Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

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You are enduring a lot. Hope it gets better. I took a meditation course. It has helped me

Liked by Lisa Lucier

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@johnbroward

I’m not very good on technology so bear with me. I’ve had sciatic nerve pain for about 25 -30 years but the last 10 has been getting worse to unbearable for me anyway.so I had stenosis and scoliosis mixed with degenerative disease and finally had surgery 13 days ago, cleaned up a lot of blockage and fused 7 vertebrae.so far I can tell most of the nerve pain is gone. A new pain I’m not sure if it’s from the screws into the hip bone on both sides but when it hits me it about knocks me over. Haven’t fallen yet but that’s my biggest fear. Any way I was wondering how long all of this surgery pain is supposed to last? I’m worried that the amount of narcotics I’ve been on for so long is making it not be enough. I have been on 50 mg fentynal patches and 10/375 hydrocodone for about 4 yrs from my family doctor and now traveled to Mayo Clinic for surgery, so different doctors 700 miles apart. Any input would be welcome.

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Changing meds and trying to move when uou can may help. I know its not much. Meditation has helped me greatly reduce my pain meds

Liked by Lisa Lucier

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@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

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@binder
Thank you for sharing you story. I hope you are able to continue gardening and feel better. I have been dealing with back issues for the past 18 months and it sucks.

Sent from Yahoo Mail on Android

Liked by Lisa Lucier

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@johnbroward

I’m not very good on technology so bear with me. I’ve had sciatic nerve pain for about 25 -30 years but the last 10 has been getting worse to unbearable for me anyway.so I had stenosis and scoliosis mixed with degenerative disease and finally had surgery 13 days ago, cleaned up a lot of blockage and fused 7 vertebrae.so far I can tell most of the nerve pain is gone. A new pain I’m not sure if it’s from the screws into the hip bone on both sides but when it hits me it about knocks me over. Haven’t fallen yet but that’s my biggest fear. Any way I was wondering how long all of this surgery pain is supposed to last? I’m worried that the amount of narcotics I’ve been on for so long is making it not be enough. I have been on 50 mg fentynal patches and 10/375 hydrocodone for about 4 yrs from my family doctor and now traveled to Mayo Clinic for surgery, so different doctors 700 miles apart. Any input would be welcome.

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I have had 3 back surgeries over my 86 years and two hip replacements. Now there is a nerve in the thoracic area causing lots of pain. I cannot take any heavy meds and am taking ibuprofen 3x a day for 12 days and will see what happens. I know the best thing to do is keep moving, otherwise I would be in big trouble, pain or no pain. Surgery does take a long time to heal. I do have many of the things you mentioned. Do not give up.

Liked by Lisa Lucier

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@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

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I am learning how to live with this and especially if it eases up i will not do anything stupid. In my earlier days I thought I could do everything, well now I pay a price for all of this. If I ever go back to gardening it will be on a small scale. Thanks of caring.

Liked by Lisa Lucier

REPLY
@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Gail, I don’t know if you will find this as it’s a response to your posts 10 month’s ago. I just joined yesterday & this is my 1st time on a board. I had Stage IV bone cancer for over 12 years before they found it. I went to at least 8 different doctors, 2 PA’s, a Naturopath, & a few RN’s. I almost think they have a unwritten code that is the 1st few didn’t find anything alarming don’t rock the boat as it might led to a lawsuit. The one who took a closer look at a bone that wasn’t healing after 3 years-with an irregularity-was a close family member of a friend. He handed it to an oncologist. I guessed when I told them ALL my mom had bone cancer following a thyroidectomy -at least ONE of them would consult properly. Yes, they all dismissed the pain to osteoarthritis. I think it’s in 95% of my body. I just turned 60, worked so hard & long only to fully realize life is short. I long to try the non-‘high’ marijuana. I can’t understand how an easy growing “weed” can cost so much & insurance doesn’t cover it. I guess it’s all about the money/taxes…I’m hoping to find support & information here. Maybe if we can get some stories into women’s magazines so that ‘growing your own’ for pain tincture’s will be as common as Relay for Life. Maybe my insurance will cover the genetic testing. Thank-you for your input~LillyAnne

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@bblinder

I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

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Barbara @bblinder

Do you have houseplants? I have quite a few. We have a small cellar where winter over geraniums and other plants that I have on the patio or under the willow tree during the warm weather. It’s nice to have blooms all winter. I’d have more in the house, but my wife isn’t as excited about having plants on every sill as I am. Houseplants take less energy and physical labor than gardens. They’re my winter garden, so I have something to tend to when everything outside is under a foot of snow.

Jim

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@johnbroward

My wife is seeing a doctor Tuesday for what might be sciatic nerve pain. I hope the doctor can help her.

Have you ever talked with a pharmacist or another doctor about your medications, about how much you take and how long you’ve been taking it? A second opinion might be a good idea. Something to think about.

