takes me at least six hours longer than normal to wake up, and I'm extremely groggy for a long time after I finally do wake up. (This reaction also happens to my brother, so I assume that he has this enzyme polymorphism, too.)
For my past two surgeries, I asked the hospitals to NOT give it to me telling them why, and they both agreed (a hospital here at home and last October at Mayo). So, I've actually gotten to see the behind-the-scenes stuff like being rolled into the operating room, moving myself onto the very narrow table, the cold temp of the room, watching them put my arms into place, watching them place the mask over my face, etc. This is all stuff that patients do but never recall if given Dilaudid pre-surgery while in pre-op.
@hazelblumberg first class of females at Colgate!?!? Woot!!!!
Kdubois:Marield65 here. Thanks for getting back so quickly. How would I get in touch with One Ome? Do they test you for specific meds? Or what is in the med.Thanks Marie
Hi @marield65, at this point, only doctors can place orders with OneOme. I apologize if you mentioned it already, but which state do you live in? I want to ensure that OneOme has been certified by the state in which you live. (Each PGx testing company needs to be certified by each of state to be able to provide mail order kits to residents of the state, or the doctor ordering needs to be practicing in a state that has certified the PGx company if the patient lives in an uncertified state.)
Hi Kdubois, this is Marie from Rhode Island. Can you tell me if this state does it?