Chronic Pain members - Welcome, please introduce yourself

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

Thank you Colleen, It's easy for me because I don't think I have it as bad<br />
as the others even though at times it would feel like it, until I read the<br />
posts. I would love to take it all away for them but I can't. So if we can<br />
be there for each other, it might give a little comfort are some purpose in<br />
their self in helping one another.<br />
<br />
salena<br />

It's an honor to find a group of people that have been, and are still going<br />
through, what we all face 24/7. I'm getting worse but a lot of this startup<br />
group have alot more problems than myself. Let's try to grow this group<br />
into one large enough to let our "FRIENDS" in Washington know that we are<br />
indeed human beings and could use some representatives in D.C. to open<br />
their minds and hearts to the millions that suffer daily with very little<br />
to look forward to. I want to write, a novel, book, articles to whoever we<br />
can reach. I just need some ideas. Do you suppose there is a pain monthly<br />
magazine. LOL briansr<br />

I do agree!!! It would be great to see them do what is right for those who<br />
are in need of their assistants.<br />
<br />
salena<br />

Yes if anyone has ideas of how we can get the attention of higher ups... Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7<br />
<br />

Colleen thanks for pointing us in the right direction !!! It helps to gather all the info we can. And by the way since they burned of my nerve endings March 15th. I Hav only had a few 3 day headaches. Around a 5. and only on the left side. I'm very thankful that I tried this and so far it is the only thing that worked Thanks, Sharonmay7<br />
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Hi, my name is Allan, I have been diagnosed with ilionguinal neuropathy from hernia surgery. I am in constant pain, the only relief, is the medication which only reduces the level of pain. No one seems to understand what this pain is doing to my activities of daily living. If someone knows if there is any clinicle studies on this I would appreciate any information. I would also like some help in assessing the Ama guide to impairment in relation to this problem. <br />
Thank you<br />
<br />

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

Welcome Allan,
You may also be interested in joining the conversation about neuropathy happening here https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/ Members sharing on this discussion thread may have clinical trial suggestions and tips about the AMA guide.

Warren, hi I'm Sharon. My mom has Ben dealing with eye issues for a few years. She was on blood thinners for her heart, sometimes this causes blood to pool in your eye. That's a tough one cause u use your eyes anytime you are awake! That can't be pleasent !! Glad u found our group keep us posted. Welcome. sharonmay7 <br />
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