Jim

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@briansr

Hi 19lin. I’m to the point that I can’t take this much pain. Surgery or
pills are a waste of time. I’ve always said , no offense to people that are
suffering with cancer, but after 33 yrs of this I’m backing in to a corner
with no way out. This is like cancer but no dr can tell me how long I have.
I’m now looking into marijuana use in my state. The govener is
decriminalized as of Jan. 2017 and there is a large push to make it legal
for medical use. I want to try it but if my dr tested me I will lose him,
we’ve had that discussion. I just don’t know if it would help, so I’ll wait
and see what happens in November when the people in this state will be
given a chance to vote for or against medical use. Both bills won’t make it
until Jan. The federal government. has all the the Drs scared because of
the misuse of narcotics. To many people pretend to be in pain just to sell
there medicine, I’ve seen it add 4 to 500 to there monthly income. This
puts narcotics in the wrong hands. Excuse me for rambling I’m just lost and
don’t know which way to turn. briansr

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Sharon I’m with you I have been in 50 mg fentynol for about five years but 2 weeks ago finally had back surgery so am now in a withdrawal program in a week I go back to25 for two weeks then 12 mg for 2 weeks then off, also cutting back on oxycodone at the same time , wish me luck I’m gonna need it cuz I’m still in a lot of pain, had s-1 thru t-11 fused so am sore and worried it’s to fast a reduction

Liked by Lisa Lucier

REPLY
@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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I have peripheral neuropathy at pain level 6-7 24/7. I am on Gabapintin 3600mg/24 plus I take 2 8mg Subutex/24. I have over the past 5 years list my short term memory almost completely.. help!

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@johnbroward

I’m not very good on technology so bear with me. I’ve had sciatic nerve pain for about 25 -30 years but the last 10 has been getting worse to unbearable for me anyway.so I had stenosis and scoliosis mixed with degenerative disease and finally had surgery 13 days ago, cleaned up a lot of blockage and fused 7 vertebrae.so far I can tell most of the nerve pain is gone. A new pain I’m not sure if it’s from the screws into the hip bone on both sides but when it hits me it about knocks me over. Haven’t fallen yet but that’s my biggest fear. Any way I was wondering how long all of this surgery pain is supposed to last? I’m worried that the amount of narcotics I’ve been on for so long is making it not be enough. I have been on 50 mg fentynal patches and 10/375 hydrocodone for about 4 yrs from my family doctor and now traveled to Mayo Clinic for surgery, so different doctors 700 miles apart. Any input would be welcome.

Jump to this post

Hi John. I’m new here, but I’ve lived with some of the pain you have for a long time. I’ve had scoliosis & degenerative disk disease for over 40 years. I’ve had Stage IV bone cancer for over 12 years. It’s in some organs too -but I think that’s over kill so I tell it to “bug off” (in much stronger words). Anyway I was just diagnosed last year & tried a lot of different things. I take 5/325 hydrocodone in the morning if everything is singing too loudly & gets severely off tune. I have to watch it because I can wait too long then it’s hard or impossible to overcome the pain. If I have to leave the house I never take a chance to see if I can go most the day without. I want to take as few pills as possible. One thing I found that helps tremendously is to take an Ibuprofen & one acetaminophen ONE hour BEFORE the hydrocodone wears off. Mine lasts roughly 6-7 hours.
I’ve found natural things help me a lot. If you don’t like that route please excuse me. They really work MUCH better than not. At my Naturopathic Doctor’s instruction I cut out any gluten. After 3 weeks I noticed quite a difference in pain, edema and my walking abilities. I can now get across the room with a cane instead of a walker. If your doctor permits some easy exercises help me TREMENDOUSLY. I swear by Miranda Esmonde-White’s Classical Stretch. It’s on PBS TV 3 times a day M-F. Liquid Magnesium helps too. I can’t sleep without it- unimaginable leg cramps from EVERY muscle of both legs. Just have to be glad I have my legs. I have 2 broken bones they can’t fix due to the cancer & severe arthritis. Anything to help the lymph glandes move is GREAT; hydrotherapy, exercise massage… I like to let the meds do their job then help to flush them out & rest. There’s a few other things that help, let me know if you are interested.

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@jimhd

@johnbroward

My wife is seeing a doctor Tuesday for what might be sciatic nerve pain. I hope the doctor can help her.

Have you ever talked with a pharmacist or another doctor about your medications, about how much you take and how long you’ve been taking it? A second opinion might be a good idea. Something to think about.

Jim

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Does she do the sciatic stretch? One is putting your foot on a firm chair, or pole, than put your elbow on your knee and rock forward then back slowly and gently a couple times. This is an elementary move, but since I’ve also had this over 40 years I’ve only met 2 people who have heard about it. Depending on the individual, starting most exercise with heat; hot packs, infra red..then ending them with a little ice (not always the ice) really helps. Just like stretching b4 walking. Another good one is the figure eight with your toe/leg, tracing it along the floor with your toe moving a straight leg in a gradually widening width as you let the hip unlock with gentle, slow movements. Let me know if it’s too much-I’m too old to get offended! Classical Stretch has some great ones on myofascial release that might help. Maybe print some off to show the doctor…Best Wishes. LillyAnne

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Hello LillyAnne, @lillyanne

What a wonderful proactive approach you have taken to some very difficult diagnoses and the chronic pain that accompanies them. Thank you for sharing these with the rest of us. It sounds like you use a lot of different methods for dealing with pain. You have given us all some “food for thought”!

Teresa

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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@charlton Welcome to the club. I think short term memory loss may be the most dis-heartening thing about pain and the meds we take. I gave up on Gaba after a lengthy trial. Still had most of the pain, and much memory loss. Still have the neuro, and am still losing a bit of memory, but not as much. My cerebral cortex is filling up with dead protein deposit, but I am still able to do most things but drive. I quit that when I could not tell where my feet were. I have gone back to Super Tylenol. Helps a little with the pain.

Liked by Lisa Lucier

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I took myself off all painkillers and tried hypnotherapy and it worked for me down to leval 2 pain which is bearable

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