Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@oldkarl

@parus So true, friend. At one point I was hurting very much in my heart. I made an appointment with a highly renowned cardiologist. He called me “Psycho” in the meeting. Then he stormed out of the door. He never even left a record that I had approached that research and specialty facility in Oregon, where was a supervisor, for help. PPHHHHTTTT!

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AMAZING! I hope it wasn’t OHSU, but if it was, I hope that psycho is no longer there.

Jim

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Got quite a chuckle from your post @parus It is too bad that there are doctors out there that are not in the right job! I have heard several stories lately about questionable bedside manner and telling people the pain is all in their head.

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@parus

@oldkarl Did you get to thank the jerk for the compliment. I once went to a a pain clinic and was banned from there for asking an arrogant doctor if he was familiar with the Hippocratic Oath and that I felt he was harming me by negating my pain-called me a headcase. His face turned red as the veins in his neck bulged. He stormed out slamming the door. Guess the truth hurt. Later learned that pain clinic was closed down. I continue to gird my armour on…
Not drug seeking but I am in search of answers.
Advice to others-do not use the Hippocratic oath approach.

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Yes. It works for me. Also meditation

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@lyssia

Got quite a chuckle from your post @parus It is too bad that there are doctors out there that are not in the right job! I have heard several stories lately about questionable bedside manner and telling people the pain is all in their head.

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@lyssia – I’m grateful for a neurologist who doesn’t just blow me off, but listens, and is doing tests that indicate that he wants to know what’s going on. It took me awhile to get him to communicate with me, and it was worth the effort. He’s a naturally shy, very quiet man, and so am I, which isn’t a good combination for making productive conversation. I guess I’ve been persistent enough, and asked enough questions to make him notice me.

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@parus

@oldkarl Did you get to thank the jerk for the compliment. I once went to a a pain clinic and was banned from there for asking an arrogant doctor if he was familiar with the Hippocratic Oath and that I felt he was harming me by negating my pain-called me a headcase. His face turned red as the veins in his neck bulged. He stormed out slamming the door. Guess the truth hurt. Later learned that pain clinic was closed down. I continue to gird my armour on…
Not drug seeking but I am in search of answers.
Advice to others-do not use the Hippocratic oath approach.

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@freakers @ed32 – I’m not interested in hypnosis, but I do know that meditation and mindfulness exercises help me. My meditation is a meditating on thoughts from the Bible, and a meditative prayer. Some call it contemplative prayer.

Jim

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@jimhd The best way to get attention with some doc’s. I too have a neurologist whom is soft spoken, gentle and kind. He is not much into prescribing meds. He is more into treating the body as a whole. I actually look forward to appointments with this doc.

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@lyssia

Got quite a chuckle from your post @parus It is too bad that there are doctors out there that are not in the right job! I have heard several stories lately about questionable bedside manner and telling people the pain is all in their head.

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Hello @lyssia @parus

Yes, I know what you both are referring to. Before my diagnosis with Parkinson’s (PD) I had several neurologists tell me that I was “stressed,” etc. and nothing was really wrong from a neurological standpoint. Finally, one doc recommended a psych consult. So, I thought, why not? I had recently been divorced and was in a career change, etc., both of my parents had been ill – so maybe I was too stressed.

So, I saw the psychiatrist who put me through the battery of tests and finally concluded that I didn’t have a psychiatric problem (he did compliment me on how well I handled some of life’s changes!) but he said that I did have signs of a neurological problem and suggested that I keep looking for an answer from a neurologist. Finally, a number of years later the PD diagnosis came about.

Teresa

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@oldkarl

@parus So true, friend. At one point I was hurting very much in my heart. I made an appointment with a highly renowned cardiologist. He called me “Psycho” in the meeting. Then he stormed out of the door. He never even left a record that I had approached that research and specialty facility in Oregon, where was a supervisor, for help. PPHHHHTTTT!

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It was, but I think he has retired with a few million $.

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@parus

@jimhd The best way to get attention with some doc’s. I too have a neurologist whom is soft spoken, gentle and kind. He is not much into prescribing meds. He is more into treating the body as a whole. I actually look forward to appointments with this doc.

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Where do you live? My neurologist moved and I’m looking for a new one.

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@oldkarl

@parus So true, friend. At one point I was hurting very much in my heart. I made an appointment with a highly renowned cardiologist. He called me “Psycho” in the meeting. Then he stormed out of the door. He never even left a record that I had approached that research and specialty facility in Oregon, where was a supervisor, for help. PPHHHHTTTT!

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What is OHSU?

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@kibwezi Good ?. Ohio State university…a guess

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I live in the anal orifice of the Hoosier State…doubtful my info would help @kibwezi there are good doctors——somewhere. My PCP is a waste of my time.

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Oregon Health and Science University. In Portland, but soon to open a branch in Salem, With Salem General Hospital.

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Salem? Scary…a witch hunt???

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@parus

@oldkarl Did you get to thank the jerk for the compliment. I once went to a a pain clinic and was banned from there for asking an arrogant doctor if he was familiar with the Hippocratic Oath and that I felt he was harming me by negating my pain-called me a headcase. His face turned red as the veins in his neck bulged. He stormed out slamming the door. Guess the truth hurt. Later learned that pain clinic was closed down. I continue to gird my armour on…
Not drug seeking but I am in search of answers.
Advice to others-do not use the Hippocratic oath approach.

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Sorryto hear about your experience. Even higly rated institutions and Doctors have their problems. A pain Doctor at Stanford told me they were going to do one more test and if that did not reveal anything I would have to agree the problem was in my head
I had a very bad respiratory infection that I could not get rid of
It left me with dyspnea to the point I could not walk up a flight of stairs and immense chest and back pain.. They ran all the same respiratory tests that my local hospital had done. Though I asked they not do that and look for an unusual cause. The respiratory Dr. said he would do that
He did not and after many months of seeing him he.had no suggestions other than I think it might be coronary. I had seen their cardiology department before. After a stress test tbey said I needed two stents. They did these and immediately after the Dr. said do you feel better now. I did not
The next day they did an endoscopy and found nothing.
I was ready to give up hope and was nearly suicidal.
I decided to go to Mayo Clinic. Within 2 days and several tests that Stanford would have taken months to do they discovered the problems. I neede a previous stent repaired.in the ADL..I also have a whole in my heart. After replacing the stent Dr. Arsenjani suspected I had achalesia. I returned to Mayo.and the did a pressure test that revealed I had stage three achalesia with spasms and ten times the normal pressure in my esophagus. This accounted for the severe pain. I have had 2 surgeries at.Mayo and my pain was significantly reduced. I am still having problems with the esophogus but my dyspnea is gone. Unfortunately it is very expensive for me to travel to Mayo Clinic in Phoenix. I.am trying to resolve the remainig problem with Stanford since June. So far i have not gotten any better and have pain and breathing and swallowing problems. I am returning to Mayo in November. Stanford was on the wrong trac initially. They should have detected both the heartand achalesia in the tests they ran. Though they never did the required pressure test.
Previously I had a respiratory Doctor tell me it was anxiety
If you are in pain.there is areason.
..Trust yourself. Mayo Clinicnic and Doctor Arsenjani saved my life.
I had been to the emergency room several times before due to the pain. They always said follow up with a Doctor
Even had one Dr. tell me there was nothing wrong at the hospital in a very curt manner.

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