Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@ocogram

I have chronic daily migraine headaches, some days worse than others. I get out when I can, but miss many activities due to the pain. I have tried so many different treatments, including alternative treatments. I see a headache specialist, and we keep searching for an answer. Is there a separate group for headaches? I am new to this site.

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@ocogram,

Thank you for introducing yourself to the Chronic Pain group. You asked if there is a specific group for headaches. While there is not a specific group for headaches, there are some specific discussions for headaches. If you click on the following links, you will be brought to a discussion about headaches where you can meet other members experiencing things similar to yourself. You can find them here:

– Chronic severe nocturnal headaches, https://connect.mayoclinic.org/discussion/chronic-severe-nocturnal-hypnic-headaches/
– New daily Persistent Headaches, https://connect.mayoclinic.org/discussion/new-daily-persistent-headache/

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@ocogram

I have chronic daily migraine headaches, some days worse than others. I get out when I can, but miss many activities due to the pain. I have tried so many different treatments, including alternative treatments. I see a headache specialist, and we keep searching for an answer. Is there a separate group for headaches? I am new to this site.

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I can’t answer your question about a group for headaches civically because I myself am new to this website but I also have daily migraines and have been looking for solutions for the pain and I found something to be very helpful on YouTube. I was on YouTube a few nights ago and typed in guided meditation for pain and accidentally found a self hypnosis video for pain management and it worked. https://youtu.be/s_SMIouQGps

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@ocogram

I have chronic daily migraine headaches, some days worse than others. I get out when I can, but miss many activities due to the pain. I have tried so many different treatments, including alternative treatments. I see a headache specialist, and we keep searching for an answer. Is there a separate group for headaches? I am new to this site.

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, and not sure how exactly it works because I was asleep within 10 minutes of hitting play… LOL but I’m going to listen to it again tonight

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Hello everyone. I just found this discussion group and look forward to following. My name is Naida and I am 71 years old living in Washington State. Have been retired for about 3 years and enjoying it fully. My hobbies are quilting, (only by machine) and reading. Love to listen to recorded books about history, suspense, drama and science fiction.
I have suffered from fibromyalgia for many years, but seems like the flairs are more frequent these days. Also have degenerative arthritis and siatica pain. Some days are good and some days are just for sleeping. I also have undiaginosed caused issue with shaking, balance and memory issues.
Have been looking for a group who is positive and upbeat while dealing with issues like mine. So many groups only want to complain and moan about all their pains and woe is me. People like that just drag me down while I daily struggle to not fall into the pit of depression myself. Thanks for this place to share with others with positive attitudes.

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@naidab

Hello everyone. I just found this discussion group and look forward to following. My name is Naida and I am 71 years old living in Washington State. Have been retired for about 3 years and enjoying it fully. My hobbies are quilting, (only by machine) and reading. Love to listen to recorded books about history, suspense, drama and science fiction.
I have suffered from fibromyalgia for many years, but seems like the flairs are more frequent these days. Also have degenerative arthritis and siatica pain. Some days are good and some days are just for sleeping. I also have undiaginosed caused issue with shaking, balance and memory issues.
Have been looking for a group who is positive and upbeat while dealing with issues like mine. So many groups only want to complain and moan about all their pains and woe is me. People like that just drag me down while I daily struggle to not fall into the pit of depression myself. Thanks for this place to share with others with positive attitudes.

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Hello @naidab, welcome to Mayo Connect! We are glad you found us. Connect is a great place to ask questions and learn what other Connect members with similar health concerns are doing for treatment. If you don’t mind my asking, have you discussed your other new symptoms with your doctor? Also, are you taking any medications for your pain?

I am tagging a few other Connect members who have talked about fibromyalgia to see if they can offer any suggestions. @sandytoes14, and @kdubois, do you have any suggestions for @naidab?

