Have you been cured of POST COVID?

In regards to SSRI's. . . I tried Zoloft and Escitalopram. The Escitalopram at first was a God send and within about 2.5 weeks I woke up feeing fabulous for a few days, but then nerve pain set in my body. To date, I am 87 lbs and have 45 symptoms and very, very ill. I have also since developed oral thrush, severe pain in both eyes that burn and feel like needles stabbing them, dry, and extreme pain everywhere and unfunctional. It's painful just to try and write this note, so I apologies for any typo's. I'm so scared and alone and I don't have not one doctor, specialist or anyone who can help me.

I even went to Mayo back in June, which was a complete waste of time and thousands of dollars. They set me up with an internal doc who was terrible, offered me a trial med of something which is said "it's great stuff, why not try it," and then dumped me and refused to call me back, addressing my main concerns and his staff said he doesn't have time. I'm so happy for the folks who had good luck at Mayo and in the right hands.

So this may be my last post as I don't know what tomorrow brings. This horrible beast and weapon that Covid is should have NEVER been created to start with, robbing every one of their lives.

Hugs & Love to all.

I don't which clinic you are going to in Chicago. Northwestern (my healthcare facility) was a joke about getting into their Covid clinic. I applied at Mayo (was a 2 month wait) and went up there last week. I found they were more supportive than the 7 specialists I saw at Northwestern. Northwestern does not use an integrative approach. Actually, none of the hospitals in the Chicagoland area do. I would suggest Mayo or Cleveland Clinic.

I tried SSRIs didn't work

@cls1212 Thanks... yup, it is the NWMH clinic. After being put on the 6 month wait list, I looked into it further.. it seems (as you say) a disjointed collection of "specialists," and not integrative. I'll try to get on the Mayo list ASAP. Meanwhile, I'm getting more help/info/validation from Mayo Connect than I've found anywhere else. Hard to believe there are so many of us and so little understanding/help from our medical system.

Hi Fellow Long Haulers - I am excited to report that I have finally been diagnosed with borderline POTS (rise of HR to 30 beats during a Tilt Table Test). A POTS diagnosis is defined as a HR of over 30 beats during the test. Since I am borderline, my Neurologist decided to treat me for POTS. I have been on "Pyridostigmine (30 mg/2x/day) which enhances sympathetic ganglionic transmission and is given at doses of 30 to 60 mg up to three times daily". I have tons of energy and none of my COVID symptoms. I call it a miracle after 3 miserable years of SOB, dizziness, lack of balance, leaden legs, PEM, blurriness, etc. About 1.5 years ago, a Cardiologist told me I wasn't a candidate for a Tilt Table Test. I could be angry but am now, just thankful. There are side effects to Pyridostigmine but I'll tolerate them given the other positives. I still have lots to learn!!! Feel free to reach out if any of you have questions. You might want to read the following article which came to me the day after I was diagnosed - weird coincidence!! POTS/PEM and long Covid
file:///C:/Users/Lucy/Documents/National%20Geo%20-%20What%20is%20POTS_%20Covid.pdf

I would be very interested in your root cause protocol. I have a sinus congestion post nasal drip 24/7 long haul for about 5 months post covid. While not as serious or debilitating as some of the sufferers on this blog it still causes a constant flow of mucous down my throat and at times does choke me. My ENT says the inflammation in my sinuses is causing the excess mucous.
Various steroid nasal sprays or histamine sprays offer some relief as does a nasal rinse, but only temporarily. Any information regarding your protocol to calm down the inflammation and relax my body would be so appreciated.
Stay well and happy!

Yep! I totally remember the constant drip down the throat -- especially when trying to sleep! It's really annoying and frustrating! I slept 1/3 inclined for weeks to help with that...

Solutions are easy and you're definitely on the right track but you need to eat an anti-inflammatory diet + low histamine diet as well. Have you tried that? (Strictly?) You can look up which foods have high histamine levels -- it may surprise you! I was eating things that I thought were healthy but they actually have high histamine levels (tomato, avocado, fermented foods etc). That way your body can get out of the inflammatory/high histamine response... Are you taking any histamine blockers? It helps! (Allegra etc)

Happy to send you my overall protocol when it's ready.

Thank you so much. I will shop for that tonight.

You're welcome! I used Liquid IV (no sugar version) because of the added B-vitamins. B-3 is absolutely crucial for long haul recovery... There are others out there that may be higher quality ingredients (LMNT), but I actually wanted the additional vitamins that Liquid IV provides. All the best!

Thank you. I will await your protocol .
Stay well!