Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Anybody with Chronic pain should consider doing the Ketamine Therapy. That is where they put an IV in your arm. For me they recommended 4 hours sessions. The first 2 hours and the next day another 2 hour, but they doubled the dosage. I have had severe pain from neuropathy since 2008. I had this done about 2 weeks ago and the pain is considerably less. I am also taking trojans that is a compound with Ketamine in it. I think it is also helping. It is very expensive and insurance does not cover at this point because I think it is to new. Look it up.. I think it was worth it. I have been doing so much more since my treatments. Aggressively looking for a job and etc.

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Hello @freakers and let me add my welcome to Mayo Connect. As John wrote, I also encourage you to share your story with us. In this online community we have some incredibly strong people who have found very creative ways of dealing with chronic pain. They can encourage you in your search for answers as well as offer you support in knowing that you are not alone in this journey.

Please share more information with us, as you are comfortable doing so. For example, how long has your pain condition been a problem? What meds, or treatments (like physical therapy or exercise) has been tried? Any surgeries? We look forward to getting to know you better!

Teresa

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I am 86 years old and pretty healthy. 33 years ago I had a laminectomy. 1991 had a hip replacement. 1999 had another hip done. 2005 had a spinal fusion and then in 2009 had a second spinal fusion one level above. I have severe scoliosis, spinal stenosis, in other words, my back is a mess. I have always dealt with this. About one year ago the pain started on my right side and across my back. MRI is good of both back and hips. Went to a pain management doctor, had another MRI and it is the thoracic area where a nerve is causing all the problems. Injections did not help. Therapy did not help. I will not go on heavy drugs so now I am taking 2 ibuprofen 3x a day. At night I might take a tramadol, 50 mgs. I am hoping the pain eases up a little, if not who knows..I am a gardener but it is becoming difficult to bend. So this is my story. Thanks for listening.

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@bblinder

I am a 86 year old female. Basically I am healthy except for back pain. I had 3 back surgeries, one 33 years ago and a spinal fusion in 2005 and 2006. I also have two hip replacements, one 12 years old and one 30 years old. I have non stop pain coming from the thoracic area and was told my back has too many problems to do surgery again. I am seeing a pain management doctor who has given me injections, but none seem to work. Therapy has not helped either. Now I take 2 ibuprofen 3x a day and at night add tramadol 50 mgs. I would love feedback from others.

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Hello, @bblinder . I’m Jim, retired, 67, married for 45 years, and have raised two children, whom each has a daughter. I’m the only one in my family of 5 siblings who has escaped back problems. I caused my own when I fell from a ladder a few years ago, but I’m fortunate that I have pain from it only occasionally.

Two Ibuprofen 3x a day can’t be giving you much relief. Your pain doctor could be prescribing any number of pain medications that would be much more effective. I would suggest that you be firm in speaking with him, and tell him that you need stronger medication.

It’s too late for me to write more tonight. I’ll be around.

Jim

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@bblinder

I am a 86 year old female. Basically I am healthy except for back pain. I had 3 back surgeries, one 33 years ago and a spinal fusion in 2005 and 2006. I also have two hip replacements, one 12 years old and one 30 years old. I have non stop pain coming from the thoracic area and was told my back has too many problems to do surgery again. I am seeing a pain management doctor who has given me injections, but none seem to work. Therapy has not helped either. Now I take 2 ibuprofen 3x a day and at night add tramadol 50 mgs. I would love feedback from others.

Jump to this post

Thanks for your info, I cannot take medication well and this is the only med that does not hurt me.

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@hopeful33250

Hello @freakers and let me add my welcome to Mayo Connect. As John wrote, I also encourage you to share your story with us. In this online community we have some incredibly strong people who have found very creative ways of dealing with chronic pain. They can encourage you in your search for answers as well as offer you support in knowing that you are not alone in this journey.

Please share more information with us, as you are comfortable doing so. For example, how long has your pain condition been a problem? What meds, or treatments (like physical therapy or exercise) has been tried? Any surgeries? We look forward to getting to know you better!

Teresa

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Thank you for your concern. Barbara

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@mikween

Anybody with Chronic pain should consider doing the Ketamine Therapy. That is where they put an IV in your arm. For me they recommended 4 hours sessions. The first 2 hours and the next day another 2 hour, but they doubled the dosage. I have had severe pain from neuropathy since 2008. I had this done about 2 weeks ago and the pain is considerably less. I am also taking trojans that is a compound with Ketamine in it. I think it is also helping. It is very expensive and insurance does not cover at this point because I think it is to new. Look it up.. I think it was worth it. I have been doing so much more since my treatments. Aggressively looking for a job and etc.

Jump to this post

@mikween

Thanks for the information. I’m going to add it to my list of questions for my appointment with the neurologist next week.

Jim

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@freakers

Hi I still use my school nickname of FreaKers I live in the UK & also like to spend time in Ireland and have an interesting story re my chronic pain situation which I will be posting

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Hi @freakers . I like the name. Welcome to the pain club. My primary pain is from idiopathic peripheral neuropathy. I’m a curious person – some might call me nosy – so you’ve got me wondering about the source of your pain.

Jim

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@mikween

Anybody with Chronic pain should consider doing the Ketamine Therapy. That is where they put an IV in your arm. For me they recommended 4 hours sessions. The first 2 hours and the next day another 2 hour, but they doubled the dosage. I have had severe pain from neuropathy since 2008. I had this done about 2 weeks ago and the pain is considerably less. I am also taking trojans that is a compound with Ketamine in it. I think it is also helping. It is very expensive and insurance does not cover at this point because I think it is to new. Look it up.. I think it was worth it. I have been doing so much more since my treatments. Aggressively looking for a job and etc.