You might like to read the following discussion started by Kelly (@kdubois):

Chronic Pain and Fibromyalgia – alternatives to medications?
https://connect.mayoclinic.org/discussion/chronic-pain-and-fibromyalgia-alternatives-to-medications/bookmark/?ajax_hook=action&_wpnonce=d9d320272d
John

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@naidab

Hello everyone. I just found this discussion group and look forward to following. My name is Naida and I am 71 years old living in Washington State. Have been retired for about 3 years and enjoying it fully. My hobbies are quilting, (only by machine) and reading. Love to listen to recorded books about history, suspense, drama and science fiction.
I have suffered from fibromyalgia for many years, but seems like the flairs are more frequent these days. Also have degenerative arthritis and siatica pain. Some days are good and some days are just for sleeping. I also have undiaginosed caused issue with shaking, balance and memory issues.
Have been looking for a group who is positive and upbeat while dealing with issues like mine. So many groups only want to complain and moan about all their pains and woe is me. People like that just drag me down while I daily struggle to not fall into the pit of depression myself. Thanks for this place to share with others with positive attitudes.

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Welcome to Connect, @naidab

We can always use the encouragement of others who are functioning positively while dealing with chronic pain. For many, having pain that can’t be treated and never stops is pretty discouraging. I appreciate your words.

How is your fibromyalgia treated? Pain management, both with medication and understanding the psychology of pain control work well together.

Wherever we are, there is much to be thankful for.

Jim

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@artscaping

I have been disheartened by the posts about physicians/surgeons/dentists who appear to be less than caring. My experience has been totally different. As my structural issues became more critical and CMPS and SFN started impacting pain levels and quality of life….i received nothing but genuine support and understanding through all the surgeries and recoveries with only one exception. I sort of think that when our physicians realize that they can’t totally “fix us” they become saddened by the fact the contemporary medicine with all of the technology and pharmaceutical options just doesn’t do the whole job. We age, we fall, we risk, we cope and we struggle. Recently my neurologist simply said….”I know your are suffering and I would give anything to be able to help you more”. My orthopedic surgeon devoted his private time to coming to my room in the evening to just chat and provide compassionate care. His words when there was nothing more that he could do that would help, “I am so sorry, Chris”, followed by a warm hug and his cell phone # for “just in case”. He also made sure my favorite wine was on the tray at dinner time after one of the surgeries. I check in every 6 months with my pcp and that is always a welcoming and supportive experience. I am always open and honest about my choice of alternative therapies and the rest of the specialist team are accepting and interested in the efficacy of those options. I don’t think I could ask for anything more.

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Hello @blindeyepug

As I was looking through the posts on chronic pain, I was thinking about you as it has been awhile since you have posted. I hope that all is going well for you.

We would love to hear from you – in the past, your posts have been insightful and helpful!

Teresa

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@naidab

Hello everyone. I just found this discussion group and look forward to following. My name is Naida and I am 71 years old living in Washington State. Have been retired for about 3 years and enjoying it fully. My hobbies are quilting, (only by machine) and reading. Love to listen to recorded books about history, suspense, drama and science fiction.
I have suffered from fibromyalgia for many years, but seems like the flairs are more frequent these days. Also have degenerative arthritis and siatica pain. Some days are good and some days are just for sleeping. I also have undiaginosed caused issue with shaking, balance and memory issues.
Have been looking for a group who is positive and upbeat while dealing with issues like mine. So many groups only want to complain and moan about all their pains and woe is me. People like that just drag me down while I daily struggle to not fall into the pit of depression myself. Thanks for this place to share with others with positive attitudes.

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Hello @naidab,

I’d like to add my welcome to John & Jim’s. In addition to John sharing a fibromyalgia conversation with you, I’d like to add a conversation of members talking about sciatica pain, https://connect.mayoclinic.org/discussion/sciatica-pain/.

If you are replying by email, I encourage you to click on VIEW & REPLY at the bottom of the notification so that you can see the full conversation in the order of responses. I also encourage you to check out the links provided as they lead you to discussions centered around some of the diagnoses that you have shared with the group. I think you will find a welcoming and upbeat group of members to get to know and we are glad to welcome your upbeat spirit to the groups as well!

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I’ve been on this before, also hip knee etc. I have chronic pain from multiple surgeries on right knee because of infection. Now have fused leg akso hip dysplasia hip fracture back problems. Anyway I just found site for the American Chronic Pain Association. Didnt even know one existed. Just got an email with good information. You may want to check it out. Hang in there!

