Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain group.

@sharonmay7

I agree if we could get off some of the pain pills and b able to replace them with that, would b nice!! Anything with out side affects would b nice to try!! I think some people who Hav never had pain thinks we r fracking it!!!! Or we just can’t handle pain!!! But of course that is not true. I’ve been afraid to ask my pain dr. About it. Sharonmay7

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I can empathize. To look at me I look pretty normal except for a cane. But
inside my body is screaming. briansr

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@sharonmay7

I agree if we could get off some of the pain pills and b able to replace them with that, would b nice!! Anything with out side affects would b nice to try!! I think some people who Hav never had pain thinks we r fracking it!!!! Or we just can’t handle pain!!! But of course that is not true. I’ve been afraid to ask my pain dr. About it. Sharonmay7

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Yes the know what you mean
I have been having a hard week, and also have to take care of my mom who
has Alzheimer’s, and RA. My sister came directly from Texas, and Four of my
five brothers. I had them all come to see what I have to do for her and to
understand how much I needed there help and support, especially when I’m
when we I’m having flair ups. Just because I have learned to live with my
pain and discomfort with walking and getting up don’t mean there’s no
suffering going on. They seemed to understand and said they would help me,
and try to understand that see don’t mean to be so unkind, she thinks we
are trying to take her freedom, she thinks she’s bath and it’s hard to make
her understand. Everyone one of us has to understand she remember, are use
her mind like she us to. I know I have a problem that might one day cause
me to never walk again. So, because I look alright when they see me they
think I’m fine, now my sister has seen me on my worst, so she understands.
I pray every day but know my bodies wore out but let me keep my right mind.
Our good Lord has keep my. I still work with my husband in the ministry and
do my counciling. But, if the pain is in unbearable I stay in bed, where my
husband put shelves for my books and chairs and a tv-vcr so my six
grandchildren stay with me and watch cartoons are a princes movie. And if
Miss church my pastor records the services account I get to hear. I’m lucky
so far, I haven’t had to be on antidepressants, sometimes it feels like I
could be, I just call for my grandkids and it seems to work. I hope All of
our friends that are on this site stay strong and courageous on these
journeys we are on and I pray that we all have peace of mind and that we
can minister to others by our experiences. Love an Prayers salena54

salena

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Selna I can emphasis with your situation. My father had Alzheimers and I have no brothers or sisters plus my Mom passed a few years before from Cancer. Luckily my wife was willing to help. My Dad was not as bad as it could have been, he stayed mobile and able to care for most of his body functions , unlike his sister who was in a nursing home the last few years of her life with Alzheimer’s. I was able to hire people to stay with Dad when one of us could not be there. Also, for good or bad, I was diagnosis with fibromyalgia a year or so before and was able to file for disability retirement from my job so I had time free to help him. If you can set up with a local group of support for Alzheimer’s families that help find patient sitters to relieve you when you need it. Check on the internet for other support.

Now the bad news I heard on the new that the feds are requiring all doctors who give opioids to take special training course to use those meds. This is just going to make it harder for all of us. Any day I expect to hear from my Doc that he will no longer be able to prescribe meds either because of fed regulations or his clinic’s refusal to give them out. Good luck 19lin

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@19lin

Selna I can emphasis with your situation. My father had Alzheimers and I have no brothers or sisters plus my Mom passed a few years before from Cancer. Luckily my wife was willing to help. My Dad was not as bad as it could have been, he stayed mobile and able to care for most of his body functions , unlike his sister who was in a nursing home the last few years of her life with Alzheimer’s. I was able to hire people to stay with Dad when one of us could not be there. Also, for good or bad, I was diagnosis with fibromyalgia a year or so before and was able to file for disability retirement from my job so I had time free to help him. If you can set up with a local group of support for Alzheimer’s families that help find patient sitters to relieve you when you need it. Check on the internet for other support.

Now the bad news I heard on the new that the feds are requiring all doctors who give opioids to take special training course to use those meds. This is just going to make it harder for all of us. Any day I expect to hear from my Doc that he will no longer be able to prescribe meds either because of fed regulations or his clinic’s refusal to give them out. Good luck 19lin

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Thank lin19 for your help. I will look into the group for Alzheimer’s. I’m
so sorry for your loss. I lost my dad to heart disease, he had heart
surgery and never recovered. That was 15 years ago and I said miss him, he
was my best friend. I have a sister-in-law with fibromyalgia and see how
she suffers from pain and depression. When I was diagnosed with Lupus my
Doctor gave me a lot of information to study and my husband and call to
study, fibromyalgia is a cousin to lupus. They don’t understand these
diseases, they are called diseases because there is no known cures for it.
Know they do have better treatment and it’s no longer a death sentence as
long as you take care of yourself and keep a positive attitude. It’s a hard
disease to find, you almost have to be in a flair up for it to be found.
Thank you for posting me back and have a blessed day.

