1. < Autoimmune Diseases

Multiple Autoimmune Diseases & Post Covid

Posted by mamafluh @mamafluh, Jan 7, 2022

Has anyone else been having pain levels of 8-12 not normal. Things in pain, cognitive, insomnia, nerve issues, etc since having Covid?

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Jun 19, 2022
In reply to @cheryl46 "I’m on Levbid ER bid with no success. GI doctor mentioned Botox but I haven’t found..." + (show)
@cheryl46

I’m on Levbid ER bid with no success. GI doctor mentioned Botox but I haven’t found that to be very successful.
Achalasia probably has caused some weight loss but I’m also battling with pancreatic insufficiency (malabsorption). I’m taking Creon with meals and snacks which has slowed down everything going thru me but it’s a catch 22 because when I eat I have severe pain in chest, back, Luq and Ruq pain.🤷‍♀️
It will be a year next month since I had Covid but it seems every couple of weeks I add new symptoms.
I’m seriously thinking about traveling to Mayo and get 2nd opinion.

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@cheryl46 How awful that you’ve been dealing with all these symptoms for a year. You must be exhausted. You mention going to the Mayo Clinic. Here is a link to the site for getting an appointment:
https://mayocl.in.org/1mtmR63
Let me now if this helps

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2 replies
cheryl46 | @cheryl46 | Jun 20, 2022
In reply to @becsbuddy "@cheryl46 How awful that you’ve been dealing with all these symptoms for a year. You must..." + (show)
@becsbuddy

@cheryl46 How awful that you’ve been dealing with all these symptoms for a year. You must be exhausted. You mention going to the Mayo Clinic. Here is a link to the site for getting an appointment:
https://mayocl.in.org/1mtmR63
Let me now if this helps

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I have already spoken to them, now I just need to make appointment.
Thank you for your help

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bentfamilymom | @bentfamilymom | Dec 18, 2022
In reply to @yoz "My first try at participation in this chat. No, I do not claim official diagnosis of..." + (show)
@yoz

My first try at participation in this chat. No, I do not claim official diagnosis of autoimmune disease due to Covid. What I am trying to learn: is there a connection to my covid19 Pfizer vaccine and subsequent diagnosis approx two months later with CHF and severe anemia for which I required hospitalization. Furthermore, after treatment which included two IV infusions of iron, my blood labs rebounded but now have taken another nose dive. This is all despite a complete worrkup by gastroenterology which showed no GI bleeding and nephrology which showed my lab readings had returned to near normal. I am an octogenarian who has never had this anemia problem before.

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I had the same thing. Urgent hospitalization, transfusions and a blot clot un my leg.

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cmd | @cmd | Dec 19, 2022

Severe insomnia, severe hair loss and weight loss. Can’t taste food, don’t get hungry

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1 reply
Langold | @rarelybees2889 | Dec 19, 2022
In reply to @hmccarth5 "How do the doctors differintiate all 80 autoammune disorders, has to be a challenge." + (show)
@hmccarth5

How do the doctors differintiate all 80 autoammune disorders, has to be a challenge.

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Yes I would think so and many are very unique without so called classic signs

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Langold | @rarelybees2889 | Dec 19, 2022
In reply to @becsbuddy "@cheryl46 How awful that you’ve been dealing with all these symptoms for a year. You must..." + (show)
@becsbuddy

@cheryl46 How awful that you’ve been dealing with all these symptoms for a year. You must be exhausted. You mention going to the Mayo Clinic. Here is a link to the site for getting an appointment:
https://mayocl.in.org/1mtmR63
Let me now if this helps

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I can highly recommend Mayo. I have been going there full time now.
Rhemetology is good and I love my PC dr.
Even though I don't live fulltime in MN, I have a PPO so it works for me!
I don't think I could go anywhere else now!

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annie0k | @annie0k | Sep 2, 2023

Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to foods, unrelenting mouth ulcers. Biopsy reveals lichen planus. 3 months ago had onset of plantar fasciitis. In the past month have developed severe hip pain , wrist pain and big toe pain all on the right side. It is difficult to walk. Did I say extreme fatigue! I’ve managed to keep active on an exercise bike. I’ve been seen by dentist, GI, Otolaryngologist, allergist and waiting for Rheumatologist. I’m 69 years young and don’t want to hear I’m old. What the heck is going on!!!

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6 replies
madison2023 | @madison2023 | Sep 3, 2023
In reply to @annie0k "Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to..." + (show)
@annie0k

Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to foods, unrelenting mouth ulcers. Biopsy reveals lichen planus. 3 months ago had onset of plantar fasciitis. In the past month have developed severe hip pain , wrist pain and big toe pain all on the right side. It is difficult to walk. Did I say extreme fatigue! I’ve managed to keep active on an exercise bike. I’ve been seen by dentist, GI, Otolaryngologist, allergist and waiting for Rheumatologist. I’m 69 years young and don’t want to hear I’m old. What the heck is going on!!!

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I believe that 2 covid boosters and having covid within a six-month period put my immune system into overdrive. I have symptoms of paresthesia from my neck down that came on suddenly a few weeks after my last booster. In my case, I also feel that hormones are playing a role as I am in perimenopause. Doctors discount both as causes, yet all of my tests have come back negative except for borderline B-12 which has gone up with supplements.

REPLY
cipnsue | @cipnsue | Sep 3, 2023
In reply to @annie0k "Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to..." + (show)
@annie0k

Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to foods, unrelenting mouth ulcers. Biopsy reveals lichen planus. 3 months ago had onset of plantar fasciitis. In the past month have developed severe hip pain , wrist pain and big toe pain all on the right side. It is difficult to walk. Did I say extreme fatigue! I’ve managed to keep active on an exercise bike. I’ve been seen by dentist, GI, Otolaryngologist, allergist and waiting for Rheumatologist. I’m 69 years young and don’t want to hear I’m old. What the heck is going on!!!

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I had similar symptoms following my first Covid vaccine which increased throughout that first year of vaccines and 50 doctor visits. I was finally sent to a neurologist for an EMG test to see if the large nerve fibers were damaged and it was negative. Then I had skin biopsies which revealed small nerve fiber damage. I take Cymbalta which helps from the waist up but not from the knee down. I take B12 and vitamin D (which are recommended for small nerve fiber neuropathy. Also, R-Alpha-Lipoic acid is recommended but I can't take it because it worsened my acid reflux. There is no cure for neuropathy - only symptom management. Check out https://pnhelp.org/ and https://www.foundationforpn.org/ for great info on PN and support groups.

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robindancer5678 | @robindancer5678 | Sep 4, 2023
In reply to @annie0k "Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to..." + (show)
@annie0k

Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to foods, unrelenting mouth ulcers. Biopsy reveals lichen planus. 3 months ago had onset of plantar fasciitis. In the past month have developed severe hip pain , wrist pain and big toe pain all on the right side. It is difficult to walk. Did I say extreme fatigue! I’ve managed to keep active on an exercise bike. I’ve been seen by dentist, GI, Otolaryngologist, allergist and waiting for Rheumatologist. I’m 69 years young and don’t want to hear I’m old. What the heck is going on!!!

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It’s very frustrating when doctors don’t believe you. I have been very fortunate that the doctors I have been to have not discounted my having had COVID-19 and the host of medical problems I have had unexpectedly after both having Covid and having multiple booster shots. I am not sure whether it’s the booster shots, or having had Covid, but I can relate to everybody’s comments. For me, it has been G.I., respiratory, and polyneuropathy. Scientists and physicians don’t know yet the ramifications of the Covid virus. Are you all going to get further boosters? I am up in the air about that.

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