Jump to this post

@mikween and @jimhd I was at a Minnesota Neuropathy Association meeting earlier this year where they brought in a doctor who was/is involved with bringing medical cannabis into the state. He has one of only 2 compounding pharmacies in Minnesota, Mayo Clinic Rochester is the other one. One of his topics was using ketamine in a compound for external use for neuropathy pain treatments. He said they also mix THC and CBD into creams that you can apply to areas with pain.

John

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@freakers

Hi I still use my school nickname of FreaKers I live in the UK & also like to spend time in Ireland and have an interesting story re my chronic pain situation which I will be posting

Jump to this post

Hi Jim my pain is in the feet before the hypnotherapy was total feet but now what Low leval pain is in the sole of the feet but even that is easing a bit ,would recommend to all peops to at least try hypnotherapy but you must have faith in it
Regards Brian

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I’m not very good on technology so bear with me. I’ve had sciatic nerve pain for about 25 -30 years but the last 10 has been getting worse to unbearable for me anyway.so I had stenosis and scoliosis mixed with degenerative disease and finally had surgery 13 days ago, cleaned up a lot of blockage and fused 7 vertebrae.so far I can tell most of the nerve pain is gone. A new pain I’m not sure if it’s from the screws into the hip bone on both sides but when it hits me it about knocks me over. Haven’t fallen yet but that’s my biggest fear. Any way I was wondering how long all of this surgery pain is supposed to last? I’m worried that the amount of narcotics I’ve been on for so long is making it not be enough. I have been on 50 mg fentynal patches and 10/375 hydrocodone for about 4 yrs from my family doctor and now traveled to Mayo Clinic for surgery, so different doctors 700 miles apart. Any input would be welcome.

REPLY
@hopeful33250

Hello @freakers and let me add my welcome to Mayo Connect. As John wrote, I also encourage you to share your story with us. In this online community we have some incredibly strong people who have found very creative ways of dealing with chronic pain. They can encourage you in your search for answers as well as offer you support in knowing that you are not alone in this journey.

Please share more information with us, as you are comfortable doing so. For example, how long has your pain condition been a problem? What meds, or treatments (like physical therapy or exercise) has been tried? Any surgeries? We look forward to getting to know you better!

Teresa

Jump to this post

Hi, Barbara @bblinder . I’m sorry you’re having to give up gardening. It’s so therapeutic. I’ve been working on our landscaping, trying to make it lower maintenance. I put down landscape cloth and cover it with mulch, to keep down the weeds. I’m planting mostly perennials and trees and bushes anymore. I know that regardless what we do, there will always be weeds to pull, and I use a hoe, and try to get them when they’re just coming up. I keep a couple of spray bottles of Roundup close at hand to use when weeds get away from me. Some of them, I just leave because they’re easier to pull up when they’re taller, especially if the ground is wet. I keep cushions to kneel on and a cart that I can sit on. If I can, I just sit on the ground to work as far as I can reach, then slide over to the next spot. The challenge with that can be standing up again, which is when the cart comes in handy. I’ll garden somehow, as long as I’m able. I have a lot of lawn, and I’m really grateful for my riding mower. I can do the whole job with it, and it’s a 48 inch mowing deck, so the work goes pretty fast.

A neighbor in San Francisco had the ultimate low maintenance lawn. He poured concrete and painted it green.

Are you okay walking around the yard? At least there are some jobs that can be done standing up, with different types of hoes and other hand tools. I think that, even if I were in a wheelchair, I’d find things I could do, just to be outside and encouraging things along with a hose and some Miracle Grow. Maybe I could train my service dog to pull weeds.

Have a good evening, Barbara.

Jim

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@mikween

Anybody with Chronic pain should consider doing the Ketamine Therapy. That is where they put an IV in your arm. For me they recommended 4 hours sessions. The first 2 hours and the next day another 2 hour, but they doubled the dosage. I have had severe pain from neuropathy since 2008. I had this done about 2 weeks ago and the pain is considerably less. I am also taking trojans that is a compound with Ketamine in it. I think it is also helping. It is very expensive and insurance does not cover at this point because I think it is to new. Look it up.. I think it was worth it. I have been doing so much more since my treatments. Aggressively looking for a job and etc.

Jump to this post

@johnbishop

Thank you, John, for pointing this out. I think I’ll show your message to my neurologist next week and see what he thinks.

Jim

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@freakers

Hi I still use my school nickname of FreaKers I live in the UK & also like to spend time in Ireland and have an interesting story re my chronic pain situation which I will be posting

Jump to this post

Brian @freakers . I’m delighted that it’s worked for you. Will you have follow up therapy? Isn’t it great to have some relief! I’m thankful every day for the help I’ve received.

Jim

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@mikween

Anybody with Chronic pain should consider doing the Ketamine Therapy. That is where they put an IV in your arm. For me they recommended 4 hours sessions. The first 2 hours and the next day another 2 hour, but they doubled the dosage. I have had severe pain from neuropathy since 2008. I had this done about 2 weeks ago and the pain is considerably less. I am also taking trojans that is a compound with Ketamine in it. I think it is also helping. It is very expensive and insurance does not cover at this point because I think it is to new. Look it up.. I think it was worth it. I have been doing so much more since my treatments. Aggressively looking for a job and etc.

Jump to this post

Interesting. Thanks i have to look into it

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