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Kelsey Mohring
@kelseydm

Posts: 299
Joined: Feb 24, 2015

Chronic Pain members - Welcome, please introduce yourself

Posted by @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

REPLY

@mojoearle

Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

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Hi @mojoearle, I’m sure @briansr @19lin @sharonmay7 will join me in welcoming you to the Chronic Pain group

Liked by mikee

@mojoearle

Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

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This is briansr and would gladly welcome you. Mojoearle mojoearle

Liked by lynnkolars, mikee

@mojoearle

Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

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Welcome mojoearl! Jump on anytime one of us is usely up. When in pain as u know some nights are long. Sharon

Liked by deefl

@19lin

I am lucky my doctor seems strick but fair he keeps a close eye on me and has me consider the disadvantages as well as advantages of the meds. But he works in a clinic run by the Catholics and they can force him to make changes. I have read of others who said either their insurance or the doctor made them stop. From what I have read this is bad news, not only for pain suffers, but for everyone. Already I have read about people going to the black market for pain medicine and dying because the drugs were bad. Also studies in pain research show that chronic pain suffers have a higher suicide rate than average. If saving lives is the goal this is not the way to do it. 19lin

Sent from Windows Mail

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19ln,u are so right! I know a lady now who is going black market. I worry about her. I tried to talk to her a bout it but……she has so much pain but that is not the way to go!!!! I only ser bad days ahead of her.she is in my prayers thats all i can do. If the govmerent has there way we may all feel that way.. Sharonmay7

@19lin

I am lucky my doctor seems strick but fair he keeps a close eye on me and has me consider the disadvantages as well as advantages of the meds. But he works in a clinic run by the Catholics and they can force him to make changes. I have read of others who said either their insurance or the doctor made them stop. From what I have read this is bad news, not only for pain suffers, but for everyone. Already I have read about people going to the black market for pain medicine and dying because the drugs were bad. Also studies in pain research show that chronic pain suffers have a higher suicide rate than average. If saving lives is the goal this is not the way to do it. 19lin

Sent from Windows Mail

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She should get some natural grown POT, make brownies or candy and use that. Better for her probably than the
black market street drugs or the ones the drug dealing doctors give you (some of them) You want to help her so
badly-make her a batch.

Hi Kelsey
I am new to the group. I am almost 75 years old and have chronic pain.
I am not sure how much information is required so maybe you can contact me and fall me in? Thank you. DeeFl

Liked by jeannen

@deefl

Hi Kelsey
I am new to the group. I am almost 75 years old and have chronic pain.
I am not sure how much information is required so maybe you can contact me and fall me in? Thank you. DeeFl

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Hi @deefl. Welcome to Connect. Thanks for joining us… we are glad to have you! This group is all about chronic pain, so you are in the right place. Here we talk about our challenges, goals, questions and concerns. If you are willing, i’m sure the group would love to know more about you for instance a little about your health history, how you are managing your chronic pain, any struggles you are facing, and even a little about you personally (what do you like to do for fun?). Connect is just a place where we can come to share and support each other. There is no right or wrong amount of info, it’s just all getting to know each other. I hope this helps. If you have any additional questions, feel free to private message me.

Liked by luckygirl

@kelseydm: When do you think the revised web site you spoke of will be complete? I still have a lot of trouble with this system. It is hard to find an individual and reply to their post. On memorial day I made it to the cemetery to put some decoration on my families graves with my kids, but the rest of the time I stayed home the weather was changeable and that means more pain for me. I hope you and everyone had a better time. 19lin

@19lin

@kelseydm: When do you think the revised web site you spoke of will be complete? I still have a lot of trouble with this system. It is hard to find an individual and reply to their post. On memorial day I made it to the cemetery to put some decoration on my families graves with my kids, but the rest of the time I stayed home the weather was changeable and that means more pain for me. I hope you and everyone had a better time. 19lin

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Good to hear from you @19lin. A major part of the redesign has already been implemented. We improved the look of the discussions display, the email notifications and the members tab. This week we’ll be fixing an issue with the reply functionality. I will send you a private message to dive deeper into the issues you are identifying, so we can address them too.

