Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain group.

@briansr

Hi 19lin. I’m to the point that I can’t take this much pain. Surgery or
pills are a waste of time. I’ve always said , no offense to people that are
suffering with cancer, but after 33 yrs of this I’m backing in to a corner
with no way out. This is like cancer but no dr can tell me how long I have.
I’m now looking into marijuana use in my state. The govener is
decriminalized as of Jan. 2017 and there is a large push to make it legal
for medical use. I want to try it but if my dr tested me I will lose him,
we’ve had that discussion. I just don’t know if it would help, so I’ll wait
and see what happens in November when the people in this state will be
given a chance to vote for or against medical use. Both bills won’t make it
until Jan. The federal government. has all the the Drs scared because of
the misuse of narcotics. To many people pretend to be in pain just to sell
there medicine, I’ve seen it add 4 to 500 to there monthly income. This
puts narcotics in the wrong hands. Excuse me for rambling I’m just lost and
don’t know which way to turn. briansr

Jump to this post

The problem I have is I already brought up this to my doc. I asked him six
months ago that if they legalize marijuana what he thought about it. He
basically said HELL NO, NO WAY, period…. briansr

REPLY
@briansr

Hi 19lin. I’m to the point that I can’t take this much pain. Surgery or
pills are a waste of time. I’ve always said , no offense to people that are
suffering with cancer, but after 33 yrs of this I’m backing in to a corner
with no way out. This is like cancer but no dr can tell me how long I have.
I’m now looking into marijuana use in my state. The govener is
decriminalized as of Jan. 2017 and there is a large push to make it legal
for medical use. I want to try it but if my dr tested me I will lose him,
we’ve had that discussion. I just don’t know if it would help, so I’ll wait
and see what happens in November when the people in this state will be
given a chance to vote for or against medical use. Both bills won’t make it
until Jan. The federal government. has all the the Drs scared because of
the misuse of narcotics. To many people pretend to be in pain just to sell
there medicine, I’ve seen it add 4 to 500 to there monthly income. This
puts narcotics in the wrong hands. Excuse me for rambling I’m just lost and
don’t know which way to turn. briansr

Jump to this post

Brainsr I know what u mean!! I’ve seen people in real pain kicked out of the Drs. Office because there pee test came out bad. But how can this be league It seems that if a good dr. Is giving u heavy duty pain pills how can they just stop them??? If I stoped I would get sick. I think I would sue if they just stopped!!! The way I understand it is that if I stop I would go through withdrawal. Is that true. I’m on fentenol 75 mg. and oxyconde 10 three times a day. Sharon.

REPLY
@briansr

Hi 19lin. I’m to the point that I can’t take this much pain. Surgery or
pills are a waste of time. I’ve always said , no offense to people that are
suffering with cancer, but after 33 yrs of this I’m backing in to a corner
with no way out. This is like cancer but no dr can tell me how long I have.
I’m now looking into marijuana use in my state. The govener is
decriminalized as of Jan. 2017 and there is a large push to make it legal
for medical use. I want to try it but if my dr tested me I will lose him,
we’ve had that discussion. I just don’t know if it would help, so I’ll wait
and see what happens in November when the people in this state will be
given a chance to vote for or against medical use. Both bills won’t make it
until Jan. The federal government. has all the the Drs scared because of
the misuse of narcotics. To many people pretend to be in pain just to sell
there medicine, I’ve seen it add 4 to 500 to there monthly income. This
puts narcotics in the wrong hands. Excuse me for rambling I’m just lost and
don’t know which way to turn. briansr

Jump to this post

Brainsr I believe you are right, not only could you get sick but in some cases it could cause permanent damage or even death. 19lin

Sent from Windows Mail

REPLY
@tompet

Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven’t been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel’s Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn’t enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can’t stay with my daughter because then they will say I don’t need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.

