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Multiple Autoimmune Diseases & Post Covid

Autoimmune Diseases | Last Active: Oct 12, 2023 | Replies (113)

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@annie0k

Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to foods, unrelenting mouth ulcers. Biopsy reveals lichen planus. 3 months ago had onset of plantar fasciitis. In the past month have developed severe hip pain , wrist pain and big toe pain all on the right side. It is difficult to walk. Did I say extreme fatigue! I’ve managed to keep active on an exercise bike. I’ve been seen by dentist, GI, Otolaryngologist, allergist and waiting for Rheumatologist. I’m 69 years young and don’t want to hear I’m old. What the heck is going on!!!

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Replies to "Since receiving 4 Covid vaccines and contracting Covid I have severe lactose intolerance, other reactions to..."

I believe that 2 covid boosters and having covid within a six-month period put my immune system into overdrive. I have symptoms of paresthesia from my neck down that came on suddenly a few weeks after my last booster. In my case, I also feel that hormones are playing a role as I am in perimenopause. Doctors discount both as causes, yet all of my tests have come back negative except for borderline B-12 which has gone up with supplements.

I had similar symptoms following my first Covid vaccine which increased throughout that first year of vaccines and 50 doctor visits. I was finally sent to a neurologist for an EMG test to see if the large nerve fibers were damaged and it was negative. Then I had skin biopsies which revealed small nerve fiber damage. I take Cymbalta which helps from the waist up but not from the knee down. I take B12 and vitamin D (which are recommended for small nerve fiber neuropathy. Also, R-Alpha-Lipoic acid is recommended but I can't take it because it worsened my acid reflux. There is no cure for neuropathy - only symptom management. Check out https://pnhelp.org/ and https://www.foundationforpn.org/ for great info on PN and support groups.

It’s very frustrating when doctors don’t believe you. I have been very fortunate that the doctors I have been to have not discounted my having had COVID-19 and the host of medical problems I have had unexpectedly after both having Covid and having multiple booster shots. I am not sure whether it’s the booster shots, or having had Covid, but I can relate to everybody’s comments. For me, it has been G.I., respiratory, and polyneuropathy. Scientists and physicians don’t know yet the ramifications of the Covid virus. Are you all going to get further boosters? I am up in the air about that.

If u have Long-Haul damage and/or vax injury & are on Facebook…I highly recommend you join a private group called ‘Long Haul Reset’. There’s over 6000 people who share their complaints & solutions. And our doctors are those who believe us!

You may also wish to see these related discussions:
- Multiple Autoimmune Diseases & Post Covid: https://connect.mayoclinic.org/discussion/multiple-autoimmune-diseases-post-covid/
- Autoimmune? Post-COVID?: https://connect.mayoclinic.org/discussion/autoimmune/

Have you had blood work for gout? I also have like Lichen Plan.. and now diagnosed with gout.