Connect
Anyone else have MGUS and low cortisol levels?
I was diagnosed with MGUS about a year and half ago. I'm stable and under the care of a good hematologist. I see him next week for my quarterly check and an iron infusion. I was recently diagnosed as having very low cortisol levels by my endocrinologist. I will have more tests done for this in about 10 days. In the meantime, I wear out very quickly and wheeze with the slightest activity. I'm wondering if treatment for the cortisol issue may cause an issue with my MGUS. Is anyone else dealing with this combination of issues?
Thank you for your thoughts...
Like
Helpful
HugInterested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Connect
@ajbonett, are you on any medication that may lower your cortisol levels? Did you talk with your hematologist about your concerns?
I've had mgus since diagnosis in 2019 I've now got very low cortisol levels experienced muscle pain weakness and numbness and tingling. I've just experienced the very low cortisol levels in have anemia ckd and im having trouble physically and mentally. Im in the middle of getting new hematology and oncologist so at that fu im going to insist on a new bone marrow biopsy
@ljeaton welcome to Mayo Clinic’s Connect. @ajbonett, this was the beginning of a thread a few years ago, what have you learned about low cortisol levels since then? Did this resolve?
Hematologist/oncologists seem very reluctant to attribute any symptoms to MGUS and often medication for other disease or those diseases themselves may be the culprit.
Patty
@pmm I have had mgus since 2019 had some ckd anemia was just getting iron infusions to help the anemia but my levels have always run low. I had 3 strokes 2 at once and 3rd a week later that's when they recognized I have low potassium and low magnesium. I recently got very sick went to the emergency room and my cortisol levels was virtually non existent. They said its addidond disease but with all three of these low levels I've researched and found that with mgus when these levels are low that's itsva sign of mgus progression. If you have any of this I'd suggest you request an oncology follow up. Im seeing my oncologist Tuesday with these findings and demanding a new bone marrow biopsy. I've got burning lower extremity pain in my legs and weakness. And many other complications.