Jump to this post

Believe it things will be better. God is with you. He isn’t doing these
things never blame God. Man men do these things. Men also help you . Have
faith in God he will send someone your way. You don’t know what God will do
or who he will send. Believe that he will have faith. I will pray for you.
If I were there I’d help you that’s why I know someone there will help you.
Reach out to everyone there until you get help. God bless you Sue Breen

REPLY
@briansr

Hi 19lin. I’m to the point that I can’t take this much pain. Surgery or
pills are a waste of time. I’ve always said , no offense to people that are
suffering with cancer, but after 33 yrs of this I’m backing in to a corner
with no way out. This is like cancer but no dr can tell me how long I have.
I’m now looking into marijuana use in my state. The govener is
decriminalized as of Jan. 2017 and there is a large push to make it legal
for medical use. I want to try it but if my dr tested me I will lose him,
we’ve had that discussion. I just don’t know if it would help, so I’ll wait
and see what happens in November when the people in this state will be
given a chance to vote for or against medical use. Both bills won’t make it
until Jan. The federal government. has all the the Drs scared because of
the misuse of narcotics. To many people pretend to be in pain just to sell
there medicine, I’ve seen it add 4 to 500 to there monthly income. This
puts narcotics in the wrong hands. Excuse me for rambling I’m just lost and
don’t know which way to turn. briansr

Jump to this post

Medicinal marijuana is very costly from what I have seen on TV when
they show the growers. I am in 7 to 9 pain and can take no meds, so I
would welcome even a brownie laced with canaibus. has nothing….
ladyjane85

REPLY

I am lucky my doctor seems strick but fair he keeps a close eye on me and has me consider the disadvantages as well as advantages of the meds. But he works in a clinic run by the Catholics and they can force him to make changes. I have read of others who said either their insurance or the doctor made them stop. From what I have read this is bad news, not only for pain suffers, but for everyone. Already I have read about people going to the black market for pain medicine and dying because the drugs were bad. Also studies in pain research show that chronic pain suffers have a higher suicide rate than average. If saving lives is the goal this is not the way to do it. 19lin

Sent from Windows Mail

REPLY
@briansr

Hi 19lin. I’m to the point that I can’t take this much pain. Surgery or
pills are a waste of time. I’ve always said , no offense to people that are
suffering with cancer, but after 33 yrs of this I’m backing in to a corner
with no way out. This is like cancer but no dr can tell me how long I have.
I’m now looking into marijuana use in my state. The govener is
decriminalized as of Jan. 2017 and there is a large push to make it legal
for medical use. I want to try it but if my dr tested me I will lose him,
we’ve had that discussion. I just don’t know if it would help, so I’ll wait
and see what happens in November when the people in this state will be
given a chance to vote for or against medical use. Both bills won’t make it
until Jan. The federal government. has all the the Drs scared because of
the misuse of narcotics. To many people pretend to be in pain just to sell
there medicine, I’ve seen it add 4 to 500 to there monthly income. This
puts narcotics in the wrong hands. Excuse me for rambling I’m just lost and
don’t know which way to turn. briansr

Jump to this post

Brainsr you are right to many are making it hard for those with real pain, that is why I lobby for research to develop an approved objective measure for pain. Such a devise should so who has real pain and who is faking. Of course it will not be easy but it needs to be done for everyone’s benefit. Too many good people are suffering needlessly because of a few who are trying to get rich quick.

I am sure you have tried many alternative pain control methods as have I, most are not effective but you need to try. I still have not tried hypnosis to see if that would work. At Mayo’s a few years ago they tried ECT on me and it did stop my phantom pain for awhile, but not the sciatic nerve pain. I tried it a few times but it had some negative side effects so I stopped it. Some find acupressure helpful.

There is a good article in the June issue of Consumer Reports on pain and the methods used to stop pain. It just came out so you can probably find it at your library. They review the various pain treatment methods and how effective they have been found to be. Good Luck 19lin

Sent from Windows Mail

REPLY

To sharonmay7 . with the strength of the meds your taking, stopping
suddenly would make you so sick you do not want to go through that ever. I
have many times and it took me to the floor.

