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Profile picture for Patty, Volunteer Mentor @pmm

@ljeaton welcome to Mayo Clinic’s Connect. @ajbonett, this was the beginning of a thread a few years ago, what have you learned about low cortisol levels since then? Did this resolve?
Hematologist/oncologists seem very reluctant to attribute any symptoms to MGUS and often medication for other disease or those diseases themselves may be the culprit.
Patty

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Replies to "@ljeaton welcome to Mayo Clinic’s Connect. @ajbonett, this was the beginning of a thread a few..."

@pmm I have had mgus since 2019 had some ckd anemia was just getting iron infusions to help the anemia but my levels have always run low. I had 3 strokes 2 at once and 3rd a week later that's when they recognized I have low potassium and low magnesium. I recently got very sick went to the emergency room and my cortisol levels was virtually non existent. They said its addidond disease but with all three of these low levels I've researched and found that with mgus when these levels are low that's itsva sign of mgus progression. If you have any of this I'd suggest you request an oncology follow up. Im seeing my oncologist Tuesday with these findings and demanding a new bone marrow biopsy. I've got burning lower extremity pain in my legs and weakness. And many other complications.