salena

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@19lin

Selna I can emphasis with your situation. My father had Alzheimers and I have no brothers or sisters plus my Mom passed a few years before from Cancer. Luckily my wife was willing to help. My Dad was not as bad as it could have been, he stayed mobile and able to care for most of his body functions , unlike his sister who was in a nursing home the last few years of her life with Alzheimer’s. I was able to hire people to stay with Dad when one of us could not be there. Also, for good or bad, I was diagnosis with fibromyalgia a year or so before and was able to file for disability retirement from my job so I had time free to help him. If you can set up with a local group of support for Alzheimer’s families that help find patient sitters to relieve you when you need it. Check on the internet for other support.

Now the bad news I heard on the new that the feds are requiring all doctors who give opioids to take special training course to use those meds. This is just going to make it harder for all of us. Any day I expect to hear from my Doc that he will no longer be able to prescribe meds either because of fed regulations or his clinic’s refusal to give them out. Good luck 19lin

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HI in regards to worrying about using opposes there’s is nothing wrong with
going to a pain specialist and doing what you have to in order to get them.
They are the best Dr to go to because they are going to make sure you are
taking it safely. Overdosing and dieing from drinking or using other
drugs will lead to death. A pain specialist will keep you from dieing. I
think that’s more important than keeping your Dr.

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Suebreen hi I’m sharonmay7. I totally agree with you!!!! I have been with my pain dr. For 20+years. And the only time he gives me a hard Time is if he finds other meds in you pee sample. I’ve taken a different pain pill a few times cause I was not home and was having a hard time. But like he said you should ALWAYS be aware what u put in your system!!! A different drug could up set your balance. That is how people end up dead. It took me years to learn how to use the medicine properly. I use the fentenol patch. And u forget sometimes cause it is always working. Once I left it on while working in my flower garden the next day when I woke up I was a mess. I did not understand that if your body temp. Warms up then the patch will down load all of the medicines at one time!!! Has anyone else out there who had this problem with the patch??? Thanks

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@sharonmay7

Suebreen hi I’m sharonmay7. I totally agree with you!!!! I have been with my pain dr. For 20+years. And the only time he gives me a hard Time is if he finds other meds in you pee sample. I’ve taken a different pain pill a few times cause I was not home and was having a hard time. But like he said you should ALWAYS be aware what u put in your system!!! A different drug could up set your balance. That is how people end up dead. It took me years to learn how to use the medicine properly. I use the fentenol patch. And u forget sometimes cause it is always working. Once I left it on while working in my flower garden the next day when I woke up I was a mess. I did not understand that if your body temp. Warms up then the patch will down load all of the medicines at one time!!! Has anyone else out there who had this problem with the patch??? Thanks

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Suebreen I use fentenol and I found out if they get too warm before using them they are useless. I have no experience with them unloading meds too soon in heat. That sounds dangerous they should warn you about it. 19lin

Sent from Windows Mail

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@sharonmay7

Suebreen hi I’m sharonmay7. I totally agree with you!!!! I have been with my pain dr. For 20+years. And the only time he gives me a hard Time is if he finds other meds in you pee sample. I’ve taken a different pain pill a few times cause I was not home and was having a hard time. But like he said you should ALWAYS be aware what u put in your system!!! A different drug could up set your balance. That is how people end up dead. It took me years to learn how to use the medicine properly. I use the fentenol patch. And u forget sometimes cause it is always working. Once I left it on while working in my flower garden the next day when I woke up I was a mess. I did not understand that if your body temp. Warms up then the patch will down load all of the medicines at one time!!! Has anyone else out there who had this problem with the patch??? Thanks

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What you say is true. Read the insert inside each box and it describes the
dos & don’ts and excessive heat external, heating pad etc, and external,
fever, hot tub, working hard. On and on. Personally I don’t think it will
kill you but I AM NOT A DOCTER!!

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Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

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@mojoearle

Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

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Hi @mojoearle, I’m sure @briansr @19lin @sharonmay7 will join me in welcoming you to the Chronic Pain group

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@mojoearle

Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

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This is briansr and would gladly welcome you. Mojoearle mojoearle

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@mojoearle

Hello group! I’m almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

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Welcome mojoearl! Jump on anytime one of us is usely up. When in pain as u know some nights are long. Sharon

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