What a special activity to do with your children on Memorial Day! Sorry to hear the weather caused you pain… I hadn’t thought about that but it makes sense. Did you at least get to enjoy some cookout fare?

@suebreen54 and @mojoearle, how was your holiday weekend?

@kelseydm No between stomach and knee I stayed home but the rest had a good time 19lin

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Att. Community Manager
Dear Sirs,
I do not know in what Discussion groups I might include my interest, the object rather, what I deem to be it of a general and scientific nature, however so far seemingly unreleased in internet or otherwise. It is somehow related with Mind Control and Physiotherapy. (The Noncancer Studies Contact Form is limited in length), and If possible, i would very much appreciate your kind information. – I am 96 years old, I suffered about 20 years ago a malign melanoma at a big toe then amputated, now with total reemission. I have a chronic heart-vascular condition, venous insufficiency, and arrhythmia; 6 years ago I became an arterial stent implanted. Well, this is all perfectly controlled by medicine, and my physical and cognitive capacity is excellent according to the physicians
Now I come to the main point. I am for many years a practitioner of Meditation which doubtlessly must have contributed to my longevity and stable health. Here my doubts. I am getting physical therapy mainly with stretching; otherwise, I am walking 3 times a week, about 30 to 40 minutes each, however to the advice of my doctor I should discontinue when starting to tire, especially during warm and humid weather. Nevertheless, if during walk I am distracted by vivid conversation, forgetting the tiredness (mind control?), I am able to keep on walking until I feel tired again. Similarly, during sessions of physiotherapy, considering my heart-vascular disease I am supposed to interrupt the therapy when presented with fatigue. If at that very instance my mind were transposed (from fatigue to unrelated thoughts) and thus keeping on, now tirelessly, with these physical efforts, are there risks involved, like an oncoming hyperthermia in the first case?
In other words, my mind being unfocused (masquerading?) on fatigue, thus recuperating temporarily my strength, is the commented risk point during these interludes being averted and thus allowing more extensive physical actions, in the way a case might require?
I would very much appreciate your opinion on this matter, so does my physiotherapist. Thank you, Pablo Luis Mainzer.

This is an open question to anyone. The last two times I have had an MRI it burned right up my spine to the point that I asked them to take me out immediately which they did not do although they did speed it up. Since then I have not had any in the last few years. Has anyone else experienced this? 19lin

@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Welcome to Connect @pablo8.

As you point out, people are not divided nor defined by their diagnoses and conditions. Many members of Connect cross multiple groups and I welcome you to participate in any of the conversations relevant to you. For your current question about exercise with your cardiovascular conditions (chronic heart-vascular condition, venous insufficiency, and arrhythmia) I recommend that you post a message in the Heart & Blood Health group: https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

In particular, you may wish to join this conversation about “Staying healthy physically (and mentally) post heart attack” https://connect.mayoclinic.org/discussion/hi-there-i-just-now-joined-your-group-and-after-reading-a/ We look forward to connecting you with other members.

Liked by diana11, pablo8, anjou, momij ... see all

@19lin Did they give you any explanation as to why the MRI would have caused the burning sensation up your spine? @leh09 @seanbeck @suebreen54 @ladyjane85 @briansr @salena54 @sharonmay7 have any of you had this experience with an MRI?

@19lin

This is an open question to anyone. The last two times I have had an MRI it burned right up my spine to the point that I asked them to take me out immediately which they did not do although they did speed it up. Since then I have not had any in the last few years. Has anyone else experienced this? 19lin

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kelseydm : Still having trouble getting to a place to reply to posts? I have not figured out how to do it easily? Regarding MRI, the staff never said if anyone else had similar problems. On the next MRI I asked my doctor for something to help and they gave me a shot to help me relax, but it had no effect. They did not let me right out when I asked but talked me into waiting to get the important shots. I have avoided any further MRIs since then. 19lin

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