REPLY
@tompet

Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven’t been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel’s Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn’t enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can’t stay with my daughter because then they will say I don’t need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.

Jump to this post

Thank you for your support. It warms my heart that people care. I am 55 years old and I would like to be able to do things for 10 – 15 years more even if I have to sit in a wheelchair. I am quite capable of doing and solving things so I think I will find a way forward. But I struggle a lot with my self-worth as I was raised to take care of my siblings and when I needed help from them they was not able to help me. I know that I have to take better care of myself, eat better and a lot of other things but I feel so guilty when I do things for myself.

I have two small parrots, Lovebirds, and they mean everything to me as they are my children right now. They are very important to my mental health and I take them with me when I move but some people think I am crazy for loving them so much and it is quite costly to get them with me. But the same people wouldn’t question if it was a dog. It makes me feel guilty but at the same time I know that I wouldn’t go without them.

I just came back from a hospital where I have spent the night for a sleep study. I have no idea of the result, all I know is that I was awake until 4 am and still need more sleep.

I struggle a lot with my diseases, some weeks are so bad so everything is pain and the only thing to do is to rest. I have to go and shop myself and for every day out I need at least 2 – 3 days rest. The problem is that the big pain does not come right away; it comes after 20 – 30 minutes and then is too late to do something about it. Worst is when the hip is aching because then it get so hard to walk. The hips are x-rayed and the joints seem to be ok, it is the fibromyalgia in the big leg muscle that is giving me the pain.

Even when I have all this pain I think it is important to focus on something else than my pain. I don’t want to sit and feel sorry about myself all the time. I am educated about child abuse and have worked with it in the past. Then I also voluntarily worked with abuse against men and from men. It is my goal to be able to go around and talk about abuse against men as I have knowledge and experience about it that can be important to share. In Sweden I was doing research about bullying about 20 years ago and when I left there has not been any more research done. And it is much needed. But first I have to find ways to take care of and improve myself.

REPLY
@briansr

To sharonmay7 . with the strength of the meds your taking, stopping
suddenly would make you so sick you do not want to go through that ever. I
have many times and it took me to the floor.

Jump to this post

Brainier. That dosnt sound like fun. And I hope that never happens to me!!!! But like some Hav said,it can happen. I hope the government gets there shit together. Without meds I would spend most of my life in bed!!! It is so hard to Hav others do for me, when I was always the one doing for others! This is the hardest thing for me to deal with! Hope this finds u on a good day. Yours Sharonmay7

REPLY

I agree if we could get off some of the pain pills and b able to replace them with that, would b nice!! Anything with out side affects would b nice to try!! I think some people who Hav never had pain thinks we r fracking it!!!! Or we just can’t handle pain!!! But of course that is not true. I’ve been afraid to ask my pain dr. About it. Sharonmay7

REPLY
@briansr

To sharonmay7 . with the strength of the meds your taking, stopping
suddenly would make you so sick you do not want to go through that ever. I
have many times and it took me to the floor.

Jump to this post

Thank you sharonmay7. Have to see my GP today and we’re going to have a
talk. I’m real tired of this 2 to 3 hrs of sleep a night. I understand how
you feel. My spine has been crumbling for 33 yrs an is in my thoratic
region. Pretty soon everything will meet together around T-7. I used to
go fishing and camping every year but it’s been 4 yrs since I’ve been
fishing and around 15 yrs since camping. I miss those. My wife walked out
on me 4 yrs ago after 37 yrs for a new guy that can get around better. That
one still hurts but now her back is all messed up. So now she gets to
visit my world LOL!!! We still get along great and talk alot. I’m only 60
and would love just have some companionship by someone who understands me.
Maybe we need to set up a Chronic Pain Dating Site? Call it Park Bench
Dating, the dating site for people in chronic pain and meet at parks just
to sit because that’s about all most of us can do…..LOL Have a good day
and let’s all say a prayer for our group!!!!

REPLY
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