Multiple Autoimmune Diseases & Post Covid

Hello @lidajade4mayo! I think this sounds like my husband and why I came to this page. He got the second dose of vaccine in Match/April of 2021 and he has not been the same since...deals with chronic pain intermittent from levels 4 to 9 and he has had so much lab work and testing done and the doctors are baffled. I just don't know where to go or what to do for him or where to go.

Although it may not hold true in this case, some pain markers show serious without Covid. I must consume a heavy dosage of painkillers daily although I have never tested positive for Covid. However, MDs have prescribed a total of about 55 pills and drinks and inoculations each day. Much of my load is autoimmune, or accidental, or environmental. But please do not think I am complaining, for I was born a "floppy baby", doomed to death from radon and CMD and some other stuff before three years age. I am now 83. Just be sure to enjoy what life you have. And do wash your own dishes.

@tandd Welcome to Mayo Clinic Connect. We have many members here who probably had or have similar symptoms. I’m sure you will hear from some of them. Are you seeing a rheumatologist? You may want to give this group a call. They have lots of information and resources. https://rarediseases.info.nih.gov/. It’s the Genetic and Rare Diseases organization. They can even help you to find a good rheumatologist.
Will you call them tomorrow and let me know what you learn?

I have UC and have found a great amount of relief from mental fog, and physical pain. I'm 115 lbs and take 12 mg daily in the morning because the extra energy. I also take, a sublingual complex.
It has improved my sense of well-being and decreased my upper gi burning.
It was 2-3 hours after taking 6mg that I noticed a sudden improvement. I said, THANK GOD. I am more active, my brain is engaged, and body aches are significantly less.

Hello .. I am not clear on what medication you are taking ? could you explain what it is please ?
I would love to have less brain fog and pain .. even a little improvement would be great.

I have just begun reading this post and all the responses. I haven’t gotten through all of them yet, but wanted to just ask if you’ve had your Thyroid Levels checked. It could be hypo or hyperthyroidism. Also, you may have Hashimoto’s disease, which is controlled by eliminating certain foods that you’re sensitive to and the way to determine that is to have a food sensitivity test done by a professional doctor, not the tests you order from the mail. I gave up eating gluten, dairy and soy and guess what, the bloating in my body is gone, I have way less brain fog and I’ve lost weight. A pretty good trifecta if I don’t say so! If you’re serious about wanting to feel better, start there with the food. It’s amazing how much better you’ll feel, no joint pain, or stiffness any longer for me! Good luck!

I want to know as well.

About same time and vaccine round as I it seems. After a year of testing locally, I was able to get referral to Mayo (while I still had employer coverage) and get Dx. So many comorbid symptoms that it’s exhausting. I especially get hit with Post Extertion Malaise whether I did something physical or just mental, I am down for considerable time. After 3 years post Dx, I’m at my lowest activity and energy. Too sensitive so any off label meds didn’t help earlier.
Bateman Horne center in Utah is working on public funded research in this area, and have many resources for your family and local health providers…