Getting new Covid booster and RSV

Posted by fmeronoff @fmeronoff, Oct 6, 2023

I have been suffering with long covid for one year--got all of my shots and boosters--my doctors say I need to get new covid booster and RSV--your thoughts?

 

Note from the Community Director

Mayo Clinic researchers find vaccine may reduce severity of long-haul COVID symptoms
August 23, 2023 

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I too, am conflicted regarding getting the booster. I don't usually make it 90 days without a relapse of Covid; (8 confirmed times since December, 2021). I have been told by one of my doctors that the spike proteins are very high in me and I shouldn't get anymore, at least while I have long Covid.

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@laja

Hello, My doctor has also told me NO other vaccines of any kind while my body is "on fire" from Long covid symptoms. I am a retired RN and have known my PCP since he was an intern. He is also a PED dr who believes in vaccinations so if he is telling me NO vaccines of any kind while I am dealing with long covid then I am following his advice.

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Agreed. I just had my Medicare Annual Wellness check with my primary care. I’ve been diagnosed with Post Covid 19/Long Covid since 9/22 after having Covid 7/22 for the second time. She usually asks me about flu shot, pneumonia shot, and vaccines. I was pleasantly surprised that she didn’t bother asking me. I had planned to refuse anyway. It was nice that we were both on the same page for the first time.

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I have been reading the posts here now for months and while it is definitely a personal decision, I think there are far more people who have had adverse reactions to the shots and I can’t fathom any reason for risking one’s health just because a doctor “recommends”. There are good doctors, but few and far between, and they get paid to push these shots. Nope, never.

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I went to the pharmacy to pick up my prescription and they said that the flu vaccine was ready, I took it but I only have the regular vaccine, I have never been able to tolerate the seniors vaccine which is four times stronger. I mentioned this because I also have long covid and of course it’s scary to take anything right now for the fear of it making the symptoms worse…I still want to get the latest covid booster and perhaps the RSV vaccine…I’m worried about getting it but I am more worried about getting covid so I decided to go ahead and do it…my plan is to have at least two weeks between each one in case I don’t feel well, I hope it works out at the end of the day, fingers crossed 🤞

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@seeker4answers

I have been reading the posts here now for months and while it is definitely a personal decision, I think there are far more people who have had adverse reactions to the shots and I can’t fathom any reason for risking one’s health just because a doctor “recommends”. There are good doctors, but few and far between, and they get paid to push these shots. Nope, never.

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I hope the people who react to the vaccine are calling the phone number on the fact sheet to report their adverse reaction. Otherwise, how can we get accurate information about the effects.

Covid stinks... I think everyone can agree on that, sadly.

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@annewoodmayo

Colleen,
Thank you very much for supplying us with best information currently available!

Do the docs at Mayo know anything about Paxlovid helping with long Covid or with pre-existing autoimmune/arthritis?

My autoimmune condition improved significantly when I was on Paxlovid for Covid.

Thank you, again!

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Yes, @annewoodmayo, please see this blog post by Mayo Clinic's long Covid expert Dr. Vanichkakorn.
- Paxlovid Promise? https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/paxlovid-promise/

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@seeker4answers

I have been reading the posts here now for months and while it is definitely a personal decision, I think there are far more people who have had adverse reactions to the shots and I can’t fathom any reason for risking one’s health just because a doctor “recommends”. There are good doctors, but few and far between, and they get paid to push these shots. Nope, never.

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@seeker4answers, on forums like this one, one can get the impression that more people have adverse reactions to a vaccine or negative side effects from a treatment than those who benefit. Please keep in mind that the people who do not experience side effects typically do not seek out support. They go on with their lives. Millions of people received the Covid, flu and RSV vaccines without adverse reactions. I don't disagree that people sharing here have experienced serious side effects. The impression of numbers, however, may be skewed.

Like you said it is a personal decision. Your decision should include your personal risk factors and an open discussion with your doctor who knows your medical history and the medical evidence.

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@colleenyoung

@seeker4answers, on forums like this one, one can get the impression that more people have adverse reactions to a vaccine or negative side effects from a treatment than those who benefit. Please keep in mind that the people who do not experience side effects typically do not seek out support. They go on with their lives. Millions of people received the Covid, flu and RSV vaccines without adverse reactions. I don't disagree that people sharing here have experienced serious side effects. The impression of numbers, however, may be skewed.

Like you said it is a personal decision. Your decision should include your personal risk factors and an open discussion with your doctor who knows your medical history and the medical evidence.

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@colleenyoung, completely agree with this. My parents have been fully vaccinated, including all boosters, and haven't had any issues and they are older. (83 and 86). I on the other hand, hav a history of bad reactions to any and all vaccines I've ever received. The Covid one being the worst and longest lasting negative side effects. 2 years and counting....

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@seeker4answers

I have been reading the posts here now for months and while it is definitely a personal decision, I think there are far more people who have had adverse reactions to the shots and I can’t fathom any reason for risking one’s health just because a doctor “recommends”. There are good doctors, but few and far between, and they get paid to push these shots. Nope, never.

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I came down with Covid 19 Jan 2021. It was just before Jan 6.
I was hospitalized for 11 days. I told the ER doctor I thought I was dying.
On March 14th, 2021, I received the first vaccination. The next day I woke up and it was the Coved never went away the fever the chills. It was like covid never went away. I was lucky I still had my oxygenator. Itw as bad for 6 or 7 days . Told my doctor. No help. I was prescribed an inhaler. my breathing issues subsided. End of April beginning of May.
Everybody heard what they were saying. Get both vaccines even if you had Covid. So on August 8th 2021 I
received the second vaccination. so you say well thing could not get worse. Not worse but deadly worse. I had same side effects as the first vaccine. The first new side effect that happened Thursday morning at 2:30. had trouble breathing and my heart was beating wildly. I thought I was having a heart attack. I did not have the strength to dial 911. My breathing took a turn for the worse and fast. I went to a pulmonologist and did tests and an x-ray, and I was told that I had liquid on the left side of my chest. what they took out of my chest was one liter of fluid. your total lung capacity is 3 liters for each lung. Like driving a 6 cylinder car with one of the cylinders. Does not work very good. No more vaccines for me.
The story does end there. In October 2022 I came down with what I thought was the flu. It was mild but I was tested confirmed that it was Covid. But this one gave what first one did not. Brain Fog. It was so bad the first month in a half that I could not hold a conversation. I still have problems concentrating. 7 heart procedures later. What I experienced was a symptom called Myocarditis. It says its rare with fewer than 200,00 thousand cases a year. Sound like a big number to me. I had no know allergies at the time and I don't if they have the ability to test for it.

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@frouke

I think it can get very frustrating for everyone…it’s difficult to decide what to do..I’m very overwhelmed by the info I read, some people claim that they got sicker after the booster and other people claim that they improved after the booster. I think it’s basically a different thing for everyone.. I did notice that a lot of the long covid symptoms have similarities between people and some have other and perhaps worse symptom..at the end of the day I will do what is best, hopefully it will be alright…also there are several vaccines this season, flu, covid and rsv…where to begin…

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It is not about what people claim...that is worthless as people are reporting anecdotal experiences without due diligence in asking the question, the environment, tracking cases, controls, what else is involved, etc. That is not how science determines something. It is very simple. Follow the guidelines of the institutions responsible for protecting the public health, listen to the institutions who are experts in the matter, and respected by their peers.

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