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@naidab

Hello everyone. I just found this discussion group and look forward to following. My name is Naida and I am 71 years old living in Washington State. Have been retired for about 3 years and enjoying it fully. My hobbies are quilting, (only by machine) and reading. Love to listen to recorded books about history, suspense, drama and science fiction.
I have suffered from fibromyalgia for many years, but seems like the flairs are more frequent these days. Also have degenerative arthritis and siatica pain. Some days are good and some days are just for sleeping. I also have undiaginosed caused issue with shaking, balance and memory issues.
Have been looking for a group who is positive and upbeat while dealing with issues like mine. So many groups only want to complain and moan about all their pains and woe is me. People like that just drag me down while I daily struggle to not fall into the pit of depression myself. Thanks for this place to share with others with positive attitudes.

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@naidab Welcome! You and I seem to be “cut from the same cloth” as the saying goes. I love to read. I think I was born with a book in my hand! One of my earliest postings here on Connect stated how I like Connect and that it is different from other groups that seems to moan and groan. The downers. Not here on Connect! Now we do our fair share of moaning and groaning, but we also look for ways that others deal with things. One of my conditions is fibromyalgia. I was diagnosed 6 years ago. My present drug therapy for fibro is Cymbalta, Baclofen and Lyrica. Like you I have flares. Mine seem to occur from a change in weather and also changes in activity and stress. I could go on and on about how a seemingly mild increase in activity can send me to bed or the recliner for many days.
naidab, I wonder if you would be willing to share with us the medicines you take. Sometimes we will have a Mentor or fellow member that has talked about side effects from their prescribed medicines. In fact, I had balance and memory issues from taking gabapentin at a dosage of 1800 mg daily. I take Lyrica in its place with no ill effects.
Again, welcome to Connect. I look forward to getting to know you.
Jen

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@naidab

Hello everyone. I just found this discussion group and look forward to following. My name is Naida and I am 71 years old living in Washington State. Have been retired for about 3 years and enjoying it fully. My hobbies are quilting, (only by machine) and reading. Love to listen to recorded books about history, suspense, drama and science fiction.
I have suffered from fibromyalgia for many years, but seems like the flairs are more frequent these days. Also have degenerative arthritis and siatica pain. Some days are good and some days are just for sleeping. I also have undiaginosed caused issue with shaking, balance and memory issues.
Have been looking for a group who is positive and upbeat while dealing with issues like mine. So many groups only want to complain and moan about all their pains and woe is me. People like that just drag me down while I daily struggle to not fall into the pit of depression myself. Thanks for this place to share with others with positive attitudes.

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Hello @naidab and let me add my welcome to you! We are glad that you have joined Mayo Connect. It is a great place to find encouragement and support for some of the challenges we all face with physical problems.

As @sandytoes mentioned, I also love to read and listen to audio books, I’m listening to one book now called the Hero of the Empire, about the early years of Winston Churchill and the Boer War in South Africa, very interesting.

You mentioned having an undiagnosed issue with balance, shaking and memory issues. This struck a chord with me because I have Parkinson’s. Mine is not a typical case of Parkinson’s in that I don’t have the tremors that is usually associated with this diagnosis, but I do have a lot of pain from constriction of muscles – very uncomfortable! If you are comfortable sharing more about yourself, we would be interested in knowing what kind of doctors you have seen for this undiagnosed condition. What type of tests have you had?

We look forward to getting to know you better through your posts. Will you keep in touch with us?

Teresa

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@lynettegable

I’ve been on this before, also hip knee etc. I have chronic pain from multiple surgeries on right knee because of infection. Now have fused leg akso hip dysplasia hip fracture back problems. Anyway I just found site for the American Chronic Pain Association. Didnt even know one existed. Just got an email with good information. You may want to check it out. Hang in there!

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Has any one had a horrific effect with the movantik, opiod meds to help your stomach move.
I had ,N still have the most Horrible headache and my stomach is pooched out.
Will b going to the Doc n a box..just wondering?

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Hi.,I’m Lisa, thanks for letting me join..n

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@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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That is what aggravates me, u know your pain, not them.
I have been fortunate, praise,,God.
With an understanding Dr.
I surely hope you get what u need to be able to, motivate..♡

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I am Luana Stowe rehabilitation from back surgery and addiction to oxycodone

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